Heart Rhythm Community
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About This Community:

This patient support community is for discussions relating to heart rhythm issues, arrhythmia, irregular heartbeat, implanted defibrillators, pacemakers, and tachycardia.

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WELCOME<img src='/RoR/images/blank.png' class='icon_img_ww push_pin_icon'>

2964110?1211981663
WELCOME TO THE HEART RHYTHM FORUM!

Were you recently diagnosed with a heart rhythm disorder?  Would you like more information on the heart’s electrical system?  Are you feeling overwhelmed, frightened and/or confused?  Are you scheduled for EP tests, procedures, and or surgery?  Is your arrhythmia medication giving you trouble?  If you answered “yes” to any of these questions, you are in the right place!
  
The Heart Rhythm forum is comprised of a group of people who share an interest in learning more about arrhythmias.  The forum covers an array of topics including:  Afib, Aflutter, PVCs, PACs, SVT, WPW, palpitations, pacemakers, ICDs, procedures, tests, medications, post procedural/surgical expectations, and much more.  If it is related to your heart’s rhythm, chances are we can help.
  
Some of us have been living with arrhythmias for years while others are new to the world of electrophysiology.  Regardless of why YOU are here, welcome!  Here are a few suggestions for making the most of the forum.

1)  Check out the "Health Pages."  The link can be found in the upper right hand corner of your screen.  The “Health Pages” address topics relevant to cardiology.  Among the pages is a great resource for common cardiology acronyms.

2)  Please join the community.  Once you have had a chance to look around, why not create a profile and tell us a little about yourself?  Your profile can be as simple or as complex as you like.  In any event, you will meet people from around the globe!  You will have the opportunity to learn and share experiences with members who share your concerns.

3)  Consider posting to a current discussion, or try staring one of your own.  Don’t worry - you’ll get the hang of it very quickly.  You’ll find that you will want to come back often to check up on your new friends.  If you’ve got something on your mind, please don’t be shy.  There are no dumb questions and we are all here to learn.**

4)  Get acquainted with other members.  There are several ways to “Add a friend” but one of the easiest is to scroll over the member’s name and click on “Add a friend”.

5)  Consider keeping a journal.  Your journal can be private, public, or available only to those people you have added as a friend.  Journals are a great way to share your story, frustrations, experiences, history, etc.  You will probably find there are others who can relate to your story.

6)  Want to speak privately to another member?  Send a private message (PM) by scrolling over the member’s name and clicking on “Send Message”.

7)  Only have a minute and want to welcome a member, or send good luck wishes?  Scroll over the member’s name and click on “send a note.”  Unlike PMs, everyone can view “Notes”.

8)  Once you’ve created a profile, click on “My MedHelp” (indicated by a little red heart at the top of your screen) and check out the many great features and setting options.

9) Lastly, we would like to point you to the TRACKERS!!  There are a number of trackers available to our members, but we would especially like to point out the ‘Cholesterol, Blood Pressure and Heart Rhythm trackers.  You can add them to your profile by clicking on "My MedHelp" (top) and then go to the Tracker Widget -- At the bottom of the Tracker Panel click on "Add Tracker" which will take you to the tracker page, where you can select the BP, Cholesterol and/or Heart Rhythm tracker.  You can begin using your trackers today!  Keeping track of your cholesterol and blood pressure are great ways to do your part to manage your heart health!!  The rhythm tracker is an excellent tool for you to document  symptoms, frequency, treatments and procedures relevant to your heart rhythm!

**Please read the Terms of Use at the bottom of your screen.  There are a few general posting guidelines that are for the benefit of all community members.  
  Please do not hijack another member’s thread.  If your comments are relevant with the current discussion, post away.  If you have a new topic of interest, please begin a new post.

We are so glad you found us!  Please don't forget to join our community!  We would love to have you!  Pull up a chair, get comfortable and get ready to meet a great bunch of people!  

If you are already a member, won't you please take a minute to welcome our new members as well as those who are lurking.  Would you mind sharing your story to let others know how the forums have helped you.

Your Community Leaders

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66 Comments Post a Comment
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431362_tn?1211654781
Welcome!!
I joined this forum earlier this year.  I had started with SVT and was VERY VERY scared.  I wanted to contact people who were suffering with the same and to learn as much as I could about the condition from a reputable site.  My Doctors kept telling me that what i had wasn't life threatening but a nuisance.  I can tell you it didn't feel like a nuisance to me, much much worse and wanted to hear other peoples experience of it.
Once i'd been diagnosed with AVNRT and was scheduled for an ablation this site was great to learn about others ablations, their success and what to expect from the procedure.  I have now had my ablation (less than a week ago) and have told it was 99% successfull.  I am still here as I want to be able to share my experience with others i have gained a lot of knowledge from this forum and want to repay anyway I can by helping others!!
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255722_tn?1333378910
Welcome!!!

You have found a WONDERFUL site if you are looking for support.  Heart rhythm issues are scary and sometimes misunderstood by the general public and the medical communication alike.  This site allows you to vent your frustrations, your fears, and your concerns (not the same as fear) with people who are much like yourself.  It is a safe forum to discuss that which your closest companion may not understand.

So come along.  Read the existing posts, and don't be afraid to join the group.  This site is EXTREMELY well monitored and friendly.
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255722_tn?1333378910
Sorry all.  I had a typo above.  It was supposed to read, "...and the medical community alike."  

Guess I should proof before I post :-)
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Avatar_n_tn
Thanx guys so much for those comforting words. Any little thing like that helps me to realize that it may seem scary, but I guess it'll work out. thanx!!
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Avatar_f_tn
Oh my goodness I was diagnosed with P.S.V.T, and its scarey, I dont wish this happen to anyone, but im sure glad im not the only person...If anyone wants to share there experiences id love to hear them.
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Avatar_n_tn
I new to the heart site also. I been battling palps and rapid heart for over 5 years. I tried toprol but had side effects and gastroparesis wont let me try other meds so I am not taking anything now. I go to ep tomorrow. I had a bad case of rapid heart yesterday while watchimg tv, it came out of nowhere. It was very fast and lasted 7 minutes. Today I feel very tired and weak,napping frequently. My mother got scared because she felt the rapid beat and see it through my shirt. Last week my cardio said it maybe+afib+but+won't+know+until+ep+study+done.+Does+this+sound+like+afib+or+rapid+afib?+I+had+some+last+year+that+was+bad+that+I+almost+hit+a+pole+because+I+got+dizzy.+I+do+have+history+of+heart+surgery+and+had+asd+repaired+22+years+ago+and+I+am+32+years+old.+Why+do+I+feel+like+a+truck+ran+me+over?+Can+they+tell+me+that+I+can't+drive+with+2+near+incident+of+accident?+Cops+were+involve+with+one+last+week.
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Avatar_f_tn
Hi,  

I had  a successful ablation for SVT  this past Monday which believe it or not I had for 36 years!!  I understand totally what it feels like to deal with episodes of a very fast heart rate and trying to get it to stop.  If you have any questions or just need to talk, I'm here to listen and to help!
Betty
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Avatar_n_tn
Hello there!  I posted a thread a few hours ago, but no one has stumbled across it yet, I guess.  Could someone help me?

