update on amber

[ddavey]

hello all..   update on amber     we went for a follow up with ep in ann arbor on monday and i asked them to run a bnp...   her level is 18!!!!!!!!!!!!    when she was diagnosed with IDC in march of 05 it was 158....   she looks great, has lost weight from the fluid retention   the only issues she has now is dizziness sometimes when she stands up too fast or going up a couple flights of stairs   drs say her blood pressure may drop from all the meds but it doesn't happen very often    svt's are way down but pac's are still over 20,000          i think the addition of digoxin to her regimen has helped the most.   for the first time in 3 yrs we can breathe a bit.........   thanks to all.....      dawn

[Momto3]

Dawn,

Thanks for sharing all that GOOD news.  I know you guys have been through a lot and I'm so happy to hear things are going well for Amber : )

Connie

[ireneo]

That is good news. I'm so glad to hear it. She's probably feeling so much better and it sure warms your heart to see her doing well. Thank you for letting us know. I often wonder how she's doing but don't want to be a pest.