My 42 year old son has just been diagnosed with stage 4 cardiomyopathy. He is in Florida and I am in Pennsylvania so I cannot go to the cardiologist with him. He was rushed to the hospital 3 weeks ago with congestive heart failure. He is HIV positive although his T cell count is good, has hepatitis C, has been a smoker and drug/alcohol user for almost 29 years.
He is in denial I think and so am I to a certain extent. He has never had heart problems in the past although he says he has noticed for the last few years that he has been getting more winded.
I want an idea of what is ahead and what planning I need to do with him. He is just getting on medicaid and has an appointment with social security in a few weeks for disability.
I know that no one has the answer to how long he is going to live, but any comments would help me. Thanks.
Sorry for the bad news you have gotten. Everyone as an individual cope better, better defensive system, etc, so it is difficult to prognose. I have provided a link to a relevant thread and below the thread there are links to discusions. Thanks for sharing.
ive researched stage 4 congestive heart failure and some doctors says they have only 6 months to live unfortunately, i think the drink and drugs would be to blame for this sorry, they have caused irreversible damage to the heart he will need a heart transplant or will sadly pass away
Sorry to hear your news. KenKeith always has some very great links and he has given you a great one. It sounds like your son is making the right moves in taking care of himself. Mom, love him like there's no tomorrow! You may be surprised at how many tomorrows you are given. My heart & prayers are with you. Take care, Ally†
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.