Good A.M. Dr.,
40yr F,thin. slight mvp/dysautonomia. Echo/stress(yrly),
ekgAtrioventricular block, ekg tracing
Ecg
Exercise stress test at visits all good. Hx of anxiety/palpitations,sinus tachy up to 130-140,recorded on event monitors and in office
ekgAtrioventricular block, ekg tracing
Ecg
Exercise stress test. Last year while on trip chest felt tight, around whole chest. No chest pain associated with these episodes. Started to
panicPanic disorder
Panic disorder with agoraphobia, hr up to 130s. Upon seeing Dr. had echo/stress,
ekgAtrioventricular block, ekg tracing
Ecg
Exercise stress test, chest x-ray, blood etc, repeated. EF%
normalNormal saline flush, no
ischemiaHepatic ischemia
Ischemic colitis
Mesenteric artery ischemia
Testicular torsion
Vertebrobasilar circulatory disorders, all sizes wnl. All good, no changes. Possible allery or anxiety related was the thought. No asthma. Sinuses are swollen/congested. Exercise normally with no changes in breathing pattern(not worse)it does not hinder my exercise.
Experiencing it again lately.Feels like I need to take deeper breathes and let them out longer. Cardio has been following me since 94 with palpitations and sinus tachy issues which are slow rising in nature and terminated slowly. He has seen these on ekgs. After reading someone posting about ef% and low 50's not being good I worried about that as a cause. Cardio said that is not an issue for me, I am fine and will be around for quite some time :) (he is very good to me):)
Possible anxiety and/or hormonal component to this?
What is vagus nerve role in tachy/palpitation issues?
Is there an associated syndrome with MVP that could be causing this?
Does ef% change over time? Does height effect calculation?
I am starting to wonder if I really am needlessly worrying. Any insight?
Thank you again.
Do be like me get to hung up on Ef and change of numbers. I wondered why my Ef dropped from 75% to 53% in over 4 years. On the same echo 5 years ago I had two different quotes of EF one 65% and the other 75%. The last echo print out stated EF 53%, the cardio quoted me a visual of 55-60%. I questioned him about this , he assured me that my EF was absolutely fine. I different places quotes normal EF differently, I have seen 63-75% as normal, I have seen 55-75% as normal, also 50-75% as normal.This makes quite confusing to someone looking for what is normal, from what I gather 50% and over up 75% is generally considered within the normal ranges by most cardios and institutions.
I just saw a cardio yesterday and he pretty much said the same thing. Normal is normal, don't get caught up on the number, if something was out of normal range in structure, they would record it.
He did however say that a stress echo only shows a handful of pictures of the heart--only left ventrical and not right, and recommended a trans-thoracic echo that shows 64 images. Are you familiar with that? Is anyone? Is this necessary if the other echo was "normal" and all ekgs have been "normal" since with the exception of the ever persistent high frequency PVCs.
Thanks in advance for any thoughts on the trans-thoracic echo.
It is easy to get hung up on number, especially if you have a tendency towards health anxiety..or for that fact any anxiety. You are right. That last few echo copies that I do have the numbers have pretty much been in the same ballpark. I wonder what else factors into it, such as if you have not been exercising or lead a very sedentary lifestyle or if you are sick at the time etc....
Upbeat,
Why did the cardio suggest the TEE. I would think this would generally for cases that need to be asessed like valve leakage etc, something that they need a closer look at. Other than pvc's, why does your doc do the echo?
Transesophogeal echo (TEE) is where the tranducer is introduced through the mouth and pictures are obtained fromt he inside.
Did your doctor suggest a TEE? I think the stress echo provides enough information to adequately assess the pumping chambers. The only time I had a TEE was to determine if I was a surgical candidate for mitral valve repair.
Hope you are doing great!
"Possible anxiety and/or hormonal component to this?
What is vagus nerve role in tachy/palpitation issues?
Is there an associated syndrome with MVP that could be causing this?
Does ef% change over time? Does height effect calculation?
I am starting to wonder if I really am needlessly worrying. Any insight?"
mom4cem, I'm not doctor, but doctor has apparently diagnosed you with dysautonomia. Since you sound educated, you perhaps have already have researched "mitral valve prolapse syndrome," and its relationship to the vagus nerve/autonomic nervous system. This is a google page on the syndrome:
http://www.google.com/search?hl=en&q=mitral+valve+prolapse+syndrome&btnG=Google+Search
Since your cardiologist has been following you since '94 for these issues, and has repeated reassured you about your symptoms, and since you are clearly still very anxious, it would seem that anxiety is playing a role here (your current breathing problems definitely could be anxiety-related).
