That is a very logical concern. I trained at the Cleveland Clinic. I trust them. They will present you with options and risks and you will be able to make an informed decision. There may be medications that will can permanantly suppress the arrhythmia--it depends on what type of arrhythmia it is. If it is AVNRT (the most
commonCommon cold in your age group), this is usually a very simple and
safeSafe driving for teens
Safe sex procedure. One episode a month is pretty frequent, especially if you require shocks to get you out of it. This all comes down to a risks/benefits decision. After they talk to you about the risks/benefits/alternatives to the procedure, youcan make a more informed decision. I would tell you the options myself but I cannot do it without knowing what type of SVT it is.
If your arrhythmia is atrial fibrillation, you will need a trial of medications before ablation to be compliant with the current guidelines for atrial fib ablations -- but I think you would know the name of the SVT if it was atrial fib.
I hope this answers your question. Please let us know what you decide to do and why after you visit the Cleveland Clinic.
Who is your appointment with?
Good luck!
How are you doing now? Hopefully much better. Have you ever tried medication, if not why?
Thank you
I decided that at fifty, I would see an EP. He said AVNRT is the most common cause of tacycardia, and that it was nothing to worry about at my age, but twenty years from now it was likely that an episode would caue fainting spells. He thought that ablation was the treatment of choice and did not even suggest a trial of medication since ablation often cures AVNRT. He is welll respected in the medical community and I know other patients have been very pleased with the results of their ablations. If things settle down, and he says they will, then its a good thing.
I would definately take a wait and see approach if your episodes are infrequent, especially if a pill in the pocket is an option. If things get progressively worse, you might reconsider. It is a relatively safe procedure, but your EP will not know the exact location of the problem until he does the EP study.
When you would have an episode, how fast would your heart rate go and for how long before you could stop it? Also, what manuver worked best for you? If this should occur again, I'd like to try to stop it myself, if possible. Boy I just can't imagine experiencing an episode monthly. I sincerely hope that the ablation works for you.
It is hard to say if the beta blocker is working. Since I have only had two episodes in the last 21 months, I will have to wait and see. I am going to visit an EP specialist and ask about the pill in the pocket. I will keep posting to update and hopefully learn more about your progress as well as others. Thanks again
When I realized this wasn't life threatening, I learned to live with it. That said, there's something about turning fifty that makes this kind of thing a little more frightening. You mentioned that you enjoy travelling. I have never let this keep me from travelling, and never had an episode during a flight. I admit to a overdoing the cafe con leche in Madrid last year and paying for it...but, it was worth it! Wait and see, and try not to worry too much.
Thanks for your concern. I'm pretty optimistic that the ablation will work and all will be well. I'll check back and see how you're doing!
I just had an ablation done two days ago and it wasnt that bad...feel free to email me if you want to chat about it! ***@****
Glad to hear that you are doing well. What made you have the ablation? Please tell me about your condition and how long you lived with it before having the ablation. I recently had a second episode with AVNRT after 20 months of freedom and now it has hit me hard. I'm on beta blockers now, but am giving some thought to ablation. Like many, I worry about the procedure and results. Please share...Thank you.
Rose
It is Thomas Dresing. Only one s. He did my ablation last week. He is very good and very compassionate. You will like him!
S
When you see him, don't forget to compliment him on his bow tie -- it's his trademark.
good luck an let us know how it goes.
wmac
I think I made 2 trips to see the Dr. before my procedure. Once for the initial consult and the second a follow to a few tests, one being a treadmill test immediately followed by an echocardiogram. After I decided to do the procedure, I think I had to wait around 5 weeks for an opening.
My procedure took just shortly over 3 hours. I did have to stay overnite in the hospital. However, since I am very afraid, almost phobic, of hospitals, they were very lenient about letting my husband stay with me. The care was excellent and I didnt mind being there at all.
The nurses and staff in the procedure room were very calming and reassuring. I was most afraid of the anethesia as I really do not like being out of control, however, honestly, if I could bottle that stuff up for everyday use, I surely would! It was very relaxing and I could not believe I was on that table for 3 hours. I remember nothing unpleasant about the whole thing.
I think the worst things for me was 1) the boredom of laying still for 4 hours after the procedure and 2) finding out I had a latex allergy when I got home and dealing with the itchy rash where the adhesive tape touched me.
The best part---I am now 6 days post procedure and have not felt ONE missed/flipped heartbeat. YAY!!!
Let me know if I can answer anymore questions for ya!
I would try beta blockers first for a while and then consider ablation if the meds don't work. Good luck with your decision.
I had my ablation a week ago. I dont seem to have any skipped beats anymore but having slight discomfort in my chest....almost feels like i am out of breath.....just a couple of times a day. Heres hoping we are both success stories!
Thanks
I have felt so good since the ablation--heartbeat wise-- that I would not hesitate to do it again.
