Sinus tachychardia and EDS

Dear Doctor,
I was diagnosed with EDS type III at 18 and when  I became 20, occasional chest pains and extremely consistent  tachychardia was noted.   I was diagnosed with Ventricular Tachychardia from the first cardiologist and Sinus Tachychardia from the second cardiologist.  Both cardiologist suggested that  I have an unconditioned heart and suggested that  I train it with an exercise program, but then yet when I asked them if they are familiar with EDS they both responded negatively.  When  I seat in a chair, my pulse varies from 60 to 80 bpm, with an average of 70bpm.  Then, when I get up and stand, it shoots up to a 100+bpm and stays there around 97bpm or more.  When  I walk in the house to go from room to room, it goes up to 105-110bpm and when  I walk outside goes up to 125+bpm.  When I ascend stairs, it gets up to 160bpm and if I slightly/barely jog for 100yards it goes up to 170bpm in no time. What has surprised the last doctor is that immediately as I sit the pulse rate comes back to 70bpm and  I am not huffing or puffing. He cannot explain this!  During my stress test, I arrived to 180 bpm in 9 minutes and the heart started skipping beats.  He stopped the machine, telling me that  I should have attained 180bpm in 13 minutes!  Then yet, my heart feels like is going to come out of my chest and I am afraid that something else is happening.  All echo and MRI with contrast showed no abnormalities!
Please, a cardiologist with familiarity in EDS type III, explain to me what  I am up against.   I am definitely concerned.  I thank you in advance for reading me.

[Jerry_NJ]

We here on this Community are in general not doctors, or even medically trained.  Rather we are people who collectively have a vast experience with heart rhythm abnormalities.  In many ways the sharing of this information if helpful to the participant in deciding what needs to be discussed further with their doctor.  

It is possible to get a medical/doctor response on the associated MedHelp Forums, see Forums at the top of this page.

While I have undergone several stress tests including nuclear stress tests I don't recall ever being told by the attending doctor that I attained any specific heart rate in a time period different than they expected.  For example, your note of 180 bpm in13 minutes. 180 is above the target rate for someone my age, but I can say when my target rate, in recent past years, was 150 bpm it didn't take me more than about 5 minutes to get there when I was jogging/running.