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Avatar universal

some help and advice please

i had a tilttable echo and ecg to find out what causes me to fain. i was asked abot my health and they think i may be suffering from elhers danlos syndrom and that this is what is causing POTS . WHEN I LOOKED THE CONDITION UP I HAVE FOUND THAT MOST OF THE SYMPTOMS I HAVE SUCH AS THE REALLY FLEXIABLE JOINTS AND JOINT MUSCLE PAIN. I AM NOW WORRIED AS I DONT SEE THE CARDIOLOGIST TILL 1ST SEP TO GET RESULTS OF TILTTEST BUT THE DOCTOR WHO DONE THE TEST SAYS SHE BELIEVES I HACVE THE ELHERS DANLOS SYNDROM AFTER I PASSED OUT DURING TILT TEST. CAN ANYONE GIVE ME ANY ADVICE OR INFO REGARD THE TREATMENT OF THE POTS AS I CANNOT FIND OUT HOW THEY WILL TREAT THIS SYMPTOM. IM ALSO WORRIED I COULD HAVE PASSED THIS ON TO MY DAUGHTER.
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Avatar universal
thanku for comments. yeah i passed out completely i havent felt good sice my heart rate still going mad and now weekend. thanks for all info and link
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Avatar universal


to clear up what i said also went into cardio arrest......i meant  to say almost not also.

also when i took the test my bp was highest 180/121...then i fainted, and when i fainted heart rate went from 98 to 43.
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Avatar universal

i did a tilt table test, and i fainted and also went into cardio arrest, my BP was 180/121.

if you had what they were looking for u would have fainted in the test..did u faint? Me and my son have this nerological problem.

During the test, your blood pressure and heart rate are monitored. You begin by lying flat on a table. Then, the table is tilted to raise the upper part of your body — simulating a change in position from lying down to standing up. This test allows doctors to evaluate your body's cardiovascular response to this change in position.

When you stand up, gravity causes blood to pool in your leg veins, reducing the amount of blood that returns to your heart. This causes your blood pressure to drop (orthostatic hypotension). Normally, your autonomic nervous system rapidly accommodates this effect by narrowing (constricting) your blood vessels and increasing your heart rate. But if these mechanisms don't work normally, the drop in blood pressure can be severe enough to cause fainting.

The tilt table test can help detect orthostatic hypotension. Causes of orthostatic hypotension may include diseases that affect the autonomic nervous system, such as diabetic autonomic neuropathy and Shy-Drager syndrome.

we drink alot of water and make sure we eat salt, also i take atenolol 50mg.
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21064 tn?1309308733
Did I read correctly that you won't see the doctor until September 1st for the results of the tilt table test?  That seems like an awful long time.  So, has the doctor diagnosed you with POTS?  

I'm sorry I can't be of more help.  I'm not familiar with Ehlers Danlos Syndrome.  Hopefully, others will come along that can help.

I'm not sure if this will help, but here is a link on POTS.  I searched the Cleveland Clinic website, but the info I was able to find on POTS was part of a "chapter" on a number of arrythmias.  I also came across this, maybe it will help::
http://www.medgle.nl/index.jsp?issearch=true&section=keyword&keyword=postural+orthostatic+tachycardia+syndrome&gender=&agerange=&duration=

Connie
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