Going for a 2nd Opinion

[r9c]

Hi,as i have posted here several months back,where i had this palpitations,lightheaded which can occur through out the day and slowly subsides while lying down.I had echo last september 2009 and followed by ecg stresstest and a 24 hour holter which i dint felt any symptoms and of course the result of the holter came back normal but a heart rate of 150 sinus tachycardia and so the cardiologist write me off saying it could be anxiety but looks like he wasnt very sure why i was still feeling lightheaded most of the time.Done visited Endocrinologist which i think look back at the blood result of the thyroid which was repeated twice i guess but i think the 1st one shows the thyroid was a bit higher but then the endo said it was normal,and he was not concerned about it,but wat suprised me was how could he said that the result were a bit off normal range but normal? Last May done a Tilt table test which lasted an hour and in the 30th mins of the test felt so lightheaded..but BP remains normal but heart rate increases from 90s to 130s and yet cardiologist said its all sinus rhythm and so he said its anxiety.I am awared of anxiety can cause this symptoms but i think i am not anxious through out the day and yet i felt lightheaded daily and sometimes a sudden palpitations and a slight chest discomfort and when mentioned to doctors and cardiologist and they said its not heart realted cause stress test were normal and i am quiet a slim guy and no hi cholestrol or hypertension.

I have toughts of going to see the GP tommorow as i felt my lightheaded worsens everytime i stand up or walk around in the shopping complex and i found it very hard to believe its anxiety symptoms.Could it be some POTS ? or drop in BP while standing? and of course i just felt my body have adjusted to this BP drops,and i felt like its a slow process and gradually drops in BP while standing or walking..if it were a sudden drop in BP i think black out might be the outcome.Should i get a full copy of all those bloodtest and cardiac test and seek for a 2nd opinion or just stick with my current cardiologist diagnosed of anxiety? or request for another 24 hour holter?

[Mom2four85]

that's how dr's are when they aren't familiar with ANS problems - look on those links I gave you and see if you can find a dr near you that may be able to help; if not make a post and see if anyone can recommend someone in your area

it may take some work & searching, but once you find the right dr hopefully they'll be able to help with the right treatment

I still have a ton of unanswered questions about my TTT & testing since none of the things they've had me do or meds have helped in the past 14 months or so

[r9c]

Hi,yea i guess i will request a full copy of all the test i have done.Thats wat i have been told too by others who suffered the same thing that,sometimes even the specialist,cardiologist could not see this as POTS or so,most of the time they would have a listen to ur heart,run an ECG and if its normal sinus rhythm or sinus tachy,they would just said its anxiety.
I am also tired of going from one doctors to another,ENTs to Endo to neurologist and cardiologist,most of the time felt like being pass to another specialist,sigh.Sometimes i actually dont know wat to tell them when i met the doctors,as they keep saying ecg is fine,so is blood and ur just anxious.And also because my tilt table test dint not show BP drops through out the test,the cardiologist was quick to say its anxiety even though heart rate 90s suddenly race to 130s.

[Mom2four85]

I would get a copy of all of my tests regardless if you go to another doctor, it's always good to have them.  

Just reading over what you said - could be POTS 90-130 can be a definition of it but it could be other ANS related stuff also.  You have symptoms of POTS patients, have you went to the dysautonomia forum and read there? Alot of us have mixed disorders and seem to cross over into other disorders/diseases.

I was told my problems were stress/anxiety related for years and that wasn't the case - that's the "I don't know" catchall cop out dr's use when they don't have a clue.

I would take my test results and a symptom log and try to find a doctor who deals in or has knowledge about autonomic dysfunction - in the DYS forum there's a list as well as on Dinet. org (D I N E T . O R G) which can take many years for some to get a proper diagnosis - for me I fainted since age 9 but it took a dr until age 42 to take my fainting seriously.