cardiomyopathy and lupus

Posted By Lora on December 07, 1998 at 15:22:16:







My sister was diagnosed with cardiomyopathy recently.  She has had lupus for several years.  At Cleveland Clinic, they said that the lupus caused the cardiomyopathy and then resulted in aortic valve damage.  Her heart is very enlarged and they do not want to do surgery.  she has 30% heart function.  With her lupus, she has a low platelet count, anticardiolipin, and ?cardiophosus?  The only symptoms she has are nose bleeds, dizziness, a cough, and stomach pain.  She had a defibrillator implanted two weeks ago to help with the irregular heart beats.  The Clinic said that all that can be done is medication to try to prevent any further heart damage.  I know it is difficult to give a prognosis, but is there a chance that she could still have a normal life span or are we looking at a grave situation.
She is really confused and doesn't understand why she is told no more physical activity.  She is thinking about returning to work and drives her two small children around.  If you could give some clarity on the seriousness of her condition and prognosis, I would be very greatful.
Thank you very much