HEART DISEASE EXPERT FORUM
What is this called?

What is this called?

My 7 year old daughter had open heart surgery as an infant.  They repaired a moderate size ASD, and about 4 small VSD's, a couple of which were in the ventricular septum.  Surgery went well, but on the following day she had a tamponade when they pulled her heart lines.  After 45 minutes of CPR, and reopening of her chest, they took her back to surgery and put her back on bypass to allow her heart a chance to recover. It worked, and she suffered no neurological damage.  She is doing great in 1st grade!  Following this event her first post op echo showed some mild mitral valve leakage.  We were told not to worry, but informed that it could change with time and growth.  At her followup visit when she was five, the echo showed an enlarged heart, that could pump effectively, but could not relax and fill properly because of a stiff ventricular septum. He started her on Lotensin 5mg once a day.  She basically does great and is a happy kid, but she does have some exercise intolerance, and gets frequent bronchitis and pneumonia.  My real question is, is what is this?  Is it cardiomyopathy?  Is it hypertrophic cardiomyopathy?  Is it dyastolic dysfunction?  Is it its own weird type do to scar tissue from surgery? If it is seen sometimes following surgery, why can't I find any info about it?  And my final question, is what can we expect for her in the future?  Her cardiologist is great, but from the old school I think, and doesn't share much information.  Thanks, and sorry this is so long.
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Dear She,

I can't really make a diagnosis over the internet but from what you are telling me it sounds like this condition falls into the category of "diastolic dysfunction".  This means that the heart does not relax properly and has problems filling with blood.  Lotensin (benazepril) is an ACE inhibitor which may help with this condition.  In addition beta-blockers or calcium channel blockers may also improve the filling pattern.  

The prognosis with this condition is generally good depending on the severity and also depending on the systolic function (pumping action of the heart or ejection fraction).
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