I have a dilemma. I have been diagnosed with a PFO after presenting with transient ischemic attack. Subsequent TEE revealed a mass on the center cusp of my aortic valve. The mass is mobile. Subsequent coronary CT seems to rule out malignancy. The radiology report thinks a healed vegetation is likely based on history of endocarditis (I do not know where that comes from as I have never been diagnosed with this). The radiology report does not rule out a papillary fibroelastoma or other type of tumor. My doctor specializes in putting in intracatheter PFO closures and wants to do this and just monitor the mass on the valve, as excision of the tumor wiould require open-heart surgery.
My question is this: is leaving a mobile tumor on the aortic valve put me at significant risk of embollism and serious ischemic event? A TIA started this investigation and everything I read says that any mobile mass on the aortic valve should be viewed suspiciously as PFE and should be surgically removed even if the patient is asymptomatic.
Can anyone help confirm or allay my suspicions? I am currently seeking a socond opinion. I am not sure if one of the expert forums would deal with this issue. I would gladly pay the $20!
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