One off event?

Hi, I am new here. Stumble into this forum, was glad that I found it. I am not new to abnormal heart rhythms, had it since 2007. Was diagnosed with PVCs and later MVP. The number of beats get from bad to worse. Did a Holter recently. Waiting to see cardiologist in Jan.

I noticed that there are seasons to my PVCs. It gets quite bad during June and Dec. I don't really know why.
Everything was tolerable until November 28, where I had an episode. I also don't know what I experienced. It started with a cramp on my left hand. Before long, I started to feel this whoosh of numb feeling rushing up to my head. Before I knew it, I had numbness in my throat and my lips. Blood drained from my face. My husband commented that my face was as pale as a dead person. I felt my pulse. It got so bad, the PVCs came in consecutive beats. But interestingly I didnt have any fainting spell. It got better after 15 minutes and my BP was back to normal.

But from that day on, my chest was so painful. Sometimes, the pain spreads, sometimes it stays localised at the lower left of the heart where I think the PVCs originate. Doctor said it was the inflammation of the MSK system not the heart. But I was not so sure.

Then the following week, I had another episode. This time it happened at about 4am. I was up doing my usual toilet business. Nothing out of the blue. Went to bed, face down. As I was doing so, I heard the rhythm of my heart. I was puzzled that the beats were fast and came one after another. thump thump thump. I got up, took my calcium channel medicine, took a watch and started counting. 120 Bpm. (added with PVCs as usual)

I taught myself to calm down, rest on the sofa since waking in the middle of the night due to PVCs is not something new to me. But I just couldnt get the heart to slow down. Eventually on my way to ER, it did come down. I chose to return home. I knew there was nothing the ER doctor could do for me.

My cardiologist dismissed these incidents as one off. I really hope that it is indeed one offs and not that my heart has somehow gone wrong. Currently I am on beta blocker. My cardiologist took me off calcium channel medicine.

And the PVCs still continue. Alot. Lost count, to the point that I cannot cope again. Interestingly I also took my BP everyday, and found that when I am having normal BPs (110) the frequency of PVCs tend to be high. When the BP is low (90), it reduces significantly.

Stress also caused the numbers to go up. As also my gastric problems. I am currently on omeprazole to curb the acidity because I suffer from the pain almost everyday. The constant pain in the stomach and chest area has been a part of me since the day I started having this PVCs. I tried CQ 10, tried Magnesium, not much of a use. For a while, I stopped coffee too. PVCs didnt really go away, instead frequency increases as I grow older. I am now 31.

I heard eating ginseng will also increase the frequency of the skipped beats.

My GP said that it may be due to my nerve system. I read a book about MVP syndrome. It is not really Mitral Valve Prolapse, a heart problem but rather a nerve problem that causes all these symptoms.
Currently on Vit B12 to boost my nerves system a bit. Hope it helps.

The more I write, the more depressed it looks. Did consider ablation. But after reading so many bad encounters here made me reconsider. Maybe it is better to just live with it.

B.

    

[michellepetkus]

The pvcs are of no consequence but the rapid heart beat may be.  If your holter comes back clean except for isolated pvcs I would definitely go back and ask for an event monitor, one that you can wear for a month to try and catch the odd episodes.  It may all be related to MVP but I am not that familiar with the condition so hopefully someone with it can offer some advice.  I would think getting an echo would help determine if the MVP is causing this issue.  As for what causes pvcs I really don't think the medical community knows for certain.  Stress is a definite trigger.  For me stomach issues is a big trigger.  Adrenaline from a fast paced life or exercise can trigger them as well as can electrolyte imbalances.  That said, if you are feeling new or worsening symptoms it is always best to get them checked out by a cardiologist which it sounds like you are doing.  Good luck and I hope you feel better soon.

[michellepetkus]

The pvcs are of no consequence but the rapid heart beat may be.  If your holter comes back clean except for isolated pvcs I would definitely go back and ask for an event monitor, one that you can wear for a month to try and catch the odd episodes.  It may all be related to MVP but I am not that familiar with the condition so hopefully someone with it can offer some advice.  I would think getting an echo would help determine if the MVP is causing this issue.  As for what causes pvcs I really don't think the medical community knows for certain.  Stress is a definite trigger.  For me stomach issues is a big trigger.  Adrenaline from a fast paced life or exercise can trigger them as well as can electrolyte imbalances.  That said, if you are feeling new or worsening symptoms it is always best to get them checked out by a cardiologist which it sounds like you are doing.  Good luck and I hope you feel better soon.

[beehwalow]

Thank you so much. It is so nice to hear that what I am feeling is not abnormal.

[itdood]

This could be something called "dysautonomia", which is a problem with your central nervous system, a.k.a. autonomic nervous system.  It controls a bunch of things from a part of your brain that is not connected to the conscious part of your brain, so you have no perception of its activity.  It does many things, like control heart rate, digestion, bowel movements, flight or fight responses, endocrine systems (like adrenaline)....  When it's not working right people will notice their body not behaving properly.  there are many diseases of the CNS, such as infections, autoimmune issues, and genetic defects.  It's very hard to diagnose and treat.

[beehwalow]

Do you know of anyone that has such problem of dysautonomia?