I am 20 years old; twice I have experience this:


This morning, while doing nothing other than picking something up, I suddenly felt my body temperature rise and started to sweat profusely.  My heart began to beat rapidly... it felt like it was about to beat right out of my chest.  There was no pain, though.  I began to feel light headed and had to sit down.  I put my head between my knees and focused on breathing.  No more than two minutes later, it all passed.  I was left sweaty and tired feeling.  When I told my mother, she checked my blood pressure and said it was normal; however, I felt fine by the time I got to her.  This also happened to me about 4 months ago.

Moments ago I felt a flutter in my chest... like my heart skipped a beat or something.  I still feel slightly uncomfortable from that... like its about to happen again.  It felt like it was getting ready to start beating rapidly like early but stopped and went back to normal within milliseconds.

Could something be wrong with my heart??
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212161_tn?1391090750
hey just got note from puppy, i used to be yellowrose but had to change my name to get in , so yellowrose  still around just new name .
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Avatar_n_tn
I have just been diagnosed with PVC's.  They happen at least a couple times a minute and my heart feels like it's worn out.  My doctor put me on Toprol and I took my first pill just recently.  I've never had this problem and I am freaking out!  I had an eating disorder some years ago and wonder if this could have attributed to this.  It's overwhelming.  Any advice???
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730363_tn?1259612790
Hello!

I am so glad I found this site and while I don't wish my malady on anyone it is comforting to know that I am not alone.
I am a 47 year old female that started experiencing palpitations and PAC's and PVC's about six months ago, although at the time I had no idea what was happening to me.
I went to my PCP and he took an ECG and refered me to a cardiologist. I did the stress test via adenosine and the stress test was abnormal as was the ECG so I was then scheduled for a heart catheter. The Dr found no blockages during the cath and said my heart looked fine outside of a congenial heart defect that I inherited from my dad but the Dr insited that this particular defect wasn't in itself harmful or related to the arrythmia's.
So after all of that I am back at square 1 with what is the cause of the arrythmia.
I have them everyday but somedays are worse as far as the severity, today is one of those "bad" days.
I have an appt. tomorrow with my OB/GYN and I plan on discussing the hormone options and having them checked as well as my thyroid.
I am currently taking a low dose of Verapamil but it doesn't seem to be making a difference at all and I am going to discuss not taking it anymore when I go back to see my cardiologist on the 20th this month since it doesn't seem to be **** anythig for me at all.
Any and all suggestions, conversations, advice, experiences are welcome.
thank you.


Frustrated and scared in the South
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739242_tn?1234221427
I was bulimic for 15 years, which caused a hiatal hernia and GERD. I believe my PVCs are directly related to both, as the palpitations are MUCH worse after eating too much. Most doctors don't know squat about bulimia, and don't understand the risks or severity of it. I've gone to many who did not know anything about any link, but the ones who do know KNOW. Please don't let a doctor tell you there is not correlation. I am certain in my case that they are one in the same. You vomit your stomach into your chest cavity, the heart is bound to respond one way or another, don't you think?
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739242_tn?1234221427
Oh, meant to say I am scheduling to have the hernia repaired. I am also six pounds lost in my quest to stabilize at a normal weight (I am 181 now, and 5 foot 6, ought to be about 140). I have a feeling that with less belly fat to push the hernia up into my heart, and with the hernia hole sealed off, the heart might settle down. If not, I am all for the ablation. I have thousands of these suckers a day, and can't see spending the rest of my life like this. It is a battle, and I intend to win.
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Avatar_n_tn
Can you get your dr. to prescribe some ativan to have on hand if the pvc's really get you down.  I had 32,000 on a 24 hr monitor - and they will drive you crazy - i'm on toprol but doesn't seem to help - taking an ativan and lying down helps more than anything when I am feeling them alot.  I am going for an ablation - scheduled feb 9 at cleveland clinic.
Say a prayer for me.  I will keep everyone informed on my progress.
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212161_tn?1391090750
Bubee said a prayer and will keep praying for you till we hear back from you God has you in his hands you will be ok.
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Avatar_n_tn
Anyway, to continue our discussion, after coming off flecanide (since it was not necessary to take anymore because of my fix, I discovered that my 16,000 pvc had increased to 32,000.  Dr. Saliba at CCF agreed to try and go after them, although he warned me that they appeared to be coming from an epicard focus and since I had an VSD repair in 1984 (open heart) I had adhesions that they were not sure they could get around - well, it was a miracle, Dr. Saliba went in a vein on the outside of my heart, then went in my heart and outside again into another vein that was right where he needed to be.  It was a miracle.  The GOD put that vein right where I would need it 65 years later for Dr. Saliba's talented hands to fix it. Veins I understand are very personal and unique, and could be anywhere, not like arteries that need to be in a certain spot.  I am in NSR - I have not had a 24 hr monitor on again - will do that in a couple weeks, but I could feel almost every one of those 32,000 I was having, and I am doing great now, just like to listen to the NSR - it is like music.  CCF is the best and so is Dr. Saliba.  If you have any questions for me I would be more than happy to answer.  These forums were such a GOD send to me when I was struggling on what to do.  Blessing, Emilyrae (Bubee)
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801302_tn?1237766722
Hi everyone.

I've been feeling exceptionally bad lately and have come online for answers, since noone has been able to really help me. I've gotten to the point where any time I have a palpitation I have to hold back the tears.

