I have a newborn who was born with SVT, we knew about it a couple of months before she was born. she has been in the hospital since she was born and they are trying different medications, but nothing seems to be working. Her heart rate jumps to 280 to 300 and stay up for 20 minutes then gets medicine administered to get it down, they have tried Dijoxin, Inderol, and two other ones I can't even come close to spelling. Anyone else have experience with this? We are so worried and don't even know what to ask the doctors.
I'm so sorry you're facing this. At some point they may recommend an ablation but I've never heard of it being done in an infant. In the meantime, they will keep trying to find just the right medicine to manage these tachy times for her.
From what I've been told when I was an infant I had what they thought were seizures. I would shake and turn somewhat gray, pass out. Years later they realized it was actually my heart. Especially when I was old enough to explain how my heart would go real fast and hard sometimes when I was in school (I was about 7 at the time). Now I'm 55. Way back in the stone age (LOL) they didn't have the medications and special treatment options they do now but I survived. Don't give up. I'm sure the doctors are doing all they can. You have a pediatric cardiologist working with you?
hi my daughter was also born with svt, which was not picked up until she was 13 days old, this was the most frightening time of my life, her heart would jump from normal to 300 too, she was also adminitsered the emergancy medication, which worked quickly and effectivly, she has been on a medication called flecaninde since which she responds well to,she is now 7 months old and doing extremely well, she has only had one breakthrough episode since being on this medication, you are the only person i have come across that has had a baby also born with this condition,
I was born with SVT. I was on Dijoxin for a while but either it didn't work or I had an adverse reaction. I had an ablation 16 years ago today and have had no issues whatsoever since then. Just wanted you to know that it's something that you can get past. It will be scary, but it's something that can be beaten.
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