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Avatar universal

19 year old with tachycardia, lightheadedness

Hi, I have a nineteen year old daughter with a history of asthma since she was 2.  She complained to me about a wierd feeling that she'd get in her chest like her heart wasn't beating right and she'd get lightheaded, then feel some kind of rush that started in her chest and went to the rest of her body and that happened after her heart didn't feel wierd  anymore.  She said it would last 2 to 5 seconds and she'd be back to normal.  I guess it happened a lot when she was 15 then very sporadically.  Then not at all for several months.  I took her to the doctor last August and they put a holter  on her for one month and she had no occurrences, but had one shortly after.  The doctor ran several tests and said her heart was very healthy looking.  When we saw the doctor, my daughter didn't describe a fast heartrate, but it felt like her heart slowed down to her.  And she failed to mention (which she just told me today) that it felt like it was harder to breathe.  So fastforward to last Sunday, she was eating at the kitchen table, and said my heart feels wierd, so I immediately took her pulse which felt so fast that I was unable to count it, then within about 15 - 20 seconds, it was beating normal again.  That was the longest it ever lasted and she was really scared that it wasn't going to stop feeling wierd.  Again she could tell when it was back to beating normal because she would feel that rush sensation.  I told her she was o.k., but I was really scared too.  Then on Tues., she had the normal one that only lasted 2 - 5 seconds.  

I put a call in to the cardiologist she saw and his P.A. called me back, she just said we should do another monitor if she's having symptoms again.  The problem is we don't have health insurance and can not possibly go through this again.  I'm talking we live in a mobile home, drive 1994 cars and my husband is disabled.  Not like, we have to go on vacation and couldn't pay for this test.  I would give my right leg to do anything possible for my beautiful girl.  

She is a non smoker, non drinker, has a couple cups of coffee a day, uses an asthma inhaler a few times a week which has been totally unrelated to when this tachycardia occurs.  I'm finding myself feeling really terrified as to what this is and what to do.  It has been 4 days since she's had an episode now.  I had no idea that she had the feeling like it was harder to breathe symptom until today when I told her if the feeling doesn't go away to do the Valsalva maneuver, she mentioned it feels like it was harder to breathe but didn't really think it actually was harder to breathe.

I have an appointment to go to a free clinic on Thursday and I'm hoping that something will come of that.  I talked to her pediatrition too and she said to go to the ER if it lasted 20 minutes.  Oh I forgot to mention, when the P.A. called me back from the cardiologist's office, she said that if it was ventricular tachycardia, she probably would have passed out.  

It was just so wierd feeling her heart so fast, then immediately back to feeling normal, I know it had nothing to do with anxiety, which kept coming up.  I've struggled with anxiety and my heart will beat fast but nowhere near as fast as hers was and it takes time to come back down.

I would so appreciate hearing if anyone else has had anything like this.  I am having a really hard time dealing with this and I don't want to talk to her about it so I don't cause her to fear.  I told her today to get to an er if it doesn't go away on its own.

Thanks for listening.
18 Responses
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612551 tn?1450022175
COMMUNITY LEADER
Just picked up on this thread... and was happy to see progress is being made.

I don't consider ablation a scary prospect, I underwent open heart surgery seven years back... I thought that was scary, however, but it went just fine.

This thread makes me feel a little better about the "Affordable Health Care Act" (will not use the popular/unpopular name) and the ability it, presumably, offers for people to get "affordable" health insurance when they have per-existing health condition...one might hope they continue to participate inn the insurance (pay) when they no longer have the condition. Even currently we have Medicaid and the "Free Clinic" sounds like society stepping up to help... happy to see, this tread reads like a case deserving of financial help  Bless !

I will not mention my age, but I relate to this thread more as a concerned grandparent than a patient.  
Helpful - 0
1423357 tn?1511085442
Thanks for the update. I'm going on 4 years free of SVT after 54 years of having it. Like Michelle, I too have occasional ectopics now and then, particularly in the summer months for some reason.