The first time it happened I was in second grade. I was playing hand ball at school when my heart started racing and my vision seemed black and spotty. It stopped after about 20 seconds and I returned to class. I never told anyone and this continued for the next 11 years of my life along with palpitations. I got to a point where I wouldn't even get in a car or an elevator because I was so worried that my heart would start racing and noone would be able to help me if I passed out.

By 20, I began talking about what was happening to me. I was seeing a therapist and a cardiologist. The cardiologist thought it was anxiety and gave metoprolol to help with the palpitations. I decided to go to another cardiologist who ran some tests and confirmed that I was not crazy and that I was experiancing an arrhythmia. Unfortunately, after wearing an event monitor for 60 days, we were never able to catch an "episode" where my heart would race ( which only happens maybe 10 times a year). He was only able to see the palpitations. From the palpitations he told me it wasn't WPW. He told me it was not life threatening and that with medication I would be fine. I'm not convinced.

I still feel like something just isn't right even with the medication. I just get so sad and frustrated that I have these symptoms but there isn't anything I can do about them.

I'm thinking about seeing a new cardiologist but I don't even know if its worth it. Was I missed diagnosed or am I over exaggeratting?

By joining this group I hope to gain insight on the different tests, procedures and diagnosis'. I also want to hear what others are feeling and going through....I want to know I'm not the only one who feels so helpless.

Anyways, Thanks for reading my story and I really look forward to hearing what everyone has to say.

Thanks!!

Savannah
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Avatar_m_tn
Hope everything works out on your medications.  I am still on atenolol and see my cardiologist in August 2009.  Take for fast heart rate.  Working out seems to help with lowering my heart rate and BP.  I just tweaked my left hamstring and hope it heals fast, as I have to work out or my HR and BP increase.  Currently, I don't have palpitations, PVC's or other heart issues, but I do have to deal with atenolol.  Can be difficult.  Best wishes.
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Avatar_n_tn
Hi, i have just joined and dont know how to ask the doctors questions.

Im a 20 year old female. Last year i went to hospital with chest pains in my left arm and chest. After a chest x-ray, ECG and blood tests a heart attack and anything else serious was ruled out. However, as i still got chest pains and my left arm felt "achey (achy)" i was sent for a echocardiogram and an MRI scan. I didn't find out what the results were exactly but got told they were normal.
At my 6 month check-up the doctor sent me for a 24-hour holter monitor test as i was still suffering the chest pains/left arm ache, although much less frequent. i also suffer from migraines and often go very light-headed and dizzy, although i have not fainted. i also suffer from nausea and fatigue. the doctor wanted to try me on beta-blockers but first thought it would be a good idea to see if my heart was beating slow (hence the holter monitor)

I had the test done last week and have got a letter back saying i need to go discuss my results. however the appointment is not until the 18th may! (nearly two months away). it also says i need to get there 20minutes early and bring a water sample with me.

Cleary its nothing too serious or life threatening or i would not have to wait so long for the results. but i just wondered why they need a water sample, and what that could mean in terms of my heart.

I am in the final weeks of university now, and im finding it very hard to concentrate on my work when i have this on my mind. i dont think i can cope waiting that long for the results!

Any information would be truely appreciated.
Thanks
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Avatar_f_tn
Hi I just joined the list and after reading several posts I am glad that I did I don't feel so alone now.  I am
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849476_tn?1241383115
Hello kt!
   I just got on and read you comment. For someone so young to experience these types of things with your heart, it must certainly be very scary. I am 56 and have had what is called, PVC's for several months now. PVC's are preventricular contractions. I don't experience a rapid heart beat as I also have high blood pressure and the medication I take for that keeps my heart rate around 65 beats per minute. What I experience is a skipped beat. I actually feel my heart stop and then kick back in. It will do this off and on all day everyday and yes, even for an old lady like me, it is scary. What I am wondering about what happened to you is this, could it have been a panic attack? Are you under a lot of stress? I also have panic attacks and constant anxiety which doesn't help my heart. When one is under a lot of stress, your body pumps out more adrenaline which affects the heart making it beat faster. It is the "fight or flight reponse". I would suggest that you see a doctor and tell him/her what you've experienced and go from there. It's never good to let things go and pass it off and nothing serious. I will be seeing my doctor next week and I need answers. The medication I have been taking for these PVC's just isn't helping. I am afraid to wake up in the mornings knowing what I will be facing and not having anything to I can do.
      I hope you will be ok. Feel free to contact me anytime. Take care.
Valerie
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Avatar_m_tn
I have been diagnosed with Mitral & Aortic valve prolapse with regurgetation (The "floppy" valve allows blood to flow in the wrong direction) due to having a connective tissue disorder called Marfan's.  Usually MVP is seen as "benign" but in the case of Marfan's, I run the risk of Aortic Dissection (Basically a rupture of an aneurysm, caused by the pressure from the regurgetation, in the Aorta as it leaves the heart?).

At any rate, Beta Blockers does seem to keep my BP fairly stable and low but I still suffer from chronic fatigue, nausia and lightheadedness from time to time.
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Avatar_m_tn
I'm so glad I found this site, it has helped me so much.  I've been diagnosed and dealing with PVC's (which are constant now) and I try not to freak out about it.  I recently had a stress test, and have a structurally normal heart. I'm on a beta blocker, but not sure if it helps much.   Seems lately I've been getting some runs of NSVT from the PVC's.  I try to not obsess, so I just suffer it in quiet desperation.  
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906509_tn?1242751345
Hi,, well it looks like im not alone in this! Ive been told i have some pvcs,.. they are VERY bothersome at night mostly, Im scared to death im just gunna die in my sleep, ive had an ekg? (the strip of paper) and the cardiologist says it normal, im going for an ultrasopund on my heart on the 30 th of May,...i have controled high b.p with meds, need to lose a few ( 60) lbs ..:(smoker ,, trying to cut down/quit....these palpatations NEVER happened until AFTER the birth of my 4th baby, he was delivered by c section, under anesthesia, anyone have any thoughts????
Scared
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Avatar_m_tn
Hi. I ended up in the hospital for 2 days after having a very fast heart beat where I almost passed out. The irregular rhythm lasted only a brief time, but I was almost out cold. I had an EP study where they found an irregularity in the ventricles but couldn't sustain it, so that's been about it. I've been terrified and overwhelmed. They think it was a fluke that may not happen again but I'm totally afraid. Thanks.
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Avatar_f_tn
I am a 30 year old female who was diagnosed with AVNRT... NO medication was helping with this condition.  I would experience "episodes" in which my heart rate would exceed 200 beats/minute.  Sick of the ER, and adenosine... I had the heart ablation surgery just this past Monday at U of M hospital in Michigan.  Dr. Morady performed the procedure, and I am cured!  I felt NOTHING through the entire surgery... except for my heart rate going up... due to the fact that they needed to trace the path of electrical signals.  I did not feel the needle "numbing" my upper thigh area, I did not feel them burning my heart tissue, and the procedure took 45 minutes... not 2-4 hours.  If this is an option... get this procedure done!  It is well worth it!  I am a big baby with pain... again I felt NOTHING the entire time!  I was not even that sore the day after, yesterday, or today.  Best of luck to everyone with this condition.  My heart rate has never felt more normal than it does now :)  
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967168_tn?1343732745
Glad to have found this site.  I thought I was the only one who was having some crazy numbers on my tests but glad to see others do too.