Anxiety and panic can needlessly screw up a person's quality of life, and it sounds as though you may be suffering more than you need to be. After all, worrying about your condition--even if you had a serious medical problem, which does not seem to be the case--wouldn't change it for the better, would it?
As fearfactor, one of the posters here, has learned, getting help for your anxiety problems will definitely give you some major relief from your physical and emotional discomfort, and I hope you will actively seek it.
Apparently recommended just so every base has been covered, because the cardio says that on the stress echo they only look at the left ventricle and not the right ventricle.
I have mostly single foci PVCs from the right ventricle. I'm not sure if the trans-thoracic echo will provide any more answers or not. Sadly, I'm trying to justify the cost if everything else has been normal. High deductible.
Basically he said, 2,000, 5,000, 10,000 or 20,000+/pvcs per hour is all pretty much the same. It's a lot, but there's not much to be done. Anti-arrythimic drugs he says are toxic and should only be used when benefit outweighs risk. And ablations aren't recommended for PVCs for the very same reason, risk of an invasive procedure versus a "benign" condition. I really have to agree even though some days....if I had the option win the lottery or be PVC free...I think all of us would choose no PVCs.
He did honestly say that not much is known about PVCs, only the miriad of triggers and that not much is known about treatment except avoid the triggers. ha, ha, ha, ha. That was a good one.
Beta-blockers decrease the workload of the heart, and that May or May Not decrease Pvcs. yadda yadda. Further, no one is studying high frequency PVCs because SOOOO many people have them but not many are dropping dead of them. There's no urgency. (for researchers). but he still thinks a trans-thoracic echo should be done. I don't know.
I'm glad it was a TTE and not a TEE. If you decide to go ahead, it should not be as costly. I didn't realize that stress echos only looked at the left ventricle. I'm going to try and remember to ask my doctor if mine is done the same way. I'm going in a couple of weeks...Boy, times flies by!
I'm also not sure whether the trans-thoracic echo will provide any more answers. I'll try and remember to ask that question.
I kinda got the same feedback about the frequency - "it's a lot, but it's still benign." My doctors have never wanted to put me on anything other than BB for pvcs. Eventually, I just got used to them and used the BB's only for the BAD days. There was talk early on of trying anti-arrythmics, but no one was comfortable with that, me included.
Once I was put on anti-arrythimics, I did get some relief from the never ending pvcs. But, no thanks to the side effects...Hence, the ablations. I agree whole "heartedly" that taking potent meds or attempting ablation in the setting of a benign condition is not warranted. Hang in there Upbeat!! You have such a great handle on your own situation and I'm sure you are "tuned in" for any changes. Hmmmmm.....PVC free of the lottery. I'll have to think on that....Can I split the difference? Deal or NO deal? LOL
Oh yes...the "triggers." I never really have much luck with figuring that out. Other than my God-given anxiety, caffeinated beverages, and occasionally, my love for chocolate, I didn't have any really triggers.
Good luck with your decision on the TTE...Keep us posted and stay Upbeat : )
The docs keep pushing me to try more SSRIs. I have been on Paxil, Zoloft(Tremendous weight gain, lethargy, no sleep and nightmares), Cymbalta(horrible nausea), Effexor(disturbing hand tremors, Prozac and Imipramine(huge increase in attacks, and now my docs want me to try Lexapro and from what I have read on this forum, Lexapro is just as worse...even if the the docs say the side effects are less...they are not the ones taking it.
Anxiety and panic can ruin people's lives unless they get good support from a therapist who actually cares. I am just coming off of 30 day STD from work because of the meds. I am now back on Klonopin (.25mg AM and .25 Noon, and .5 before bedtime) and it has stopped the attacks. I am still wound up and anxious a lot but that is my normal genetic makeup and I am learning to accept it. I have been told and I have read that Benzos are terrible in the long term but you know, they work for me. And with Congnitive Behavioral Therapy, I hope to slowly wean off Klonopin this summer and be psych drug free. Therapy is the answer, not meds. They really only mask symptoms conduct no curing at all unless you have depression.
In addition, I suffer from PVCs that drive me crazy when they hit.
