Posted by Henriette on June 20, 1999 at 18:25:05
Dear sir, Madam,
I'm writing this message from the Netherlands and I have a lot of questions to ask. I hope you can help me in my queste for answers.
Case: 39 y/o
femaleCondoms
Female condoms
Female sexual dysfunction.
TrigeminalTrigeminal neuralgia neuralgiaCluster headaches
Neuralgia
Trigeminal neuralgia(typical) since 1985.(medications:
TegretolDrug rash, tegretol
Tegretol
Tegretol xr and tryptizol 25 mg (amytriptilene) BP fluctuating sometimes very high. Since beginning this year coming down from 200-130 to 3 weeks ago 155/95. Last time measured at
cardiacCardiac catheterization
Cardiac tamponade
Left heart ventricular angiography emergencyEmergency airway puncture
Emergency contraception care two days ago 180/110.
Diets: Saltless and cholesterol poor.
Family history. Mother 65 y/o:bypass, after having four stents placed and it failed. Brother 40y/o heartattack last spring. Uncles (my mum's side) died from heartfailure. Aunts still alive.
Last fridayevening I was hospitalised for having severe chestpains (probably angina)at the cardiac emergency department. Testresults there: heartfilm: No heartattack ,but there is definatly something wrong.They could see that. It's probably concerning the artery's. Next week many more tests will follow.
Lungphoto's : good. Sugar levels: Too high (13.7?) : Leukocytes: too high :trombocytes: to high. BP 180/110 , cholesterol: 5.6 trycl?: too high. 2.3 I think? it was. many things happened at that moment so I cannot recall eve
every rate too well.
Anyway,I was allowed to go home with a lot of medications and under a lot of restrictions. Medications I got home with me to prevent other heartpains:
Ascal 100: (carbasatum calcicum)-Selokeen ZOC 100 betablocker
(metropolol succinaat) and Isordil (isosorbidedinitraat)and Renitec. (enalapril)
I have been using Atenolol(betablocker) in the past for the high BP and I had terrible side reactions from that. No breath and very very tired. I hardly couldn't walk the stairs anymore.
I was taken of that medication and they put me on Renitec. An ACE inhibitor. I still have to continue using that one also. No need to say I'm not very much functioning. I'm very very tired, I'm sweating if I do anything and gosh I can hardly lift my arms writing this because I'm so extremelu tired in my muscles and body. I'm again completly without breath but I have to say I don't have heart pain right now. The cramps have stopped for now.Happy to say.
Last friday they sprayed me nitroglycerine under the tongue a couple of times and this cause a lot of pain in my head and more important it triggered Trigeminal neuralgia pain quite a lot. TN pain is very very painfull and not helping the bp levels.
My questions.
1: Is it possible I have these horrible TN pain effects from those medications .(TN pain triggered, especially with using the nitromedication?)and if so how can this happen and more imprtant can this be prevented in the future?
2: Tegretol is affecting the liver badly. Has to be checked out regularly.Do the new medications make this problem worse?
(I took all theTN and BP medications with me to the hospital)
3 Will there ever be a change that I will get of the heart medications again?
4: Are there other heartmedications that will not produce the massive side effects to my body. Being without breath and extreme tiredness.
5 If not, do you get ever used to the side effects from those medications, just as Tegretol does.
6 Is there a way to break the BP circle I am finding myself in? Pain causes a high BP, BP is also due to the fact I am following my genetic inheritance.
Are there any suggestions here? Can I do other things besides following diets?
7 Do the heartmedications interact with the TN medications?
that they aggrevate the side effects like being tired, being dizzy etc etc.
I have a lot of questions flying around in my mind, but this is also due to the fact this hospitalisation/heartproblems happened so recently. Next week I will have to undergo a lot of tests to locate the exact problem.
A friend pointed this website out and I hope you don't mind I border you with my questions. I really want to get wise about this because as it seems now I don't have a winning deck of cards in my hands.
Thanks for any input/help/wisdom you can give me at this moment.
Yours sincerely
Henriette
Posted by CCF CARDIO MD - CRC on June 21, 1999 at 11:10:01
Dear Henriette,
I am sorry to hear of your troubles. I have answered your questions below.
1: Is it possible I have these horrible TN pain effects from those medications .(TN pain triggered, especially with using the nitromedication?)and if so how can this happen and more imprtant can this be prevented in the future?
A: Nitro can cause hearadches but I haven't heard of it triggering TN. This would be the most likely suspect however.
2: Tegretol is affecting the liver badly. Has to be checked out regularly.Do the new medications make this problem worse?
A: None of your new medications have liver interactions.
3 Will there ever be a change that I will get of the heart medications again?
A: These are standard heart drugs but changes can be made if you are not tolerating them well.
4: Are there other heartmedications that will not produce the massive side effects to my body. Being without breath and extreme tiredness.
A: Unfortunately all drugs have some side effects. Some affect people more than others however and your doctor will try to find the best combination.
5 If not, do you get ever used to the side effects from those medications, just as Tegretol does.
A: see above.
6 Is there a way to break the BP circle I am finding myself in? Pain causes a high BP, BP is also due to the fact I am following my genetic inheritance.
Are there any suggestions here? Can I do other things besides following diets?
A: Exercise will help in addition to the medication and diet.
7 Do the heartmedications interact with the TN medications?
that they aggrevate the side effects like being tired, being dizzy etc etc.
A: Beta-blockers can make you tired. I don't see any dangerous interactions between your medications but there is always a possible interaction. Your pharmacist can tell you better for your exact medications.
I hope you find this information useful. Information provided in the heart forum is for general purposes only. Only your physician can provide specific diagnoses and therapies. Please feel free to write back with additional questions.
If you would like to make an appointment at the Cleveland Clinic Heart Center, please call 1-800-CCF-CARE or inquire online by using the Heart Center website at www.ccf.org/heartcenter. The Heart Center website contains a directory of the cardiology staff that can be used to select the physician best suited to address your cardiac problem.