I have been told that I have AVNRT. I am currently on
digoxinDigoxin
Digoxin immune fab for it, but have had break through episodes. I would really like to get an ablation for this(rather than lifelong drug therapy), but am scared because of the small risk of
deathDiscussing death with children
Gangrene
Liver cell death
Loss of a child - resources
Sudden infant death syndrome (we have two small children). We live in a small town in the
westWest nile virus, but have access through insurance to either go to the EP lab at the University of WA in Seattle, or to a Dr. Goldberg in Spokane, WA. My questions:
In weighing my risks, is my risk of
deathDiscussing death with children
Gangrene
Liver cell death
Loss of a child - resources
Sudden infant death syndrome or serious complication lessened if my arrythmia is AVNRT and if I am young(30) and healthy?
In considering drug therapy (ie.
digoxinDigoxin
Digoxin immune fab, beta blockers), are there actual risks from long term use that I should be considering? Are there statistical "risks of
deathDiscussing death with children
Gangrene
Liver cell death
Loss of a child - resources
Sudden infant death syndrome" from medication that I could compare to the numerical "risk of death" from an abaltion? And are there any studies of just continuing on having episodes of AVNRT and the risk of accidents and injurys that can happen from the dizziness, etc.?
Do you know any EP doctors in Washington that you'd recommend?
I'm trying to make an educated decision and a well thought out one. Thank you for your time and input!
would you mind letting us know what AVNRT is, and what symptoms you have? is it something like psvt, which is what i have. and i too, am considering ablation, but am also leery, and frightened!
thanks,
dlt
From what I've been told AVNRT is a non-life threatening rhythm, but it does affect quality of life because you never know when it will happen, and I don't think it would be good for the heart to let it continue on for hours and days. I feel weak and very anxious when I am in the rhythm.
this is incredible. you've described exactly what happens to me.
sometimes the breath holding helps and sometimes it makes it worse. sometimes the valsalva works and sometimes not. what did your doctor tell you to do. like how long do you wait til you need to go to the e.r. and have the med they give you? and this never happens to me unless i bend over, just like you said, to pick something up. is that what's called psvt?
i'm just assuming because a family physcian is who told me i have this. i've done treadmill stress ekg, echo, 24 hour holter, the only thing showing were a few pac-s, and with the echo they found i have mitral valve prolapse. do you mind telling me more?
do you have mitral valve? and what tests or procedures did they do to find you have this, because like i said, it's amazing how you said it hits when you bend over. i've told so many people this , including doctors, and they look at me like i'm crazy! and i know what you mean, i don't faint or anything, but it's so fast and i'm so shaky. how long is the longest you've had this rhythm last. so far i've never gone over 10 minutes. the longest 10 minutes of my life. it seems slowly drinking ice cold water slows it down. then you can actually feel it "click" right back into normal rhythm. weird, isn't it? thanks for letting me share!
DLT
DLT
They diagnosed my PSVT when I went to the doctor in the fast heart rate. They hooked me up to an EKG machine and took a reading.
HOpe this helps!
and no, i dont have panic attacks. ive never had this happen to me in a "panic" situation. actually its always been quite the opposite. i have definately notice a corrolation between the episodes and times of stomach problems (like everybody else here from what i have read).....alcohol also used to set me off, but always the day after, because of some byproducts of alcohol metabolism from what i have read. but now, i havent drank in some time, and it seems to be getting worse.
they say that as long as you stay under 180bpm or so your ok...but over can kill you pretty quick if you dont get medical attention, because it could degenerate into regular VT or the heart could just "give out" as ive heard it put. my case called for immediate action because i passed out.....if this is happening to you....get to a doc.
hope this helps
Everyone keep posting on progress and good luck.
Sincerely
DLT
about your event monitor....dont let your cat anywhere near
the wires...i fell asleep twice to find mine chewed in half!
good luck in the future....
psvt guy
at the age of 11 and not be evident before. She has always been a very healthy kid and I'm wondering what would trigger this at her age. Is it in any way stress related? Are any of you aware of any natural (ie. homeopathic remedies) that might prevent this from happening. I hate to go the drug route. Could it have anything to do with hormones what with her being pre-puberty? Is it possible to outgrow this? Could illness (sore throat or flu) bring it on? Sorry I have so many questions but I just can't see how healthy people with apparently healthy hearts can have this just happen out of the blue. I'd appreciate any info you good people might have. I might add that a few years back I was bothered by rapid heartbeat especially at night in bed. It lasted for about a year and of course I was too afraid to have it checked out so I lived with it and it passed. I attributed it to stress but I'm wondering now if, perhaps, I had assumed an awkward position while sleeping and that trigged the episode.