Short list info - I have over 54,000 extra beats on my holter and have runs of PVC's/VT's that are wrecking havoc with my life.  It's been this way every single moment of every day since February 2009.

I pass out, passed out after 3 & 5 vt runs on my stress test, I black out, have such severe symptoms daily that I went from leading an active normal life to barely surviving.

Going to another specialist this Friday because I want a second opinion on why I need surgery with no reasoning.

Sorry for the long welcome post, just glad others know what I'm feeling.
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978293_tn?1248329631
I'm glad I have found this site.  I've spent all day reading things that are helpful.  I am completely lost and I don't know how to use the site.  I do know I'm seeing doctor after doctor and they are completely baffled, and I am completey afraid.  I figure when I die maybe they will figure out what "was" wrong with me during the autopsy.  I'm just glad I have found a site that shows me I'm not the only one feeling this way.  
Thanks.
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21064_tn?1309312333
I sent you a private message.  

Connie
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967168_tn?1343732745
I am so sorry you are going through this, hopefully you will find some answers soon.  

Do you have a mayo clinic near or another large research clinic that you can go to? I tried Mayo and it was out of network for my insurance, so I couldn't afford the $12,000 cost out of pocket.

Keep us posted and feel free to pm me if  you just want to rant - goodness knows thats all Ive done the past week :)
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Avatar_f_tn
I just joined tonight (this morning). Just experienced an episode tonight and am scared to go to sleep. so am up at 3:37am writing about it to try to get it off my mind. Waiting to see if my pulse and bp wil come down. I'm glad I found this place after reading all the posts I feel a little better knowing that I'm not alone when I have a episode like this. Yes, indeed, it is extremely scary and makes me worry incredibly. I hope to make some friends.
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1057595_tn?1257901938
I'm so grateful I found this forum!  My 25 year old daughter has been dealing with continuous runs of pvcs bigenimi and couplets for 5 weeks.  She has been taking 100 mg of beta blocker a day with no relief in sight.  Today at her cardiologist appointment, she was told that she is throwing 30,000 pvcs a day.  I was floored.  She was immediately referred to the cardiac specialist who performs ablations and told they hope to have her done in three weeks.  I live in California and she is in law school in Chicago so I feel somewhat out of control.  Luckily her health insurance covers Northwestern University Hospital so I am confident she is with a good system.  The doctor told her that the pvcs are from an unknown orgin and are ventricular and not atrial.  Anyone with similar circumstances??  Thanks
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21064_tn?1309312333
Having been right where your daughter is, I can tell you first hand how helpful this site was/is for me. One thing that you might do to generate more response is to start your own thread.  Readers may see  your post here, but they are more likely to see a post if you start a new topic.  You can copy and paste your comment above, but try to put it into a topic all its own.  You will probably get more responses that way : )

If your daughter has her procedures done by an experienced EP (electrophysiologist), she may find she has more energy and feels better than she has in a long time.  In 2003, I had 2 ablations for frequent PVCs, and now I only get a few PVCs (compared to 20,000+ per day).  As for the beta blocker, some people find they help a lot, others not so much.  I would imagine Northwestern has a great program where she will be under excellent care. If they do an EPS (electrophysiological study), they may be able to pinpoint the place where the PVCs are being generated.  In my case, the EPSs were done at the same time as the ablations.  Please feel free to ask any questions, send me a private message, etc. if I can help.  Hope that helps at least a little : )

Connie
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967168_tn?1343732745
Welcome - this is a great place for support and answers; I have found in the past few months more help than all of my doctors together :)

You  will find every aspect of all heart rhythms here and how we each experience them and deal with can be vastly different.

For me - I was shocked I had over 54,000 pvc's daily (sometimes more)  I knew I had these things, but doctors told me for years nothing was wrong with me. I dismissed how I felt as everything else - stress, job, family, kids, being overweight, out of shape etc etc etc

So far; they found no reasoning for mine and nothing caused them to worsen, except when I get aggravated; but that still happens.  

