Posted by Joyce on June 06, 1999 at 10:24:45
I have recently been diagnoised with Cardiomyopathy my ef is 27%. I also have a leaking mitral valve. The doctor said it would not be benefical to repair the valve as it might kill me. I have noticed that other postings state that they have had thier valve repaired with an ef of 25. Should I get another opinion? If the valve is not repaired will this cause my ef to decrease faster. The doctors said I would be a good canidate for a heart transplant because I'm only 52 and no other organs are damaged. They have not put me on the list yet because they say I will have to get worse before that happens. What is the criteria for getting on the list? This seemed to happen overnight. I have had a mitral valve prolaps and an irractic heart beat for years. Would repairing the leaky valve have prevented me from getting cardiomyopathy?
Posted by CCF CARDIO MD - DLB on June 06, 1999 at 11:24:12
It is impossible to know whether the cardiomyopathy caused or was caused by the mitral valve problem. However, I think you should be re-evaluate at a center, such as ours, that does high-risk valve surgery. The old thinking was that valve surgery in someone with a low EF, such as yours, would be uniformly fatal. That is no longer the case. Many patients, though not all, in your situation have benefited from valve surgery. If you were a candidate for such surgery, it should be done at a center that has transplant capability, just in case things do not go well.
I hope this has been useful. Feel free to write back with further questions. Good luck.
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