If I were 19 again (I wish!) and had the technology available to me, I'd do it in a second.  I had too many years of my life messed up with SVT.  But, the thought of the electrophysiology procedure is often scary, and you have to want it.  Perhaps your visit with the electrophysiologist can persuade her to go for it.  It gave me a normal life that I never experienced since early childhood.  I'm now almost 64.
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1807132 tn?1318743597
Thanks for coming back and giving us an update.  What you describe is typical.  It can start for no reason or on movement.  The one that was caught to diagnose mine was caught when I bent down to tie my shoe.  Considering she isn't all that active all the time it might be a good idea to wait. I would however suggest she try to learn some vasovagal maneuvers to try and get it to stop as soon as possible when it does go off.  Holding her breath and bearing down like straining to go the bathroom is one or drinking a very cold glass of water.  So long as she is mindful about managing it she should be just fine and if it starts to disrupt her life like it did mine then it might be prudent to consider an ablation but it is always wise not to rush into anything and do it when it feels right.  My EP also did not favor meds for svt.  He basically said that it wouldn't stop the episodes only slow them down compared to how fast they would be without the meds and considering your daughter's young age that would be a long time to be on meds and likely not good for her long term.  My EP basically said, ablate or deal with it.    

I am svt free after 45 years of it.  It will be 3 years tomorrow that I had my ablation.  I still have ectopic activity but it is very minimal so my heart is back to being calm.  I've finally stopped noticing it. Well I hope your daughter continues to feel well and come back anytime to chat.    
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Avatar universal
Hello everyone,

Just wanted to update you on my daughter's heart symptoms.  She's been wearing a monitor that constantly monitors her heart without her having to push a button.

She had an episode while wearing it and they called us to tell us that she has an extra pathway.  We have to make an appointment to discuss treatment options.  She doesn't want meds or the ablation now.  I know the doctor wasn't wanting her on meds either when we saw him for the first time.  He is an electro physiologist.  

So it looks like she is dealing with SVT for sure.  Her episodes have only been happening about 1x a month. She skipped a few months this year, then had 2 months where they happened every 10 days.  

She was dizzy for maybe 15 to 30 seconds this time and the nurse told us her heart rate was 180 for 6 seconds.  It's funny cause when she had a 10 minute episode, she took her own pulse and got 180 too. So maybe that's what her rate will always be in tachycardia event.  

She had one episode lasting 40 minutes in January, one 10 minute episode and the rest have just been probably 30 seconds (the symptoms she feels).  

Interesting, it seems they are more likely to happen if she stands up quickly from a sitting position, bends over and gets back up, jumps up.  Although it's happened plenty when she was just sitting down doing nothing.  

How's everyone here doing?  Still free of symptoms after having ablation?

I really appreciate all your help you've given me.  Thanks a lot.

Kim
Helpful - 0
1807132 tn?1318743597
I lived with an svt called avnrt my whole life and only had it corrected in my forties and I am told my heart is perfectly normal.   To answer your question I believe most say if the episode lasts longer than 30 minutes to seek medical help though I never went to the er for mine and I did have a few episodes that lasted longer, especially towards the end and my heart is still fine.  If bearing down doesn't work try having her drink a very cold glass of water or even jump up and down a bit.  As Elli said it is usually a pac or pvc that triggers the svt and so triggering one of them can usually get the svt to stop.  At least that is my understanding of it but the point being you want to try and disrupt the rhythm kind of like how you try to disrupt the hiccups.  I will also say panicking is the worst thing you can do.  That will cause her to tense up and become fearful and make how she is feeling much worse and even painful.  Because I never feared mine they did not really bother my heart much at all.  Basically one minute I was fine, the next my heart was racing then just as quickly it stopped.  