I had an ablation last month and had some complications during surgery that showed I had other problems VTach & my heart went into Vfib 3 times, so I had to have a pacemaker/icd implanted.
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Avatar_n_tn
Hello,
Female now 53 years old...
Back in 1997 or 98  my heart rate began to race...  Did not think anything of it... do to the fact it stopped within 5 mins...  Then one day it did it again I was very relaxed washing the dog and it started... I finished the dog went to lay down to relax... and it stopped after 30mins... that was the longest...  At one point I walked into a immediate care sometime during one of fast rates, told someone, by the time they hooked me up it was gone.  So for years I never knew what it was...  One day I mentioned to a girlfriend and she said I was having Anixety attach, did know what that was... never felt anixety before...  I have had them here and there... but it would go away pretty quick...So I did not think anything of it again... 9 years later I am getting married at the age of 51 2nd marriage... A big life change...  My husband lives in another country which is a 2nd world... So we marry on Sept 8, 07 all is well... Then one day while we were back in the states at our home there... on Dec 8 3month aniversary...  I was accepting a friend so I was cleaning the house and trying to fit everything thing in for the day... and then there goes the heart rate...  I took a shower washed my hair, dryed it...  laid down... and it picked up pace...  Now I am worried this is 1 hr now... and it is not getting any better... I am pee a lot...  I called my husband and told him i think I need to go to ER...  Picked him up at one of our friends house... while picking him up I need to use the rest room again...  Finally got to the hospital, by then, my neck was stiffing up, I was not feeling very well and not know what was going on and my husband is feaking out with the hospital check in.. they finally get me to a bed. put me on a montior and all faces changed and everyone was working so fast it started to scare me even more... Everyone in the ER room was at my bed,  They ask me questions and that was hard to answer my brain was not working so good... They are sticking me with IV in both arms... and now they are talking to me letting me know what they are going to do...  Just keep breathing while they dosed me with Adesoine 5 mg...  That was horrible feeling...  my rate was up to 268 when they hooked me up... The hospital has never had anyone come in like that... They asked me if i take Drugs...NO, Drink NO, Caffine NO... I eat organically and excise regularly...  I am so health... all blood test came back just fine... I was Dignosed with PVST which did not mean anything to me still... So I made an appt with a Cardi in Newport Beach, CA ... Took test on a treatmill, ultra sound... Everything perfect...  Accept he said I have AVNRT which still did not mean anything to me... Of course you have to get yourself educated now... and get pro-active...  Since then I had another one Dec 31,07... every 6months I am in the ER 2008 2 times... 2009 3 times...  Two people asked me maybe it is hormonal... I did not think anything once again... and then I am looking back on the first time... I went thur a horrible divoice like all of us... do... and when the dust settle is when this heart rate started... Just out of the Blue...  Now I am in another life change getting married after living alone for  15years...  and cultur shock in another country adjusting to that, whick is very difficult...  Now I have my first appt with a dr in NJ who accutally does the procedure...  and I have 22 questions for him based on my last surgery I had on my knee which did not go well... That has taking a toll on me ...  So I do beleive it is emontionally related... When I get upset and a after a couple of days I settle down... The SVT starts...  Right Now I have not been in the ER... for 2 1/2 months...

CAN ANYONE OR DR LET ME KNOW THE ANSWER TO THIS QUESTION...
My question is how harmful can that Medicine that they inject Adensione be for the body and heart..?
I am going the direction of not having the surgery at the moment do to the fact I want to know ...what is the RISK FACTOR  if I DO NOTHING and keep going to ER for 5mg to stop the heart from going to fast...

Thank you, J
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Avatar_n_tn
my question is ... Risk Factor with SVT/AVNRT if I do nothing?  1-1000

2nd ?   Does the adensoine meds that are used in the Hospital life threatenign to your heart each time you are injected?  

3rd?  I have had from 2007-2009  7 attacks and had to go to Emergency Room each time...  Is this enough times to say I should have the surgery...?

I am on no meds... 2 Doctor's have said I am not a canidate for Meds... Tried one and I felt worse than better...

So no meds and have been out of Emergency rooms for 2 1/2 months now...

4th?  If I have had 2 attacks in one year do I want to put myself thur the surgery?
        There are risk factors doing the surgery...?

Thank you J
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Avatar_m_tn
I personally think the threat of having to have adensoine to bring down an out of control SVT for the rest of your life is worse than trying an ablation. After having it and having 7 beats of VT right afterwards and heart pain, I scheduled surgery. I've had this problem for 18 years and they think I have AVNRT. It is not possible to live without stress, be close to a hospital, live like you were paralyzed because of this condition, watch how you move so it doesn't just spontaneously occur. Be in the middle of a crowd, a concert or a meeting and leave for the hospital enough is enough.
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Avatar_m_tn
heyy.
it seems like evryone on the forum suffers from around the same things some worst than others. i have a sinus arrythmia and its normal and not life threatning. im 16 going on 17. and i have had palpatations since the 8th grade. But have just recently said to have a sinus arrythmia when i complained my heart skips beats. Honestly im scared, im afraid to go out with friends, i hate being home alone. and at school evrtoe ask me whats wrong and its just so hard to explain i feel like no one gets me. I hate feeling like this im making evryone around me sad and i dont mean to., im just so scared because my friend passed away last march and he passed out while playing basketball, i think he had an enlarged heart. but idk. I think about him everyday he was such a wonderful person he was only 19 and such a strong believer in God. i just dont understand i am christian also and look for God for help. i dont mean to question God but my friend passed away and im still in shock. there is so much i just want to say on here but im just not how i used to be and i hate making plans because i only go out if my heart dosen't act up. It feels good to say this out loud.well type it at least.
Thanks everyone.
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This is my first time posting on this forum. I am a 65 year old retired school teacher. I have had PVC's since 2003 and have been hospitalized twice for A-fib. I can't believe how many people suffer from the same things I have. Misery loves company. I know that you all know how I feel. I think there needs to be a LOT more research on these topics to help us. My doctors have dismissed both conditions as non life threatening, but what they don't realize is how it affects the quality of my life. I will be tuning into this forum in the future as it gives me comfort. Thank you and God bless all of you.
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I just read your post and my heart goes out to you because you are so young. (I am 65).  Do you have a good cardiologist?  I know what you mean about not wanting to go out. My husband wants to travel, but I am afraid that I will get a bout of PVC's, so I make excuses not to go. Good luck to you. Let us know how you're doing.
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Hi I am new to the site and was reading through a lot of the threads but unfortunately I have to go to work now. I just wanted to say I am in the same boat with you all. I will be back later on after work and I'll post again then. I just wanted to say hi . see y'all later. ^.^
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I understand where your coming from there. I have the same problems too. My heart will flip out on me while I am out and I hate that.I have had this for way too long and enough is enough. But I am dealing with it til something or someone comes along with some kind of treatment or cure. I hope it is soon. But I have been reading other comments at other sites as well and a lot of the people with this is saying it comes when they are on the cycles or when they are going through the changes.(Menopause) I am starting my Menopause and I want to through that into the pot but not sure if it is. But they have found that magnesium along with calcium seems to help. They also say to go slowly into the Magnesium otherwise you will get really bad diarrhea. So I will start off with a small dose of the magnesium . I am already taking calcium chewable for my bone seeing how I don't like milk and can't drink or eat it anyways because I am Lactose in tolerant.
  I am stating off with children vitamins  cause it has the Magnesium already in it. I will try and keep others posted on this as I am Gyneepigging (sp) myself here. ^.^ But back to what you were talking about there Itomich I also wont go anywhere by myself . I tried once to go grocery shopping by myself and it happened in the store. I keep my Xanax (sp) with me at all times . That helps me to not get all scared and keeps my brain in control. I take the kind that keeps the chemicals in balance. I don't get the high from these. I have even taken them at work. Yes I have these problems at work as well. I have been sent an ambulance to my job for me because I passed out at work after having a Registered nurse in my line and noticed what was happening to me. I was very lucky that time. I have 2 kids one is 17 the other is my daughter and she is gonna be 13 in April. My biggest fear is of two things. One is dieing in front of my kids. The other is dieing and leaving my kids without a mother.
   I hate it and wish they would start doing some studies on this like other things they do that with. I don't think that they think it is that big of a deal . But as I said once to my husband if it happened to them then they would care and want to listen or do something to help. When I would have one I would begin to cry so bad and lay in my bed begging God to help me that I would do anything if he just fixed me and made me better. I just end up falling asleep and waking to them either gone or still doing their thing. My husband just looks at me and says."What do you want me to do? It's not like I can do anything about it." My response to him is "Just be there beside me while I am having them is all I ask. I am scared.

