Hi Jennifer.
My name is Jami and I'm 19 years old. I was also born with pulmonary atresia. I have had 3 open heart surgeries, including both the BT Shunt and the Glenn, also.
If your daughter's heart is leaking, I'm sure there is something they can do to help. I have had issues with valve leakage, and I have had a pulmonary valve replacement.
I'm not sure what they can do for your daughter, but since I have EXTREMELY similar issues, I thought I could help somewhat just by letting you know that I've had very serious issues and here I am many years later alive and doing very well.
Doctors know what they are doing and it is their job to save lives, and they do it daily.
Just remember that if God brings you to it, he'll get you through it.
I am sorry that I can't help you with your question. I want to wish your daughter the best of luck as well as you. I can totally understand you worries. good luck and she from what I can see looks so beautiful yet fragile
michelle