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Narcolepsy & Tachycardia
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Narcolepsy & Tachycardia

Hi,
I am a 28 yr old female, I had an ablation for AVNRT about 5 years ago and continue to have symptoms.  My heart rate is usually around 140 and my blood pressure is usually 150/100.  I take cardizem and bystolic but have not had any relief.  My holter showed that I have episodes of a junctional rhythm that produce symptoms.  I was hospitalized for 5 days not too long ago and my heart rate was sinus tach. at about 140-150.  I also have narcolepsy and need to take stimulants to stay awake, but they make my heart unbearable.  I have narcolepsy with cataplexy and it seems that any increase in stimulants causes more cataplexy which makes my neurologist think its centrally mediated.  I dont want to jump into another ablation until its all figured out.  Any ideas?
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Sorry to read of your difficulties, and your calm post speaks highly of your strength and attitude.  Keep those going, they are your best hope of cures.  

Has you cardiologist/EP given you any estimates of what may be achieved with another ablation.  I read on this community many stories of multiple ablations and many times this has resulted in cures or at least vast improvements.  

From what I know you do need to get your HR and BP under control.  I know of nothing besides beta blockers, and for me they only help, getting my AFib driven HR down to the 80s at rest.

I hope you get some helpful posts here, and that you doctor(s) can come up with some help.
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1434905_tn?1283648703
Have them look  into POTS
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