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Heart Disease  (Expert Forum)
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end stage chf
Answered by
Cleveland - OH
This forum is for questions and support regarding heart issues such as: Angina, Angioplasty, Arrhythmia, Bypass Surgery, Cardiomyopathy, Coronary Artery Disease, Defibrillator, Heart Attack, Heart Disease, High Blood Pressure, Mitral Valve Prolapse, Pacemaker, PAD, Stenosis, Stress Tests.

end stage chf

by chbigdog, Jul 09, 2005 12:00AM
My father in law who is 93 has CHF, has a pacemaker for A-Fib and takes many medications for the above, as well as many other health problems.  He is swelling with fluid, is losing control of his body functions, does not wish to eat (but will if we ask him to), has a very low intake of fluids, is talking to people (that aren't really there)is very confused and has SOB with exertion.  His doctor is at the VA Hospital and is VERY difficult to reach, we have waited as long as two weeks for a response from the doctor.  My F-I-L has a DNR order, he does not want to go to the hospital because he thinks he won't come home. I do not like watching him struggle with his breathing and since he is aware of what is happening to him, he is angry, embarassed and has begun to use profanity which is unlike him around our small children.  He is definitely not himself, should we take him to the hosptial even though he does not wish to go, can we take him for comfort measures only? How would they treat him, can he be treated in ER and released, does it require a longer stay or is he ready for hospice?

by Cleveland Clinic, Jul 09, 2005 12:00AM
bigdog,

Sorry to hear about your father in law.

These are impossible questions to answer definitively. You do describe what sounds like a terminal state. In my years in medicine, these are usually the most difficult situations for physicians and families to deal with and vary for each individual and family.

It sounds like the most important thing for your father-in law is to make sure that he is comfortable. Even those with a terminal condition should never have to suffer even if they dont undergo resuscitative measures.  My advice would be to look into a home hospice care program. Home hospice nurses are skilled in using analgesic and other comfort medications to help make patients with terminal diseases comfortable.

If you are having problems setting this up, and/or your father in law is uncomfortable and you are unable to reach your physician, an emergency room or the VA emergency room should be able to help give him medicine to make him comfortable. Make sure you discuss with them your expectations or his wishes exactly.

They may be able to give him something to ease his suffering, or ensure you that he is comfortable.

It sounds like you've already had end of life discussions with your father-in law which is fortunate as it should help make your descisions about which care pathways easier.  These are always difficult on all family members involved and my advice is to continue to communicate among yourselves and with your father in law if able and look to those support systems that have been uselful to your family in the past whether that be each other, your faith, or something else.

good luck and best wishes.
Member Comments (6)

by gi in az, Jul 09, 2005 12:00AM
Sorry to hear all the problem you are having.  His confusion and behavior are probable from his breathing.  If it was me, I would call hospice and have them come and help you, especially since it seems that is what for f-i-l would want.  Hang in there, I know it is very hard.

by jaydens mom, Jul 09, 2005 12:00AM
sorry to use htis thread for my question but i couldn't get another one open. I have a ? My dad had a triple bypass 15 years ago. Just recently he had 2 episodes where he felt a little discomfort in his chest (one time he thought it may have been heartburn) they were 8 months apart. Dr's want him to have a cath. to make sure everything is ok. Do you think it may be angina or could it just be heartburn?He is a nervous wreck as well as the rest of us. He also went for a chest x-ray and they said they saw scar tissue on one of his lungs and want him to go for a scat to make sure it is just scar tissue. He had a bad cough back in dec and when he went for a chest x-ray they saw the same scar tissue and told him that he had pneumonia but then when they checked again they noticed it was just the scar tissue from his surgery 15 yrs ago. Now they see it again and want to make sure it is nothing before they do the cath. Any opinions?

by LukeL, Jul 09, 2005 12:00AM
I am not a doctor but it is hard to tell non cardiac pain from cardiac pain. Since your father had bypass it raises the odds it might be a cardiac related problem.

The docotor will not answer your question in this topic but inorder to get a post in the heart forum you need to be up early so you can get a post in on time. Just be up by about 8AM and every ten minutes or so try to post a question. Or you may want to browse the archives on CABG

by FredZ, Jul 12, 2005 12:00AM
To: chbigdog
My Dad got his care at the VA and was 90 yr old and had CHF. He was admitted a couple of times to treat the fluid retention. Your situation is worse with the mental difficulty suggestive of encephalopathy. I'd for sure take FIL in to the VA emergency room. I had to do that a couple of times for Dad and they admitted him and worked the immediate problems out.

by Vonnie05, Aug 14, 2005 12:00AM
My sister just died yesterday from CHF and I am taking it very hard. I also have CHF and I'm Trying to find out what could have went wrong because she had just got a pace maker two month ago and last year she had 4 stem put in her heart. Me myself dont have no blockege but my heart is very weak.Can somebody tell me something?
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