These palps have send me to ERs and home early from work. I have spent many, many hours worrying about my heart, even though my EKGs, sress tests (3 of them), Holter and Event (2), Stress echo (3), echo(1) blood work ( near infinite) have all come back normal
Then early this year. They stopped! But in the last three weeks when I went on STD, they came back full force. One doc thinks it is my hay fever pill, Allegra, that started them. So I stopped taking it. We shall see if they decline. I have been told that my panic disorder is the main reason I have PVCs and chest wall pain, but a big part of me still thinks I have a heart problem.
I worry everyday about PVCs and what they may do to me. Even though several cardiologists and docs have said to me "live your live and enjoy your new family and home." It is so difficult to do that when you are always scared. I don't fear the panic anymore, but I am terrified by the PVCs. They hit whenever and wherever and I am a little agoraphobic about them. They have disrupted my professional and personal life. This whole panic thing has caused significant damage to my new marriage. I accept the full blame as I am not the person my wife married anymore and I dream every day to return to that individual.
Meditation, yoga, relaxation are the answers and cures. Remember, that you recover from panic and anxiety, but you may never be truly cured. It is how you allow them to be a part of your life and let the dissipate on their own. They do. Trust me. I am now learning that panic is caused by my fears only...and when one comes on, I say "ok, hit me with everything" or I say "oh, a panic episode, no big deal" and they stop quickly. You then gain confidence.
I hope this helps!
Can you do your usual activities when you have those strange feelings in your chest? If you can, it is a sign that your heart is doing its job just fine. You note that you can feel yourself spiraling into depression. That means that you understand how important your emotions are in what's going on with your body right now.
I think trying to stay calm and optimistic is not where it's at for you. Rather, I think you should go to your doctor or psychiatrist and simply say that worry is driving you frantic, because that's the truth. Your doc can discuss this with you, and if you are clear about how miserable you are, she/he will be able to prescribe medication or therapy that will help you over the anxiety that is making you even more miserable right now.
I have started counseling and had a rx for Xanax filled at my docs wishes after I broke down in his office out of worry and frustration. I know I neeed to learn to handle this better. But I also know my anxiety NOW is NOT what caused all this and my docs needs to figure this out. I am scared aftet these 4 months whatever this is has gotten worse and when they do figure it out it will be too late. I dont know if this is all these things work. I read about "sustained" and "nonsustained" and I dont know what qualifies for either. My rate goes up to 120 or higher sometimes. i dont know if THAT means something bad. I dont know if i get the strong ones all day like today if thats a bad sign and I need to call my doc or if its just a bad day and i need to wait for the holter results. I am trying not to drive myself and the docs insane. Truly doing my best.
If you can feel the short pause in your pulse and then the stronger beat, you may well be having PVCs - thats how I finally recognized that my symptoms were due to PVCs. I recognize the anxiety in your last post because I had extreme anxiety about my PVCs when I first found out my symptoms were heart related. But I can certainly reassure you that having PVCs, even though they feel very scary at times, will not hurt you physically. I've felt my PVCs off and on for over three years - there are many people on this forum who have had symptoms from PVCs for ten, twenty years or more. Some people have had 20 or 30 PVCs every minute of every day and they are fine.
I assume that you have already eliminated ALL caffine from your diet, even chocolate. Also try to get plenty of sleep and stay well hydrated. These things can help reduce the frequency of PVCs. Stress might increase the frequency of PVCs, but again, even with very, very frequent PVCs, you'll be fine - just uncomfortable.
When I read you last post, I empathized so much with you, I know how terribly difficult and incapacitating the anxiety over these issues can be. I wish I could give you an answer that would help to ease you mind. I'm happy to answer any questions that you have if you'd like me to. Andie
I have cut out all caffeine and chocolate which upsets me cause I ADORE chocolate and now I cant have it. I have friends and family looking forward to the warm weather and going to amusement parks like we always do and I am afraid that part of my life is over as well. I NEVER know what type of day I am going to have so making plans to do anything has been hindered...afraid to make plans with anyone and then I have a bad day and I ruin the day for everyone around me. My life prior to this happening seems like a far off dream. I dont even remember it anymore.
I think counseling will be a big help to you, even after you get your holter monitor results. I am not trying to minimize your pain here; I hope you know that. But you clearly understand that a big part of this problem is emotional, and that's why we see counselors.
Like Woodruff said, if you can function fine physically while you are having these symptoms, then certainly your heart is working fine. My doctor once put it to me this way - healthy, young hearts have more variability to their rhythem (this is a positive thing) and ectopic beats show that the heart has a back up system to the SA node. Also, even if you do have other symptoms (like shortness of breath) along with these palpitations, the other symptoms could also be caused by intense anxiety or panic attacks.