at the age of 11 and not be evident before. She has always been a very healthy kid and I'm wondering what would trigger this at her age. Is it in any way stress related? Are any of you aware of any natural (ie. homeopathic remedies) that might prevent this from happening. I hate to go the drug route. Could it have anything to do with hormones what with her being pre-puberty? Is it possible to outgrow this? Could illness (sore throat or flu) bring it on? Sorry I have so many questions but I just can't see how healthy people with apparently healthy hearts can have this just happen out of the blue. I'd appreciate any info you good people might have. I might add that a few years back I was bothered by rapid heartbeat especially at night in bed. It lasted for about a year and of course I was too afraid to have it checked out so I lived with it and it passed. I attributed it to stress but I'm wondering now if, perhaps, I had assumed an awkward position while sleeping and that trigged the episode.
My own daughter, who is 13, developed having skipped beats from time to time. I really freaked. Had her seen by a leading cardiologist from big med center. He insists it's benign pac-s. We did the holter monitor for her. It was fine. She's had about 4 ekg-s , so far all were fine. But the one thing he stressed like crazy is, absolutely NO CAFFEINE! Anyone with any heart palps can be so sensitive to it. I really do think so much of this is pre puberty. Because I'm the one who originally wrote in and complained about this rapid heartbeat occuring only before my own period. And looking back, all this started when I was pregnant. For no known reason, out of the blue I'd get this racing heartbeat.
So, for your own peace of mind, have her tell you when it happens, and if it becomes really frequent, see a pediatric cardiologist, just to relieve your own mind. I'm glad we did. And yes, I do think so much of this is hormonal.
Sincerely,
DLT
I am a cardio pt in WA State also. I see a great cardio EP doc named Dr. Michael Belz at Virginia Mason in Seattle. He performs EP studies, pacer implantation's etc. His staff is great and his other cardio partner Dr. C Fellows is very good also. Just thought I would let you know. If you want any further info or want to talk, please feel free to e-mail me at ***@****. Have a nice night.
blue and yellow and green dyes in them. I can understand her being sensitive to certain additives in food, but what baffles me is when it happens after a jumping or upper body bending over. Is this something to worry about? Once she was swimming with one of her friends and the friend accidentally kicked her in the chest and my daughter said she felt like the racing was about to happen although it did not on that occasion. That's another thing- sometimes she can feel that it's about to come on. In light of this, I'm wondering if anxiety can be a contributing factor. I'm praying that this will pass. In the meantime, I'll control what she eats and I'm going to look into alternative remedies and keep you posted. Once when it happened, I immediately gave her some liquid calcium/magnesium and she said it stopped immediately. Unfortunately the last time I tried the same remedy and it didn't work.
Answered By: CCF CARDIO MD - CRC on Monday, February 05, 2001
Dear Anne,
Have you actually been diagnosed as having hypertrophic cardiomyopathy? I would be suspect of that diagnosis based on the data you told me but it is impossible to know without reviewing the actual studies. R waves are due to the ventricle and poor R-wave progression refers to the pattern as it shifts across from leads V1 to V6. You are correct that the P wave is due to atrial contraction which is usually due to the sinus node. A rapid tachycardia, even for just a short time, can cause damage to the heart. Generally this is a decrease in the pumping function of the heart, not an increase in the wall size. PACs and PVCs are generally regarded as harmless.
Having gathered info from Mayo clinic and other experts in electrophysiology and much frustration I found a method of converting back to normal rhythm that works for me.
As soon as the episode starts, I go to a private room and lay down flat on the floor and take deep breaths. The doctor at Mayo said elevate your feet but this didn't work for me.
By the way, those interested in knowing why bending over starts an episode......you are irritating your vagal nerve in the stomach which caused a PVC and jump starts the SVT.
The only other problem I had was an incomplete cervical spinal cord decompression. I was assured by both the neurologist, Dr. M. Brown of HUP and the cardiologist, Dr. Husain, Chief of Cardiology Chester County Hospital that this was not the problem.
To the person that mentioned stomach problems prior to PSVT, check your sitting/standing blood pressure. When I had the stomach problems and episodes, my standing blood pressure did not rise, it went down when I stood up.
To the person that used ice water to stop episode, you might have something there as there is a connection between soft palate and hypothalmus. Use a search engine and research hypothalmus. Somewhere there are references to cold affecting hypothalmus.......also hot things can cause autonomic dysregulation.
Good Luck!
Edward
***@****