Oh my Im so sick of this... Recap I have nsvt, svt, pvcs, pacs.. Three attempted ablations never could induce it but they know I have it. anyway my heart has been acting up so bad.. Im totally going crazy.. Ugh Im having such anxiety over this. I just wonder when the er visit is gonna happen.. After 10 yrs you would think this would be under control by now. But its not and ive about had it with this.
Sorry and surprised that your doctors were unable to localize your problem sources. That noted the fact you say your problem is getting worse may foretell a time when the doctor will be to ablate, will be able to induce while you are in an ablation procedure.
Ended up in er today.. I had to drive my self, didnt think I would make it. It lasted around 18 minutes. Got to er got on the table and guess what it stopped. I told them maybe I need to move around for it to go. They didnt listen.. all the labs came back fine. But here is the intresting part. I got a monitor again that im wearing and when sitting and relaxing im good the minute I get up and and stand or walk it throws my heart in the abnormal beat. been doing it all day I have sent so many recordings. I have NEVER had this before. It was pretty scarey today driving myself. I about pulled over two times and called for an ambulance. I called my mom made her talk to me on the way like that would help she is 100 miles away from me but I said just talk I couldnt talk back to out of breath. the er is about five minutes away. man that was scarey.. I just dont get this thing. What do you think?
I didn't mean to write a challenge to your trip to ER, just trying to better understand the symptoms/issues. This may help others generate helpful input. I don't have anything more to add at this point beyond saying it sounds like you have taken the right action to get a diagnostic of what is causing your rhythm problems.
I don't know exactly what is going on, but some arrhythmia's are triggered by exertion, as light just standing up. Mine can be like that. I think you're doing the right thing by wearing the monitor. I hope it helps clear things up. How long are you wearing it for? Is it automatically recording or are you pushing the button? I only ask because you can sometimes kind of figure out what is going on if it's automatically recording. For example, my recorder records automatically when the heart rate is below 40 bpm, above 150 bpm and A-fib. Sometimes the company you call it into can tell you what it was as well.
Ya the company wont tell me anything. Its like the king of hearts I push the button. I believe I get for a month.. I need to call the cardio tomorrow let her know im wearing it. It was the er who ordered it. For the past ten yrs since I have these ugly things excertion has never bothered me before.. Thats why im a bit nervous about this.. Totally changing here on me.
Here's what I learned while wearing mine. During my 30 days, I sent lots of PVC recordings. Then it recorded an SVT event which lasted longer than the preset recording period of 2 minutes. I was able to convert the SVT afterwards, whereupon I called the monitoring lab. When the tech saw the recording, she immediately instructed me to make a manual recording. When I assured her that I was in NSR, she told me that it was either a manual recording, or EMT's at my door. Point being is that if you have a serious arrhythmia, I suspect you'd whould have immediately known about it. I had 2 more events during my monitoring period. For those, I made sure to record the conversion back to NSR at the end of the event so the tech would see it drop out of SVT. I want to add that the 30 monitor was a key step to authorizing the EP study and ablation.
Tom made a good point about the manual recordings. When I go into standard A-fib for a recording, there is no need for a manual recording. When I hit one of the 200bpm A-fib episodes they want a manual recording regardless of if I have converted on my own. They also wanted manual recordings in the morning after turning in my long pauses during my sleep.
But for peace of mind, call your doctor and ask what they see, or ask if they will keep you updated. I email mine when I have a question or need to update them about something that I experienced that day. I can completely relate to everything changing. It's always a little scary when something new starts to happen.
I've had what you described; my EP said it was due to autonomic dysfunction involvement and heart issues...throw a mixed signal to the brain and you get a varied disarray of symptoms.
Orthostatic Intolerance and orthostatic hypotension can be a real pain to deal with. You can check it out at the NDRF (national dysatuonomia research foundation) or do a google search.
sometimes there's fainting; other times just the wooziness and heart racing out of my chest...I've learned to move very slowly esp moving upright or standing too long not to make any sudden moves.
not everyone experiences the same symptoms and each time the symptoms can be a bit different... it could be very difficult to dx if it is OI/OH unless they can pick it up during a tilt table test or knew specifically about OI
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