There is an easy fix for this with a cardiac ablation.  If you do not have health insurance you may want to wait for the government insurance because it is expensive to fix this issue but if it isn't possible to do that at this time just have her learn what works to get it to stop.  Regardless of how some people react outside the cardiac community this isn't a condition that is considered a life threat but you do want to be mindful of it and treat it properly having her stop what she is doing until the episode has passed as well trying whatever she can to get it to stop as soon as possible.  So manage the condition as best you can, do not fear it and get it corrected as soon as is possible and your daughter will not suffer any ill effects from this condition.  Take care and do keep us posted on how she is doing.
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1464004 tn?1384135733
Hi, the slowing down she felt may have been a PAC or PVC that precedes the SVT. Something to do with irritating the extra pathways we have, I think.  I'm not good at the technical like Tom and Michelle, but I'm sure the cardiologist will explain it all to you. In the meantime maybe you could have your daughter read some of the posts by people on here who have been dealing with this crazy stuff for years, it may make her feel a bit better about having to deal with it herself :-)
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Avatar universal
Hi Elli, thanks so much for your response.  I have been just so stressed about this and this gives me great comfort.  She did have a work up when she was 18 and had all the tests incuding a halter monitor for 30 days, but had no episodes.  Her heart is structurally fine.  That's what I kept telling myself when her heart was racing.   The problem was when we went to the cardiologist, she described the episode as just a wierd sensation in her chest with her heart feeling  like it slowed down and then she'd get dizzy and it would last 3 seconds.  Then when it happened and lasted longer where I was there and ran over and felt her pulse, her heart wasn't slowing down, it was racing so that's why I was questioning the validity of her previous cardiac workup.  We didn't give the doctor a clear picture of what was happening.  At the time I took her, it was very rarely occurring.  I'm in the process of getting her to another cardiologist now.  We're filling out some financial aid forms to get a discount, which will be wonderful.   I'm hoping she can find something to make it end quickly when it occurs.  I appreciate all you so much!  Thanks again,  Kim
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1464004 tn?1384135733
Hi, as Tom said, many many of us have been dealing with SVT and other rhythm problems for years.I just turned 56 the other day and have been dealing with this four more than two decades. When I drop into SVT I usually click in at around 240 BPM.  I've had to be chemically converted many times but thankfully not since I switched beta blockers. ( it's a drag). I also know how it is to be with no insurance.  If your clinic can do it, have them give your daughter a cardiac work up with an echo.  I'm sure this will show a structurally sound heart and may put both you and she at ease.  Yes SVT and ectopic beats are a pain in the butt but can be lived with, most of us old timers on here have been doing so forever and we're still here.  As far as the reaction of the doc at the clinic of saying" it's your daughters life"  all I can say is even some physicians are not up to speed on these things.  By the way I work for a cardiologist and he assures me that in a structurally good heart these things are much more common than people realize.  Oh and sorry for being so long winded and for any typos, I'm on my phone.  lol
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1423357 tn?1511085442
My SVT occured about 3 to 5 times per month.  Mine was the self sustaining variety.  Once it started, it would run on until I intervened to slow it down. It could last for hours, but I became pretty good at being able to convert it, so it would last for usually last a few minutes to half an hour or so.  Keep in mind that I had this for 54 years. As I got older, it went from once every few months to 3 to 5 times per month formthe last 10 years.  Three years ago, at just about age 60, my doctor convinced me to have an electrophysiology study where they perform an ablation at the site of where my accessory path was found.  I'm now going on three years without SVT for the first time since I was 6.

To be fair, the doctor doesn't know what your daughter has, so he's erring on the safe side I'm sure.  But also consider what the doctor stands to gain monetarily by taking her on as a patient .  

At 240 bpm, or 4 times per scond, the skin of my chest under the breastbone would literally be vibrating.  Yes, it's very  anxiety provoking. The 312 bpm as a child lasted for nearly 24 hours.  My lips had turned blue and this prompted my mother to call the doctor.  She did not think to listen to my heart.  The second the doctor listened to my heart, I was rushed to the hospital where it was converted with drugs.  This was back in 1957.
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Avatar universal
HI Tom, thanks for your reassurances, that is so scary to have a heart beating at 312, can I ask you when you have episodes, how long they last?  I got a hold of the doctor at the free clinic today and she gave us a referral to a cardiologist, she was very concerned about it.  How long can you let your heart beat at over 200 bpm before going to the ER?  I'm going to read over all the replies from before.  I've had such a busy day today and was so stressing over this, literally feeling rushes of adrenaline in my body thinking about her heart.  Before she left for class tonight, she asked me to say a prayer for her so her heart doesn't act up.  I feel like I want to not leave her alone, I want to drive her to her classes and wait outside the door so I can be there if anything happens.  Obviously, I can't do that and that probably wouldn't be too healthy if I could.  She'll have to learn how to deal with it.  The doctor today said something to me that was startling though, she said this is your daughters life, deal with the bills afterwards.  So I was feeling like this could have been a life or death situation for her.  But in the back of my mind, I was remembering some of the posts I read right here on this message board and that kept me from freaking out while it was happening.

