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221122 tn?1323011265

They just don't understand....my rant.

Sorry to come and rant but I cannot talk about this to anyone I know.  Isn't that strange? I am much more comfortable bearing my soul to people I've never met!  Here I go:

About 2 months ago my PVCs PACs and probably a few other things have returned.  Nothing has changed with what I take or eat...weight...nothing.  The only thing is stress, or possible hormone problems.  Now, these things, after having them for 23 years, are making me feel like I'm going to die.  I have NEVER felt like this to this level.  Every time I try to relax, left side, right side, (cannot scrunch up) or any other position, they come and do not feel like PVCs anymore.  My pulse feels fluttery every few beats.  Then I have normal beats for  minute or two...then the odd stuff starts for a few.  It is very odd.  So, I made the mistake of telling my husband that these feel different, more like I'm going to die.  He told me to bear down.  Listen, I told him this a long time ago when he was having a very fast heart rate.  Now and then he gets a PVC or two and bears down and they disappear.  Yes, of course...when you are only getting 3 in six months!  It was going to go away anyway!  But of course that is the answer for him.  So I tell him it doesn't work for me.....want to hear the next suggestion?
He told me to use my mind....mind over matter.  I can stop them if I want to......*hears crickets chirp*  Okay, so I'll never say anything again.  I swear I'll let myself die before I do.  

But you guys will hear it...:)
15 Responses
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177337 tn?1310059899
Hey Rita,
I just had to jump in.  My pvc's increased 3 months ago.  I was happily living my life with the normal 10 or so flutters a day and then woke up one morning and noticed those feelings in my upper stomach and thought oh no.....they are back.  These are different for me too because I don't feel the early beat in my chest.  I feel the pause in my stomach.  Like I'm going down an elevator.  I hate them.  They have been with me every day for three months ALL DAY.  They make  me frightened, tired, irritable, and depressed.
I just had my yearly echo 2 weeks ago.  The tech said it was normal but of course my doctor hasn't even called me.  I'm sure that is a good sign but dammit I pay for this service and a reassuring phone call would be nice.
I was having pvc's the entire time I was having the echo.  I had to lie on my left side and that makes them really act up.  
Anyway, I also say something to my husband and his comment is  "should we go to the ER"?.   WHAT....that freaks me out even more.  I need him to remind me that I'm okay and he wants to take me to the ER.  lol.....just thought I would let you know that I am in the exact same place at the moment.  
I did up my atenolol to 1/2 of a 25 mg at night and 1/4 in the am.  I'm now taking 3/4 of a 25mg.  I'm wondering if my body was too used to the 1/4 of the atenolol that I was taking.
This has seemed to help, PLUS I started that slow mag at the same time.  Something is helping as they have decreased over the last 3 days.  
I just wish we all lived close by so that we could feel each others pulse when they were acting up.  I would feel much better if I could feel someone else's pulse when they were having pvcs.  carzy I know, but feeling the same thing happening to someone else would be reassuring.
Jodie
Helpful - 0
221122 tn?1323011265
Thanks for all your posts.  It helps to know I'm not alone, however, ihatepalps, we seem to be leading parallel heart lives!  lol  Mine started almost exactly when yours did......we should compare diaries!  lol
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Avatar universal
Hi, Rita...its me..again! Ihatepalps2..... Hope you found my post alllll the way down here at the bottom...you got aLOT of answers on this one. Of course, a subject we all love to hate... I am right with you dear. YOU helped ME the other day, remember?? With your response to my frantic post?? I was at the end of my rope that day. well, im still there. Im right with you---I too, in fact, I keep a journal on here, along with my "tracker" and I just journaled the other day, yesterday I think, that mine werent like the usual ones. That they were fluttery...lighter....different. The same as you are describing!!! I too, have been a bit dizzy. Mine has been for over 2 weeks now, before Christmas they started up in a bad way, and its been a part of every single day since.
My husband does NOT understand..and he should--hes had a heart attack in 09...and this year just in July diagnosed with AFIB AND Aflutter...so he should really understand rhythm issues...but he just doesnt want to heart about mine. I cant really talk to anyone about them...theyve heard me for years...and probably think its all in my head. Its NOT, is it?? Its in our darn hearts!!!!! I come here, when I need to talk. Im glad you do too.
Helpful - 0
Avatar universal
My PVCs, which used to be about 8500 a day, have decreased for a few months now (and I have no idea why.) However, I'm finding that my heartbeat is stronger  and more noticeable now after slight exertion. It's not racing; often my pulse is 65 to 105 depending upon what I'm doing. But the heart pounds so much that I can feel it in my neck, top of my head, and can hear it in my right hear, which is often plugged (that's another story...I have a constant, low grade sinus problem above my eye,  which can't be cured by antibiotics.)

Anyway, the pounding isn't constant, but I often have it for an hour or two a day, and then I don't feel it anymore unless I feel for my pulse in my wrist.  I've also noticed that my heart pounds after less exertion than it did before. Just climbing the stairs and coming back down, or moving fast around the kitchen to make a meal, can cause the strong pounding. After I sit for awhile, it eventually goes away.

I was diagnosed with PVCs 1 1/2 years ago after wearing a Holter monitor for two days. I'd had a normal treadmill stress test just two months before that...very strange. Not a single PVC during the treadmill test, and a few months later I had a bunch of them! I then had a normal echocardiogram done by a cardiologist who specializes in arrhythmia. I haven't seen him since because he said my heart was normal, and I'm wondering whether this heart pounding after a little exertion means I should see him again or whether I should just ignore it.

My ear/nose/throat/ doctor thinks I may have a plugged eustacian tube in my right ear that causes me to hear the heartbeat at times. I'm seeing him next week, and may need further tests for my ear. But I also feel the pounding in my neck and top of my head at times.  Maybe this is all normal for some people, and I'm being concerned about nothing. My family doctor said that his heart pounds after exercise too.  (Of course, he's 15 years younger and he's into biking.  I'm 68 and don't exercise as much as he does.)  I'd like to know what some of you think.
Helpful - 0
1464004 tn?1384135733
Hi Rita, I too started to gt those fluttery beats about 6 months ago at first they'd go back to normal or back to the regular PVC/PAC feeling but then they started to go directly into PSVT.  I had 3 Adenosine pushes over the summer- I haven't gone back into PSVT since the last push in August ( Thank the Gods ) and my doc chalks it up to finally getting my synthroid regulated. Maybe it is a hormone thing with you too, I don't know how old you are but as I'm sure you've heard me complain before I think between not having a thyroid and going through menopause I have been a real mess over this last year. No one gets it unless they have gone through it for 20 plus years like we have. My family jokes about it and imitates me constantly taking my pulse...finally on one of my trips to the ER in PSVT while I cried the entire time getting my Adenosine my husband was a litlle more sympathetic. Mind over matter? I don't think so-if it was that easy would any of us even be on this forum? Now its my turn to thank you for letting me rant.  
Helpful - 0
1182699 tn?1297574784
"I have been getting dizzy the past few days, too.  No, maybe they won't kill me but what if I'm driving and I get dizzy?  Will THAT kill me or others?"  

That is EXACTLY how I feel...and now I get dizzy anytime I get in a car alone...these crazy beats have definitely increased my panic and anxiety.  Absolutely no one I am close to understands...I know my husband is sick of listening to me...although he is the sweetest man and no other would have stayed married to me for 20 years:) My daughters are always saying..."Mom, you're fine!" and I'm over here about to faint! This really has decreased my quality of life and made me someone I really don't like...I now feel fragile and I used to be so strong and independent...I'm waiting on that miracle cure!
Helpful - 0
221122 tn?1323011265
Oh how I love this forum.  I hear you guys.  I have been one of the people here telling everyone that you can live with them...look at me....I've done it for 34 years and I am still alive! I won't let them get me down....um...yeah.

Then they do something like this.  Fluttery pulse is the only way I can describe when I am feeling the palps and my pulse at the same time and it doesn't feel like a PVC but a few quick, thready beats.  I have been getting dizzy the past few days, too.  No, maybe they won't kill me but what if I'm driving and I get dizzy?  Will THAT kill me or others?  HAH!  Got 'em!  lol

I have been a nurse for 5 years and take care of others while my body is giving me problems.  Three days ago I had a patient who had an event monitor in her room ( I work per diem at a high end LTC and rehab). Her HR was 40 per her pulse.  Then it went to 120.  We transmitted and they sent back that we should send her to the ER because she was in slow V-tach.  We felt a pulse of 40 when her pulse was really 80 d/t the "early" beats.  I felt like they were kind of talking down to me.  Anyway, her daughter told me she has an ICD and defibrillator because she started getting PVCs, then V-tach (slow??) and they were wondering if she should just shut everything off and let it be over....huh?  I think this stirred me up.  Our minds are incredible, aren't they?  I know better, but this attack is beating me down.  I hope it doesn't last long.
Helpful - 0
967168 tn?1477584489
you know, it's the same thing with me - I do have dangerous arrhythmia's and other things going on and I STILL get treated the same and told some of the same things...

dr's are the worst and still don't think there's any reason why I can't run/walk like I was before - ummm hello? I still malignant heart arrhythmia's and tachycardia, irregular heartbeats or I wouldn't have this darn titanium box in my chest and I have diastolic dysfunction and heart damage duh but I get well? why is that stopping you? [sigh] I just want to yell at them...

my family - they KNOW I have this stuff wrong, I've explained it and then they expect me to "just get over it all" and be cured! miraculous divine intervention or something I guess :P

I will be leaning on the counter, breathing like I ran a 26k; trying not to pass out since I just walked from the other room; my feet are swelled up like balloons; my head hurts from the blood rush and bp spike...I'm trying not to let them see how much pain I'm in and someone asks "what's wrong with you"? that gets me the most lol...one min I may bite their heads off, the next I'm running, ok crawling slowly to the bathroom to go cry because NO ONE understands what I'm going through...

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Avatar universal
One reason why your spouse is not listening is that in their reality, you are going to die and it is fear not understanding. Sit down and TRY to explain that you need their help and get another doc!
I had a stent placement and I kept having chest pains making me feel that I was going to die. My primary was giving me meds that interfered with my cardiologist rx and was too stubborn to admitt that he was wrong. I listened to my Cardiologist and the pains sudsided. My wife listens but I know that the fear is there so WE have to also listen to them and ease their fears.
GOOD LUCK
Helpful - 0
Avatar universal
r9c
Hi,i do understand ur situations,these PVC,PAC,palpitations are horrible thing to live with,as i can say from my experience,doctors at A&E,Cardiologist who never experience this thing will never know how it feels like when you explained to them,at some appointments with my cardiologist last year,when i complained of palpitations and dizziness,he would have just look over my cardiac test and said look " your echo,ecg stress test and 24hr holter are normal,arent you happy? of course everyone would be glad to know that their cardiac testing came out normal..but then if u continue to have those pvc,stuff and dizziness,its very hard to move on and accept that is going not to be harmful as i am sure every human would have worried if anything funny that the heart beats or act up,cause its most important organ pump in the human.The only people that would have understand this are people from this forum i guess :)
Helpful - 0
187666 tn?1331173345
This may or may not help but over the years you've probably noticed that the arrhythmias are not predictable. They do change from day to day, week to week, month to month. It's such a treat when you have a quiet heart day. But then there are days when the heart just won't shut up. However, it seems that those days aren't any more dangerous to our health than the quiet days. After 23 years for you and over 50 years of heart nonsense for me, I think we're going to be OK.
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1124887 tn?1313754891
Hi! :)

First, what is a fluttery pulse? I sometimes misunderstand the English language, is that like bam-bam-bambambambambam-bam-bam?

You may want to monitor the new events. I guess you can do EKG tests yourself, and interpret them too. We're lucky to have a health care professional as a community leader.

If it turns out to be benign (short runs of supraventricular tachycardia or something similar) I guess you have two options, and I hate to mention them, accept them or use stronger medications like antiarrhythmics.

