3ed DEGREE HEART BLOCK

my 10 year old daughter has 3ed degree heart block with a pacemaker. she has had it from birth. We do not know any other childeren that have this so i was wondering if there was something online that can put us in contact with other kids and families that have the same condition. I have tried to find information about heart block online and theres really not that much info out there or maybe i just cant find it. Her Dr. said it is a some what rare condition. So if any one knows of anything please let me know.... Thank you Amy

[Jerry_NJ]

Amy, please also make your post to heart disease http://www.medhelp.org/forums/Heart-Disease/show/72 and pediatric-cardiology as you may find someone there http://www.medhelp.org/forums/Pediatric-Cardiology/show/302

My post will "bump" your post to the top of the list again, and perhaps someone in a similar situation will see you post.  I do recall a few posts in the past concerning children with heart problems.

My very best wishes to your daughter and you whole family, think of the good things that happen each day.