For me, focusing my attention on something concrete in the present moment helps to get my mind out of the vicious cycle of scary, obsessive thinking. Scary thoughts are just thoughts - they are not truth. Could you take at least a little time to focus on something positive that has nothing to do with your heart health - just to get a fresh perspective. Honestly, spending time on this forum is not the healthiest thing for me to do - because I just end up with more to worry about. Sorry I can't be of much help to you - I wish I could - but I know it's just so hard to be waiting for results. Just not knowing is the worst - but I believe you're going to be just fine.
I'm a 34 yr old woman with pvc's/pac's/svt. I know how everyone feels on here. I have had this since 1998. I went off the beta blockers they were killing me making my pulse so low and bp. I'm only taking ativan now because I get severe anxiety when my heart goes crazy everydsy. I think the only thing we can do is keep praying they will go away and that GOD will heal us in his time i truly beleive that. I use to take my good health for granted and never thought twice about it until these heart concerns came on now its all I think about. I will keep praying for everyone with this concern and I just hope everyone will be healed of this horrible ailment.
Tara
So I just got out of the hospital. On top of my recent problems with the chest and throat, I have a neurological problem for the past year or so and my neuro scheduled me for testing. This was scheduled two months ago and when the time came for me to go this week I was very upset and nervous saying I was not in the right state of mind with everthing going on. That I wanted to focus on my "heart" problem. The hospital said they would monitor my heart. So I was there for 3 days. 3 DAYS OF MONITORING. Not to mention the 24 hr holter monitor my GP did last week. And of course, because I tend to get the feelings during the day and when up and about and random, and the BIG ones only coming a day here a day there, I didnt get ANY big ones there. NOT ONE. Had some small ones. But mostly on the left side....not the ones in the upper middle chest and throat that FREAK ME OUT. Neuro came in and told me he viewed everything and EKG for all 3 days was fine. I told him I didnt get the BIG ONES so it wasnt "captured to evaluate" and he said "doubt they are cardiac though". My GP called this afternoon, holter came back NORMAL OUTSIDE OF A FEW PVC'S BUT DONT THINK THAT EXPLAINS ALL THE SYMTOMS. NEED TO START THINKING ANXIETY OR GASTRO. I asked him if the log i kept matched the pvc's on ekg and he gave me a vague answer that I dont even remember right now. I really need to know if my log matches the ekg cause than I will know.
Do you think I need to drop the BIG ONES aspect? I mean the fact that I didnt have one while being monitored? I cant help but wonder if THOSE are something different that didnt get picked up or just the same symtpom just worse? Should being on a EKG for 4 days overall be enough to rule out serious heart problems without getting the big ones?
Since being home I have had alot of them. I have also been more active then just sitting in a hospital room for days. So i contribute it to that...my family however says, SEE...STRESS. AS AS SOON AS YOU ARE OUT OF THE HOSPITAL...BOOM...YOU GET THEM.
I just dont know what to think anymore.
I tend to get mine while active. Bending is a key factor I notice. And just being active period. I will get them at rest but they come during the day when up and about and then I sit to work or watch tv or such. If I am just home in bed, like in the hospital, doing pretty much nothing, I will get very few. I NEVER get them sleeping. At least I am not aware of them. I tried to be active in the hospital, walked around the room, bended here and there, but the exertion level just wasnt the same as in every day life. I told everyone I was getting the big ones there because of this and they said OR you are more relaxed because you know you are being monitored and you feel at peace and close to an answer, so your symptoms are less, hence they said ANXIETY. Nope...dont buy it. I KNOW it does factor in...I am well aware of that...but these things started from something else. The anxiety makes them worse I am sure...but they are not the culprit.
RESULTS:
TOTAL BEATS 111810
0.02% WERE VENTRICULAR
0.O5% WERE SUPERVENTRICULAR
0.0% WERE PACED BEATS
MEAN HEART RATE 79
MAX HEART R ATE AT 8:45PM WAS 145
MIN HEART RATE AT 7:43AM WAS 47
VENTRICULAR ECTOPIC TOTAL 25, SINGLE 21, PAIR 2
SUPERVETNTRICULAR ECTOPIC TOTAL 66, SINGLE 12, PAIR 2, BEATS IN RUN 50, LONGEST RUN 22, @6:08AM - RATE 91
COMMENTS:
NSR, RARE PAC
I dont understand. He states rare PAC? no mention of the 47 times i log in my event log to see if symptoms coincided with anything...unless this means my symptoms were not coming from the heart at those times after all????????????????