Good Luck with your decision!
S
Nearly 50 years old, male, living in Perth, Western Australia.
I've been reading your comments with interest. I'm booked in for a study/ablation on Thursday after having episodes of SVT since I was about 14. I've done the beta blockers and all sorts of other things bt the last two months has been horrible. I've suddenly gone from a hospital episode (I'll go after two hours) about every three years to several in the last few weeks. Adenosine converts the rythm but it's horrible feeling, isn't it?
Good to read your experiences of ablation - pg1949 is helping me feel less frightened about someone fiddling about with my ticker! Thank you!
It's nice to find a forum that tells me I'm not alone and that the anxiety I'm feeling isn't just because I'm a wimp (I am, but it's good to know that's not the cause!). I'm feeling much less anxious after reading your stories.
My doctor hasn't explianed to me the different types of SVT. When I asked him he informed me that part of the procedure will be to confirm the type and (hopefully) treat it on the spot. That would, for me, be the ideal outcome.
SInce the last adenosine conversion I've also been getting what I describe as an 'internal shiver' that feels like my heart is quivering. It only happens as I'm drifting off to sleep, never any other time. Anyone have any clues? I've asked my doc. He put me on the treadmill and, after abot 10 mins at 170bpm nothing showed apart from a few ectopics. I'm a bit concerned, despite his assurances that all looks well.
Am I just suffering from acute hypocondria?
Cheers,
Frank
I had 2 ablations (RVOT and LVOT) a few years ago. Like some of the others here, I was very nervous, but decided to give it a try. It turned out to be a great decision! Hope you have continued great days!
Connie
I've bumped my EP study out to October 25. I wanted another consultation with my cardiologist. After reading through a lot of posts on this site and info on others I felt I wasn't a informed as I should be - I'll be pumping my doc for more information. I want to make sure the procedure is needed, not just a convenience thing.
I started taking magnesium supplements and getting a little more rest - I've been going on about 4 hours sleep a day for the past 12 months or so. My ticker i behaving itself sooo much better. No 'wobblies', no skips and no flubs for a few days now. Feeling good!
I'll probably still go ahead with the EP study, largely for peace of mind, but I wanted to send out a thank you to you all for sharing your experiences nd making me feel less alone and helping me get over my fear of someone fiddling about with my heart. I'll keep you posted as things progress...
Cheers,
Frank
my case is very rare so I would not let it disuade you but getting as much info as possible is really smart.
Sorry to read that your ablation hasn't worked out yet (note the 'yet' - keep hoping!)
I'm not sure what, if anything, is actually working for me. Typically, I feel fine between episodes of SVT. It takes me a couple of days to recover from a serious bout, but the last couple of times I've had the rhythm problems I described earlier. It could well be that I've simply gone back to normal - it just took longer this time.
My doctor has been nagging me for years to slow down. I have a habit of driving myself too hard. These last episodes of SVT shook me enough to listen and get some more rest - I think that's doing me so much good. The magnesium thing I picked up somewhere (perhaps around this site) and it resonated with talks I've had with my doctor about my electrolytes over the years. I take just one 750mg capsule per day.
I'm very active - I cycle a lot, run a bicycle shop, have a full-time job in project management (very stressful!) and I'm studying for my PhD. No wonder I occasionally fall over! It looks like fatigue can be a significant trigger for SVT. I'm trying to address each potential trigger. Fatigue and electrolytes this week. I stopped coffee two weeks ago (hate that!). I still smoke a bit but I'm nearly off the cigarettes too.
Judging by people's comments here I'm a relatively mild case, with SVT rhythms around 230bpm and stable but have difficulty reverting, hence the consideration of ablation. I know that ablation or not I MUST make some lifestyle changes. My worry (which I suspect is shard by many people here) is that I just don't know when the next wobbly will hit and the constant feeling of being on guard is particularly wearing. That's the peace of mind I'm looking for from the ablation.
I do hope things settle for you, Hopeful. Keep posting :)
For those wanting to know these are the forms
Premature beats
Supraventricular Arrhythmias
Atrial Fibrillation
Atrial flutter
Ventricular Arrhythmias
Ventricular Tachycardia
Ventricular Fibrillation
Bradyarrhythmias
Triggers: Stress, Smoking, heavy alcohol use, heavy ecercise, use of certain drugs (cocaine or amphetamines) use of certain perscription or over the counter medicines, and too much caffeine or nicotine so there you have it probably already metioned but just a reminder also metropolol should not be used if you have asthma in which i do thats why they tell me to take as needed there i will leave everyone alone for now lol!
