Heart Disease Expert Forum
infant mitral valve replacement
About This Forum:

This forum is for questions and support regarding heart issues such as: Angina, Angioplasty, Arrhythmia, Bypass Surgery, Cardiomyopathy, Coronary Artery Disease, Defibrillator, Heart Attack, Heart Disease, High Blood Pressure, Mitral Valve Prolapse, Pacemaker, PAD, Stenosis, Stress Tests.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Blank Blank

infant mitral valve replacement

  My 7 month old daughter was born with a large VSD and a deformed mitral valve (one leaflet was large and floppy, the other small and rigid). She had surgery to repair her vsd and the surgeon also did some repair of her mitral valve, but it has continued to leak. She is scheduled to have the valve replaced on Feb 8. (the surgeon does not see much hope of doing any repair to it at this point). We have been told of the risks. The surgeon said that there is a 20% chance that she will not survive the surgery. This of course terrifies me, plus the fact that he said that this type of surgery is rarely done on an infant her age. She has failed to thrive since her last surgery, weighing only 10 pounds. She had a severe reflux problme following surgery, but seems to be past that. She does not vomit any more, but can not eat more than an average of 18oz per day. Anyway, my question is...do you know about how many infants have such a surgery per year? Do you know where I can find out more about other infants who have had such a surgery? Is her risk higher than that of an adult with similar problems simply because of her age? Your response will be greatly appreciated.
---------------------------------------------------------------------------------------------------
Dear Julie

This sort of surgery is uncommon. Her risk is indeed higher because of her age. Your surgeon was being honest in his estimates for possible bad outcomes. Your own hospital probably has support groups for parents of infants that are very ill.
I hope this has been useful. Feel free to write back with further questions. Good luck.
Information provided here is of a general nature.  Specific diagnoses and treatments can only be made by your doctor.  If you would like to be seen at the Cleveland Clinic, please call 1-800-CCF-CARE for an appointment with a cardiologist at Desk F15.





Related Discussions
Continue discussion Blank
Blank
Request an Appointment
MedHelp Health Answers
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank