I am 51 female with PSC (bile duct disease), am on the liver transplant list. Am currently able to work. Back in March had a spell where I felt faint and had shortness of breath, went to ER, they did EKG and one showed v tac, then returned to normal. Followed up with cardiologist, stress test, everything normal. Have strong family history of heart problems, dad had v tac with defrib and died, Mom had heart attacks/cancer, died, Oldest brother had heart attach at age 42 and died 7 days later. Oldest sister had complained about chest pain, was told it was in her mind, got up one morning 13 days before turning 48 and had a massive heart attack in her easy chair and died. Other brother age 52, had renal kidney problems, long-term dialysis, heart problems, and finally v tac, died at 52. I have one living sister age 52.5 (has outlived all of the siblings....and me, age 51)
So, this week, went to work, felt hot at the back of my neck and prickly at the base of my head, thought I was going to vomit and pass out. Ended up in ER, did EKG showed 2 strips with v tach then nothing. Consulted with cardiologist who did stress test back in March, said it was related to liver disease.
They released me, saying nothing was wrong with me. I called my transplant coordinator and she consulted with my HEP saying this is NOT related to liver disease.
I'm baffled why this keeps happening. Is it because of panic attacks, could it be dehydration, I also have a jpouch and require more hydration than most.
I am so fearful that I will ignore these signs in the future because I am being told nothing is wrong and then just die at home because of fear of embarassment of going to ER and being told I am crazy.
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