I have recently had two RFA procedures. Neither successful in getting rid of my SVT. I am currently on Calan 240 and HCTZ . I have a history of high blood pressure (really high). I recently was pregnant and had severe eclampsia (seizures and all). In an episode of SVT my heart rate will hit 240-260. I have passed out many times. During both of my RFA procedures I went into Atrial Fib. I was awake for my second one (over 6 and 1/2 hours and still didn't show the rythm that was needed). He did ablate two areas the first time. It didn't help though. I have what my Dr. says is an Automatic SVT. He says I don't have a trigger to get the rythm that they need to perform the ablation. However, as soon as I'm in the recovery room, I start to have the fast heart rate. Other than medication, and ablation are there any other options? I am finding it hard to cope with this problem. I can't seem to be sure that I won't pass out. It is scary with having two young children.
Now to answer your question on the in the ep study they can't trigger your heart don't worry my ep doc told me it is not rare to not get the heart to trigger it happens alot and not to be discourage in my case they had no problem but in alot of cases they can't trigger the heart. This just means they will keep a close eye on it. Now if you do have it happen maybe try calling 911 so they can document it either way if you are having an arrhythmia you should not drive to the hospital because if your not passing out now you will start and that is where the concern comes so call an ambulance this helps in 2 ways. One they can document the case with a EKG and two your spared from a major accident even if it quits before they get to your house you should still go and be checked out. As far as the meds go maybe your doc should put you on a lower dose of meds? I don't know i'm not a doc but that sounds reasonable in that case just dont do it without your doc's permission first though! Now if you read above what i wrote you would see that some medications can trigger an arrhythmia so any other meds you are taking check with your EP or PCP to see if they do always ask the pharmacy to if they can e a side affect because you have psvt. Also there's nothing wrong with a second opinion (another hospital or EP) My EP told my family that he thinks he got them all but i might have another EP study to make sure because he did see more. But he couldn't trigger my heart to that rate again so this is something if you have psvt your probably going to live with for a long time and its good that your looking into it and getting knowledge on the information. I experienced jaw numbness and dizziness which is also a huge sign of a problem with psvt. I didn't know this until the procedure lol. They told me if that ever happens go immediately to the hospital! It took 15 years of my life of pain and discomfort, two hospitals and alot of E.R. visits for them to finally give me 20 ablations on the same day and them to finally take me serious that i had a huge problem going on! Keep your head up and don't give up or be embarrased about going in they will get to the problem. good luck to you!!!
Finally after another horrible night I walked in with the ekg strip the paramedics left at my house. In a nutshell I finally saw the ep specialist he was very informative and decided it is time to try an ep study...... I am praying for an answer. I have been having these epsiodes since 1995, would eat dirt to make it stop. My hearts and hugs go out to all of you.......Kelly
I had an AF ablation in May of this year - all was well, apart from the odd missed beat, for about 10 weeks, and then the AF attacks returned, for 1 hour, 3, 4,6 and unfortunately I have had several now, lasting 20-22 hours :( - the ECG shows that as well as AF, I now have Atrial Tachycardia.
I return to my hospital early December for a touch-up ablation (which has an extremely high success rate) so am praying I will get fixed then.
Like someone said earlier, I too want my life back, having these attacks every 36 hours at the moment is no fun and quite exhausting.
Have been offered Flecanide as a pill in the pocket - that strategy hasnt worked yet, and I can, if I want to, start to take 2 x 50mg of Flecanide daily up to the operation date - I am not sure what to do, as at least the days between the attacks are good and I can carry on doing my walking to get fitter..
FYI I have had different arrythmias for about 12 years now, I am now 46, and am looking forward to my next 'go' at being fixed :)
I also ended up with 2 ablations...I thought the 1st one worked well enough, but the doctor didn't agree. So, it was back to the "table" and I must say, she was right!! It has been about 4 years and I'm still just getting occasional blips. Hope you have great results with the upcoming ablation (an early holiday gift perhaps...)
I will hold on to that thought lol!
I had the procedure at CC with Dr. Walid Saliba. He asked to use the robotic options (for positioning the catheters) and I agreed. The procedure itself was a breeze and boy does it feel good to be in a "production line" of patients being prepped for the EP Labs!
Yes, my local EP offered to do the procedure, but he's the Lone Ranger in my town. How well does the hospital staff assist him when they do relatively few procedures? What does he do if he gets in deep doo-doo and can't page Andrea Natale for help?
I am 2+ months down the road and have no symptoms and am taking no meds. I send the CC an EKG FROM MY HOME PHONE every week. I go back in November for an Echo, an EKG, and a CAT plus a meeting with Dr. Saliba. Yes, all these are very common tests but I think the technicians giving tham at CC and the doctors interpreting them will be tops.
The PVI procedure is "mature" in the sense that many local and regional centers can perform it. On the other hand, it is by no means an institutionalized one.
If I need a suit I may go to The Ajax Discount Men's Store, but if I am going to meet the Pope (and not Saint Peter), I'll go to Brooks Brothers!