One more question, does your heart really pound in your chest while this is occurring?  Her heart was pounding so so hard when I felt her chest.
Thanks again for the help.
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1423357 tn?1511085442
Hi Kimber and welcome back.  Yes, this at least sounds like classic SVT.  This is not like sudden cardiac death.  You need to stop worrying about that.  Re-read our comments above.  Have her try one of the ways to slow it.  Valsalva is more that just holding ones breath.  You have to bear down........ well like you're constipated.  But when she bears down, don't push down, but keep the diaphragm tensed.  That keeps the pressure up in the chest instead of down in the bowels.  Placing just the face in a pan of ice water works for some.  We even had a woman here who had great success doing a headstand to slow it.  The interesting thing about SVT is that the heart rate is usually consistent.  If you measured 175, then the next time is will be 175.  I think it has a lot to do with the circuit that causes the SVT.  Mine was usually around 240.  As a six year old kid though it was clocked at 312; that's rippin'.  

SVT is scary, and it feels uncomfortable.  But ten minutes is not a long event.  Taking her to a cardiac doc will most likely show absolutely nothing.  These concealed conditions can only be seen when they activate.  I'd look to a free clinic or speak to your family doctor to see where she could get low cost care.

Drugs therapy for SVT has mixed success.  It did nothing for me except make it easier to convert.  Good luck and keep in touch here.
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Avatar universal
Hello, I'm back with another really scary incident that happened last night.  My daughter had another out of the blue heartracing episode lasting 10 minutes.  I felt her chest and could not believe what I was feeling, it was pounding so hard.  I couldn't take her pulse, could not feel it well enough and it was too fast to count.  I have a heartbeat app on my phone that is usually pretty accurate but it wasn't getting her beat either, it did once and it was 178 bpm.  She was kind of starting to freak out cause the longest it ever lasted previously has been about 15 seconds.  She just was studying and walked into her bedroom to get something came out into the living room and said my heart, sat on the couch and I asked her if she was o.k., she said her chest feels really wierd, she was taking very deep breaths, I asked her if she was having trouble breathing, she said no.  I felt her pulse, it actually didn't feel as fast as it did the last time but it was very fast.  I kept telling her she'll be o.k., she is getting scared cause it's not stopping, I tell her to try holding her breathe, that didn't help, she couldn't get up to walk to get cold water on her face and I didn't want to leave her side to get a cold washcloth.  Then she said, it's back to normal now and sure enough I felt her chest and it couldn't feel her heart at all and her pulse was back to normal.  She said it just feels like her heart stops beating cause it went from such a hard beat to not feeling anything.  I put a call in to the free clinic as they said they would refer her to a cardiologist.  

She is such an amazing daughter, I went into my room and fell to pieces (without her knowing) just thinking about what just happened.  I didn't know if I should call 911 cause based on passed experiences, it goes away really fast and she feels totally normal after it passes.  I didn't want to stick her with tens of thousands of dollars worth of medical bills and have her get to the hospital and her heart is back to normal rhythm and they don't find anything.  

I'm just so scared thinking about the athletes that have sudden cardiac death but I'm thinking those are people who have unknown congenital heart problems, is that true?  

I got so much comfort coming back to this page and reading my previous post and the answers I received.  I'm thinking of getting a pulse oximeter.  So does this sound like svt?  I called her old pediatrician and she just said to have her see a cardiologist.  I have been documenting the occurrences and they occurred 8/4 which lasted 15 seconds, 8/6 which lasted a couple of seconds, 10/2 which was the normal short couple second one and 11/3 lasting 10 minutes.  