Sorry if I have upset anybody. Have a good day and coming from a person with this problem as you that means a lot and has a meaning of it's own. ^.~ Hugs      
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Avatar_m_tn
Like everyone, I suffer from these and have done for 9 months. They started just a couple of flutters a day, now they can go for hours with thuds, jumps, flutters, dizzy spells etc etc.

people have said bananas have helped. Others say magnesium helps, and one person swears by taurine.

I have just seen a homeopath an d will start that treatment today.
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hi everyone - I've been diagnosed with PSVT, have had occasional episodes over the years but just rode them out (while feeling horrible) until this January, when one got so bad and nothing I did would ease it.  Went in to ER, they all moved really fast & hooked up IV, Adenosine, and that took care of the problem.  Nothing until a couple of weeks ago, when one hit again - another bad one.  I'm over 200bpm when those hit, it hurts, I feel shaky and dizzy, you all know how it goes.  Back to ER, more Adenosine and, again, that fixed it.  Then they began happening even more often, so made appt w/doc. (Don't have insurance, so those $2,000-per visits to the ER are hurting!)
He put me on Metropol daily, with the Propol as a 'pocket pill'.  I have always had low blood pressure, so of course the Metropol dropped it even lower - makes me dopey and dizzy and SO tired.  This morning, another episode hit - I hadn't taken the Metropol yesterday because I was tired of feeling tired...that'll teach me!  I took the dose of Metropol, and ended up taking 2 of the Propol because nothing was helping.  Took six hours for the episode to go away - rough day.  Now I'm dealing with the hypotension symptoms, of course, and heart still hurts because it's been running several back-to-back marathons all day.  I'm 56, in good physical shape, generally pretty healthy - but I also have three little foster kids whom I'm going to adopt, and they need me to stay active!  It's just frustrating, and scary - I'm so glad to have found this site and be able to read everyone else's stories.  Sorry for the loooong post!
Sunnymama
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I have recently been diagnosed with PSVT - AVNRT and saw an EP specialist on Tuesday.  I will be having an ablation done at the end of May.  After living with this condition for 28 years, and 3 trips to the ER in the last 6 months (via ambulance) I've had enough.  I have been told that this condition has a high success rate for cure.  Consider going to an EP specialist in your area.  i will be posting about my experience.
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thanks for the post - I'll be watching to hear from you about your experience with the ablation.  My doc suggested it, but since I don't have insurance, it's just not an option at present....unless the episodes continue to break through the meds, I guess.  Then I'll have to figure something out.  Are you on any meds at present?  And do they dump your bp?  I'm so tired of feeling exhausted all the time!
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You're welcome.  I am currently taking Atenolol 50mg (15 years) and Digoxin 0.125 mg. for the last 7 weeks.  I have to say that my heart hasn't felt so settled in a long time since I started taking Digoxin.  I am going through o a very stressful time in my life currently, with no problems so far.  I have never liked taking Atenolol because it makes me feel tired but it keeps my bp low and more importantly, my adrenaline levels under control.  I am not too keen to stay on Atenolol much longer as my triglycerides are increasing and I have read on line that in Britain this drug is not used as a frontline drug as more;  doctors there prescribe CCB instead because there appears to be a strong link between Atenolol and Type 2 diabetes.  So I am praying that after the ablation I will be pharmaceutical drug free.  The only medication I want in my body is what I get from my naturopathic doctor.  Seriously consider seeing an EP specialist with regard to the ablation.
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I have just been released from the hospital today, I was in to try Tikosyn. A few months ago I started feeling the pvc's, everything I have read says they are relatively innocent. My cardiologist originally had me on Atenolol, when that did not work Verapamil was added. I could see a difference but they were still happening. When I went for a med check I was having a bad day and the doctor could hear it in my chest, that day my pulse was down to 42, I have noticed that happen regular at home also. He said that it would be a good idea at that point to try Tikosyn. I like my doctor but he is not good at explaining and I honestly dont know what I should be asking. When in the hospital the Tikosyn didnt work, then he was going to put me on  Amiodarone, he said he really didnt want to becuase of my age I am 35, but he said as a last resort we might have to. Instead I am on Veramamil and Sotalol. I am worried about it not working, I really dont want to go on amiodarone. I am still having pvc's not as bad, I know that they need my qt to be better than it was. My last ekg this morning I was having pvc's but he said he didnt see any of the irregular heartbeats. I was under the impression that PVC and Irregualr heartbeats are the same, are they?They seemed really concerned over my QT I think the distance between, how important is what they were watching with my qt?( not sure what that means) I have them as often as everyother to every 5th they are horrible and make me feel terrible, they can go on for a short time or all day. Can PVC's cause any damage to my heart? Wouldnt it be better to control as much as possible with what I am on and have PVC's less frequent then it would be go on Amiodarone? In my opinion I worry because my original combination of meds work, just not the greatest. shouldnt he have just change up the doses instead of possibly going on to the Amiodarone? I go see him again on tuesday, but so far I think I had the better reaction from the old meds, and if he says when they dont work to try amiodarone I figure I will tell him I want my other doses back instead, not only a waist of 4 days in ICU to go on the ones that dont work but I am still back to square one, as long as it wont damage anything I am ok with that. I am debating if I should find another doctor. I just dont know.  I just took my solotol and am finding I really dont think I like it I think the PVC acts up when I take it, not sure yet. Sorry for jumping around so much, thank you for any input you might have.
