HEART RHYTHM COMMUNITY
Pacemaker setttings for NCS?

Pacemaker setttings for NCS?

I am a 27 year old female and was diagnosed with neurocardiogenic syncope when I was 14.  I am 3 weeks, 3 days post-op for a dual-chamber pacemaker (Medtronic, Adapta, ADDR01 model).

Currently, I am not sleeping well at all.  My pacemaker will go off many times during the night and wake me up.  The pacemaker wakes me up because I am feeling a flicking or thumping sensation on the inside of my chest, near my heart.  My doctor doesn't understand what this is because my latest settings are a lower threshold of 40 bpm and if there is a rated drop of more than 25 bpm the pacemaker will increase my heart rate to 80 bpm for a two minute span.  He says that I shouldn't be able to feel anything.

I am going in tomorrow for one last adjustment.  After this, the doctor is talking more tests and possibly turning off the pacemaker and hooking me up to a holter monitor for an extended period to get an idea of what is happening (this makes me very nervous).

Any thoughts/suggestions?  Also, has anyone else ever felt the flicking or thumping sensation that I'm talking about?
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Avatar_m_tn
I am only being paced via a single lead to my right ventricle (my AV node was ablated a year ago yesterday (4/26) so I am not sanguine about all the other aspects of your condition but I do know that some folks like mysolf (and apparently your self) can feel it when our hearts are acting oddly.

Several years ago - before RF ablation while a full blown maze procedure was still the gold standard - I went to consult with an EP (not the one I have now, thankfully).  This guy said I was not bad enough to warrant the surgery (before RF ablation they had to crack your chest and open the heart to do the "maze" procedure).  He also said I could not possibly be aware of when my heart was acting up.  Now, I had just a few weeks earlier spent over a hour hooked up to a monitor with my heart doing odd things and with access to someone who could answer my questions about what was showing on the screen and could correlate it to what I felt.  I knew what different behaviors felt like.  When the EP said what he said I told him I was throwing pretty consistent PACs (premature atrial contractions) at that point.  He declaired that I "could not POSSIBLY know that".  I pulled out a $20 bill and told him I DID know what I was talking about.  He started to waffle but I kept telling him to "put up or shut up".  His nurse was trying not to laugh but was looking VERY interested.  Finally he agreed to the bet.  They hooked me up and ran a quick strip.  Lo and behold!  I was throwing pretty consistent PACs.  I took my wife to dinner at Denny's with the EP's 20.  
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