Any input is greatly appreciated.

p.s.  I was so happy to find this forum again, cause my old computer crashed and I had no idea where this message board was.
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1807132 tn?1318743597
I actually think it is more common for people to have theirs start and stop on their own than for one to need medical intervention. I had mine my whole life.  Most of my episodes were a minute or two but as I aged  I started to get ones that lasted longer but in general they all started and stopped on their own.  I believe the mechanism that usually triggers one, an early ectopic beat, is the same mechanism that can stop it.  The ectopic (extra) beat causes the heart to reset it self by pausing for a beat which gives the electrical signal on the extra pathway a chance to make a full circuit. But the same as the pause helped to start it it can also disrupt it. It is the force of the heart starting back up with a bang that can feel like a whoosh to some so I would not take what your daughter feels to be too alarming so long as things go back to normal and stay that way.  So doing things like bearing down and holding your breath or drinking a cold glass of water can disrupt the heart enough to get the looping of the signal to break.  As harsh as this sounds the meds they use to try and stop the looping signal essentially stop the heart for a second.  I have never had to have the meds thankfully but it is the principle of disrupting what is happening that starts and stops svts.  I suggest maybe jumping up and down or coughing and seeing if that helps.  I had one episode that was lasting a few hours and decided I should go to the ER but in the car after we hit a bump it stopped.  So the main point try to disrupt the looping beat and stop it as soon as you can and the affects of the svt on your daughter's heart will be minimal.

I do want to ask if you checked her pulse when she woke with the asthma attack?  An svt attack can also cause someone to become very short of breath.  The heart is just beating too fast to get enough oxygen so always have her check her pulse to see if it is crazy fast.  I know those pulse ox monitors you can pick up at the drug store give the oxygen saturation as well as heart rate.  If the rate is higher than the instrument can read she may well be in the 200s which would indicate an svt attack and maybe not necessarily an asthma attack.  I have not had asthma so I'm not sure if one could distinguish the difference in relation to the difficulty breathing but just the same it might be prudent to try and check to see if it is svt or not and if it is try and take the vasal vagal steps to try and stop it.  Take care.
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1423357 tn?1511085442
I'm sorry, but I can't say that I felt a "rush" when my heart returned to normal rhythm.  I was just always grateful when I felt the little bump that accompanied the return to normal sinus rhythm, followed by the immediate "quietness" within my chest.

SVT works differently from person to person.  For myself, once my heart dropped into SVT, it would stay that way.  It never converted back on its own.  Other people will report thier heartbeat returning to normal after a short period of time.  So for me, finding a way to convert it brcame of utmost importance.  When I had my first episode at 6, physicians at the children's hospital where I was admitted taught me Valsalva.  This proved an effective method for the next 54 years.  There are other methods that people have discovered.  One woman on here did handstands against a wall.  Some placed their face in ice water.  There is supposedly a carotid artery massage that is very affective when done correctly, which I have never tried.  Then of course, there's the ER where chemical or electrical conversion can be used.

I would work on eliminating "things" that can help trigger an event.  Caffeine is found in many soft drink and even in chocolate.  It play a big factor in SVT.  For me antihistamines to control seasonal allergies really got my heart going.  Investigate if her asthma medicine could play a factor in her SVT.  
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Avatar universal
Thanks for everyones responses.  I just remembered I posted this here.  We had a rough night with her asthma, she woke up having a really hard time breathing around 4 a.m.  I gave her a nebulizer treatment after she had used the inahlor 3 times.  Things finally started to settle down within about 1/2 hour otherwise I would have taken her in.  She had her appointment at the free clinic this morning and her pulse ox was 94, which isn't too bad.  They set her up to get some 4 and 10 dollar medications along with a steriod inhalor that we couldn't afford, so grateful to them.  They took my concern about her arrythmia seriously.  The can refer us to a cardiologist, they sent her to have her thyroid checked, a cbc, and viatmain D level.  The PA told her to make sure she remains well hydrated and was very concerned about her asthma, we said we'd wait a bit to go to the cardiologist.  She  hasn't had another episode since last Tuesday.  Last night was just scary enough with her asthma.  I just hope it's nothing more serious.  So with svt, can the episode just stop on it's own without her doing anything or would that be an indication that it's not svt?  Also, anyone know about the rush she feels after her heart feels normal again?  She says it starts in her chest and goes outward, I don't want to ask her again about it cause I don't want to bring it up.  That just sounds really wierd to me and I think is that the blood she can feel flowing again?  Like it's pooling in her chest cause her heart is beating too fast to be effecitvely pumping the blood?