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Hi Julie. I am 1 year and 4 months post cardiac ablation for sick sinus syndrome and transient paroxysmal atrial fib. It was (still can be) awful. Sotalol was the first drug that was tried when I spent 9 days in the hospital the first time, and even tho everyone is different when it comes to these antiarrhythmic meds, it caused pvc and terrible stomache and bowel issues. I was sick on the stuff. Amiodarone made me emotional and jittery, lots of tears and after the loading dose, did not help my flutter or bouts of atrial tachycardia. Maybe a different med would help, there are several. I reccomend a reading EKGs for dummies book that I got used on Amazon. It explained my poor r wave progression and my Q-T intervals. It is written in a ling that is easier to understand. Oh, and as far as your cardio or EP, they need to slow down and explain things if you have questions. You are putting your life in their hands. Get a new doc! I love love love both my cardiologist and my EP and am very fortunate to have them managing this mess. It is better now, much more managed, but I still jump out of rhythm for a day or two or three and it discourages me. Keep your chin up girl and go shopping for a new doctor. There are many out there. Websites that rate the office and the doc are helpful and there are many of them online. I hope this helps some. I know it is hard. This disease is a hard thing to try to get accustom to and I have been dealing with it since Christmas 3 years ago. I am 46 yrs old, I feel like I am getting old before my time. Shouldn't these problems rear their ugly heads in my retirement years? I guess not from reading the posts of 21 year olds and evena few children. Just know that we are not alone in this. This website has helped me realize this and it comforts me so much. Have a great day! Sharon
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Hello
I hope I CAN explain my problem good.2months ago I start have melt chest pain.The chest pain is there always for 24 hours ,Pain intense change all the time . Pain go to back arms and neck, Doctor keep saying to me it is nothing serious , even he never check me or send me anywhere to check .Now the heart start act even more strange ,it is not beating fast but hard.i GET so scary from it. I feel this big bang pulse so much. I have to stop and wait what will happening. Somebody have experience with same problem??? Please let me know
I start be really scary and Doctor dont want help me at all
THANK YOU
Katarina
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Avatar_f_tn
kataka666, hi, this is kay1951. That would be scary. I have expeirenced sorta the same thing. I'am 58yr's old and have had pvc's every day and alot of them.for about 8+yrs. This is an awful feeling as i can feel my heart skip the beats. I do see a EP specialist for this. I hope you have seen a heart dr. and had you're heart checked out. That way you know if their is something you should wory about or not. Please see a heart dr. and try not to get to stressed out. Hoping the best for you. kay1951
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Hello, just diagnosed with afib 1-1/2 years ago. Looking into ablation. My cardiologist really put the fear of god in me about risks. I know it can help me if successful. Anybody had the downside?
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Hello everyone. I'm not new to the community but I never posted before. I am about two weeks post-ablation for my SVT. They couldn't induce the SVT arrhythmia during the EP study but because of the way my heart responded (multiple PVC's, PAC's, etc.) and the way my heart was structurally they could still do the ablation. I've had a loop recorder (it's an implantable cardiac monitor, feel free to message me if you're curious about it :) ) in for the past year or so and that's how they've been catching the SVT on a monitor (I still have the loop recorder in, no talk about having it out yet). I've had episodes of the SVT with syncope(fainting) and near syncope for the past 5 years and it's been awful (due to me have no warning of course and also due to the fact that almost every SVT run results in syncope) . I spent a lot of time in hospital ER's due to it, though I always seemed to end up there *after* the SVT stopped and everyone thought I was just crazy. I'm hopeful that this is "the cure" (I've had no syncope since a week before the ablation) and that I will not have to worry about this stuff anymore. I did have a mild complication with my ablation (just infection, am on Keflex for a while), and the cardio says it's from the nurses using silver nitrate on my catheter site (it wouldn't stop bleeding). Hope everyone is feeling okay! <3
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Its nice to be able to read about other people with the same problems as me. I am 23 years old and I have SVT. Its so scarey. The finally did an abaltion last March because it was so bad I was passing out and  I have 2 toddlers. The Dr. told me he belived that it was 100% sucessful. I thought so as well. But this week I seem to be getting all my problems back. Racing heart,chest pains,dizzy and Ive been so weak and tired. I have also been expierencing migranes (migraines)(which I never did before). Not sure if the migranes (migraines) play a part with SVT? anyone else had bad migranes (migraines) and SVT? I am worried that my ablation was not suscessful. I have read that some people have multiple abaltions before completely having no more palpitaions...?
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Please help me o hav a cobstant leaking in my chest docs say om fine help
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I was diagnosed with Sinus Tachycardia - had antiboitcs as my bloods came back with white being super high (fighting an unknown Infection) and my reds were really low (carrying the oxygen) which did not help at all. I can't have caffiene, booze, junkfood, really hot showers or sitting in the sun or standing up more than a minute or so-still can do but i know it will increase my heartrate. Told it was'nt serious by the doctor then the Cardiologist forgot to organise (2months ago mind you) my holter monitor for 24hrs to determine what rythym I have so they know which pills to prescribe me, at first both my ECK's came back normal rythym but they said after the first dose of anti-botics it should of gone away but 3 months later I still have it ( not as bad as it was but very annoying) My pulse is up 90% of the day even doing light housework or a small glass of wine, working fulltime is a nightmare as im in an office staring at a pc screen all day from 8am-5.30pm.Im a light sleeper as well which doesnt help-find it uncomfy to lay on the left side.

Im 25yrs old - female-no other medical conditions-was fine up until last december..how can you not know your body has an infection and causes all this???

Any ideas as to what else I can do to get healthy and fight this?

Ive been told the new liquid fish oil (flavoured and is equivalent to 25x fish oil caplets) so is the best so far-havent brought any yet but any other ideas-also been doing green smoothies and trying to eat healthy at least 80% of the day
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I have had atrial fibulation for years. Can a pacemaker help me?
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So comforting to know I am not alone with this problem.  I am now 58, have had SVT since I was 13.  For many years I was misdiagnosed, called a hypochondriac, etc.  When I was in my early 30's, the episodes became more and more frequent and severe.  By the time I was 47, they were completely out of control, the short story is that I was finally diagnosed in the ambulance on the way to the hospital, given adenosine which is an unpleasant experience but its the only thing that would break the SVT.  (See my journal for more details if you are interested.)  I have been on atenolol for the past 10 years, worked well in preventing episodes, but bad side effects.  Now the atenolol is not working as well, had a very bad episode of SVT a few weeks ago, back in the ER, adenosine again.  ER doc, bless her, referred me to a cardiologist.  He will be doing an EP ablation on me in 2 weeks.  Finally, a chance for a normal life.
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I posted a comment last night about an afib problem. Where would I check to see if anyone responded. I assumed in this forum, but I see none. Can someone enlighten me?