PVCs and PACs are certainly strange phenomena. Look at me, I've told people on at least 600 posts during my time here that PVCs and PACs are completely benign, nothing to be afraid of, causes are this and that, I know every mechanism of premature beats, automaticity, early afterdepolarization, delayed afterdepolarization, reentry, calcium/potassium disturbances, you name it. I know every arrhythmia in the book, from a PAC to Torsades de pointes, and I know what's dangerous and not.

Still I get a bad day if I feel more than one premature beat in a short time!!!!!

They are benign. They can't hurt us (unless we have R on T PVCs or P on (atrial repolarization wave) that can cause A-fib). Still we worry. Why?

Believe me, I've asked myself that question a lot of times. A doctor once told me that the highest risk with premature beats at my age is that people are killing themselves because they can't live with them. I guess that happens (not in my case of course). Why? They are not especially painful.

I guess the problem is that we all are afraid of that something is wrong (yes, that's why I chose this name long time ago:) with our heart.

Stress is a strange thing. Sometimes it feels like there is a particular stress hormone that only triggers premature beats. I can feel stressed for weeks and not have them. Then I begin to worry about them, and BAM, there they are.

My personal theory is that it's somehow related to the sympaticus/vagus nerve affection on the sinus node, vs general adrenaline levels in the blood. If you, say, have a heart rate of 60 because you have high vagal stimulation, but stress levels are still high, heart cells are irritable and more likely to fire of an ectopic beat. I think it makes sense. After exercise, you can have several ectopics because the vagus nerve will try to slow down your heart rate, while adrenaline has a longer half-time and will sustain longer. I guess this is why most of the ectopics appear when you go to bed, too. It makes sense, but I really don't know. What do you think?
Helpful - 0
995271 tn?1463924259
Hi RNRita,

I hear ya, I don't vent to my wife anymore about them, same reason.    She distanced herself from the issue.  I can understand.

Men almost always react to hearing about a problem by wanting to solve it (which I think I'm doing right now!!!).  It's always my gut instinct with my wife.  She corrects me and reminds me to just listen and be supportive.

Have you ever heard the story about my grandmother I always tell?  She had nasty palps too.  Always in the ER.  That's what I remember as a kid.  I didn't know exactly what was going on at the time.  Heart issues were so generic back then.  I had no idea about how many different things can go wrong.  When I got older and started getting PVCs I looked back on her experience and the light bulb went on as to what she was going through.  I guess I inherited this condition from her.   She recently died.  She was 95 and it wasn't her heart that got her.

I hope your setback doesn't last long.  I know these things come and go and morph, change is constant.
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221122 tn?1323011265
Thanks for the answer.  I actually have had these for 23 + years and am quite an expert, as I started them before the web when my loony doc told me that my "ticker was touchy".  I understand mostly what is going on, but they have morphed lately.  I know I gotta get back to my cardio as I've not seen him for about 3 years.

It is the other people in my life I'm venting about.  The ones that you just want to listen to you sometimes when things are particularly scary and you get dumb answers.  Just venting.  Thanks.
Helpful - 0
Avatar universal
No, Rita, in my experience it is not mind over matter and you cannot 'stop them if you want to.'  You cannot.  From your nursing courses, you probably remember stuff about cell membrane potentials and sodium/potassium pumps.  That's the basis of the phenomenon of contractility, though the reasons for the alteration of the electrical threshold in certain heart cells are not understood, and almost certainly vary from person to person.

It may be simply a function of being older than 17; in other words, a function of age in some individuals.  Things don't work as perfectly as they did when we were growing kids.  However, even beating erratically, the heart is a very good pump, and along with the nervous system (in most cases), is perfectly capable of delivering all the oxygen your body needs.

The issue is this:  Can you perform your normal daily activities?  Can you dress yourself, go shopping, go up and down stairs, even run a bit without turning blue, getting nauseous, breaking out literally in a drenching cold sweat, or feeling as though you must lie down because you are so physically sick and short of breath that you cannot take another step?

If you have had a bunch of heart tests and come up clean, you might want to consider that your problem is hypersensitivity to the small 'noises' your otherwise nicely-functioning body is producing.  This is the field where shrinks excel.  I like my shrink.  He's a nice guy and he helps me with what could become a 'cardiac neurosis' (which is worth googling).
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