I live in Australia,I am 39 years old. I was diagnosed five years ago with complete heart block and received a dual pacemaker. Around six months ago I began suffering terrible fatigue, breathlessness, and pounding heart with little to no exersion. I had a stress test done which uncovered post exercise pulmonary artery hypertension. 22-37 mmhg at rest and elevated to 58>mmhg post exercise,the conclusion, significant post exercise pulmonary artery hypertension.A lung function test showed my DLCO ml/min/mmhg at 16.7, significantly impaired. I have quite obvious cynosis and coldness of my hands, sometimes my feet and face. They fiddled with my pacemaker and concluded after a further stress test (without stress echo), that it was not IPAH?? even though post exercise IPAH was apparent. This was four months ago, and I am still suffering from bouts of breathlessness everyday, sometimes without exersion, especially in the mornings. The symptoms have not altered since the pacemaker readjustment, and I am currently not receiving any medical treatment or tests for any further investigation for IPAH, and I am worried that this disease may be progressing without anyone knowing, or seeming to care.I have been taking 100 mg of metoprolol twice daily for about three years now, for an underlying atrial arrhythmia.Is my concern warranted?? Should I be pushing for further tests?? I hope you can assist me with some advice.
Kind Regards, Bluetiger