                                  thanks gail
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Hiya, I'm 17 and was diagnosed with Wolff Parkinson White Syndrome almost a year ago. Im due to have catheter ablation in a week. And to be honest im sh**ing myself. I can't speak to anybody because I don't want to worry them by telling them i'm really scared. If anybody's had it done, any information would be really appreciated :)
Hanna xx
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Hi Hanna, I had an ablation for a-fib in Sept.  It was a very good experience overall, I was completely out so I don't remember much.  i woke up in the recovery room and only felt a slight discomfort in my chest when taking a breath. I was in the hospital longer than normal because of some tachycardia. Had no pain but I did take ibuprophen for the inflammation caused by the ablation.  i felt really good within a few days.  The only problem is I had to go on an anti-arrhythmic drug....and by Dec. the drug was keeping me in NSR.  Then I was finally able to wean off it for good about 2 months ago.  So, all in all it has been a good recovery.  It usually takes 3-6 months to see if the ablation is considered a success.  I had an excellent Dr. who had performed thousands of ablations. You are so young, so it would be great if you could nip this in the bud and enjoy the rest of your life without arrhythmia.  Best of luck to you and let us know how it goes.  You have a lot of support on here.
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Hi all.

I so wish I'd have found this site years ago.  I've was diagnosed with SVT 6 years ago during my second trimester of pregnancy with my 2nd baby.  I was advised that it was probably pregnancy related and that things should clear up after giving birth.  Although treated as hi risk when pregnant, I sailed through labour with no problems at all.  However, periodically since then I have had further episodes of SVT getting more and more frequent.  Having said that, I haven't once ended up in A&E as I've always been able to manage it.

Anyway, after years of suffering and getting completely frustrated with my GP telling me it is 'all in my head' and to try relaxation techniques, I demanded a second opinion and it has taken me a further 2 years to receive corrective treatment.  Have tried 3 types of medication in the past, all of which made the episodes worse.  In between episodes I feel as fit as a fiddle and return to my running programme.  However, once and episode kicks in I can hardly walk the stairs without getting that breathless, heart racing, passing out sensation which is really scary when you're at home alone with 2 young children.

To cut a long story short, for the ast 4 weeks, I have had no let up in symptoms and 2 weeks ago I received the date for my eps and ablation.  I went in last Thursday 2nd June for the procedure and am now in recovery waiting to see if it was successful.  The procedure itself was nothing at all to worry about.  I was sedated and the procedure took about 2 hours.  The EP consultant managed to ablate 4 times but informed me that the extra beats are being created extremely close to the av node and therefore, he was reluctant to burn any further fear the risk of causing heart block and needing a pacemaker.  Being relatively young (37) and slim (his words) he didn't want to see me being left with a pacemaker for the rest of my life.  Depending on how the episodes go following the procedure I may or may not have to go back in for a cryoablation which has a lower success rate but also lower risks.

I'm now 2 days in to recovery and not feeling brilliant as the heart is still recovering.  I've had a few scary moments when my heart has skipped and the light headidness has returned, bloody pressure dropped.  Prior to the ablation I just accepted these as normal and must admit that they are slightly more alarming having them post ablation as I'm not sure what damage has been caused to my heart during the ablation.  I'm sure further down the recovery road things will right themselves, but just a little scary at the moment.  Hopefully, I should get a follow up appointment soon so will be able to discuss these issues with my EP doctor then but just wanted to share my experience with you all and really wish I'd have found you earlier.  All those years thinking I was going mad and no one being able to sympathise with my symptoms were horrendous and it would've been nice to share them on here.
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Wow, it's so very nice to find other people with the same fears...  It's awful to have anything funky with your heart but to see others is truly much support. I am 32 years old, female, was recently diagnosed with PVCs and since then have been getting "heart pinches/pains" through out the day. After much talk with my Cardio and Arrhythmia Cardio, both say it's not heart related but possibly my ribs etc... I had the EKGs, Echo and 30 day monitor.  Still scary stuff though. Can't make them go away but I guess with Anxiety and Panic disorder on top of it, it just makes it all worse. Nice to see so many others supporting each other :)
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Hiya, thanks for the reply. Im going in tomorrow morning so i'll ave to let you all know how it goes. Quite scared at the moment, but your comment back has helped to settle my nerves knowing that I hopefully won't remember most of it. All the luck to everybody on here :)
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Hello.

Just wanted to drop a note. It has been quite some time that I was last here. (I've been spending most of my time at the adrenal insufficiency forum).

Just wanted to let you know I was still around--literally. PVCs still haven't done me in.

The acebutelol continues to work to bring down the PVC from the 28,000+/day I had before. I think I'm about 200 to 500/day now. No big deal. But still, after all these years, when they happen they are the worst.

Over the past many months I've been monitoring an adrenal tumor, that I just had removed.

It wasn't a pheochromocytoma--thank goodness, but that would have at least explained the high PVCs and the anxiety attacks. The tumor was secreting extra cortisol though. I was hoping that by removing the tumor it would take away ALL the pvcs, but no such luck.

Anyhow, just thought I would say hello, I see that many of the posters to this forum are still here. You are all such a great group of people and I thank you for being here for everyone.
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Hey friend!!!

OMGOSH!!  I'm so happy to see you're "still around" and to read about how you're doing :)  I don't get over here much either, but I get email updates on some of the posts, and I will never forget the support I received in this home away from home!

Sorry to hear about the adrenal tumor, but I'm glad to hear it turned out to be okay.  You didn't really think you'd be able to get rid of your PVCs now, did ya?  .

Can you believe I'm nearly 8 years out from my ablations?  I'm still only having an occasion PVC and a run here and there, but nothing compared to pre-ablation days. The valve remains quiet (shhhh), and life is good!    

Hope you're doing great despite the adrenal difficulties.  Take care.  It is so great to hear from you!  
Connie

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