Again thanks to all who answered me, it helped me tremendously!
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1423357 tn?1511085442
There are countless numbers of forum members on here with SVT.  If this would be the diagnosis of your daughter, this is a condition that can be lived with.  I had it for 54 years before getting it fixed several years ago.  It's typically not a serious condition, but it interferes with your lifestyle.  If you read the symptoms described above, amd feel this may be it, have your daughter learn Valsalva, along with other ways of converting it. Episodes can run on for hours sometime.  It's uncomfortable, and can be a little frightening too.  Note that people with this can have the heart of an athelete. It has nothing to so with the structure of the heart, but rather its electrical system, and has nothing to so with anxiety.  Good luck!
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1807132 tn?1318743597
It sounds a bit like your daughter has avnrt.  A fast beat that starts and stops on one beat.  I had it all my life but when I was younger it was very infrequent.  It wasn't until my 40s that it started to disrupt my life.  It sounds however like your daughter is fairly active though the episodes are short lived so that is good.  If she is unable to bear down to get it to stop have her also try drinking a really cold glass of water.  I would also have her avoid caffeine for now as that can aggravate arrhythmias.  

It is likely this has nothing to do with her asthma. Avnrt is characterized by having an extra muscle fiber in the heart leading into the avnode.  If a signal makes it to the avnode on this extra pathway it will get caught in a loop causing the heart to race extremely fast.  That is why the avnrt svt is generally one of the fastest of the different types because the looping pathway is really short.  I had a holter one time but didn't have an episode on the day I had it so it was useless but later they gave me a 30 day event monitor that gave me more time to catch one.  Your daughter should probably try and at least get it diagnosed.  

An ablation is a very effective way of curing a person of svt for good but It is a very expensive procedure to fix,  You may need to wait for Obama care to be able to do it.  But until then have your daughter watch for stress, watch the caffeine and watch eating anything that might cause her stomach to act up.  The mechanism that generally triggers svt is something called ectopic beats or extra beat the heart sometimes throws off, pacs in the atria or pvcs in the ventricles.  My trigger was pvcs.  Most people from what I understand are triggered by pacs.  They can be aggravated by stress and things like acid reflux so keeping the ectopics to a minimum may help lessen the amount of svt episodes your daughter has.  This said, even if she gets the svt fixed she may still notice the ectopic beats.  I really didn't distinguish them as something different until after the svt was removed and I was aware what was what but it feels like the heart is jumping around a bit and for me it was the weird sensation after a pvc that usually was followed by the svt jumping in.  I thought they were related but they weren't.  Pac however to me feel like little blips so she may not even notice them at all.  Anyways, I make this distinction to help you understand the dynamics of svt a bit better as well to alert you that you daughter may have that going on as well.  Ectopic beats are super harmless especially if you are able to get your daughters svt corrected eventually.  Until then have your daughter do her best to manage her svt and she should not cause her heart any undue harm.  

Both ectopics and svts are not deemed a health threat though svt can become very disruptive so really worth correcting if one can.  The procedure though expensive has very high success rates with very low complication rates.  I am super sorry to hear about your financial woes and send good thoughts your way that you are able to get this taken care of at some point.  Maybe the office of the EP your daughter would go to see would be kind enough to do the case pro bono.  I know they sometimes do that and are able to write it off as charity.    Given your daughter has asthma maybe you can broach the subject with them and see if they would be willing.  But either way it sounds like your daughter's heart is healthy so just make sure she is very responsible about her symptoms when they occur and she should be able to go for many many years without this being a huge burden on her heart.  Take care and we are here if you ever need to talk.
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212161 tn?1599427282
hi, funny that I had the same thing at age 23, my heart would take off racing and I would just stop whatever I was doing, it would scare me so bad, but than it would go back to normal. not as fast as your daughters sometimes my heart would race like that for 20 to 30 mins. was so scared I would tingle all over and also felt like I was sob. but really was not. it caused me a lot of anxiety. I now have the heart flutters/ skips. but when I went to cardio dr mine got caught on the monitor at 240 beats a min, so they put me on a bête blocker. I am now 54 and still on that same bête blocker with no more heart rushes, yes the pac/pvc still come but not that fast heart beat and if at anytime I feel it taking off I can take a extra pill it slows it down.

prayers they find out what is causing hers or what it is. try to relax, I bet she will be fine. lots have racing hearts and live a long life and with very little problems. Heart
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