I presented to our local hospital with supine heart rates of 95-105, upon standing my heartrate increased to 130-150 within 20-40 seconds. It may have gone higher but a feeling of impending syncope compelled me to lie down. The attending stated that I had a case of POTS and quite an obvious one. This condition came on over a two week period until I feared my heart would burst. The attending ordered an abdominal cat w/contrast, chest x-rays, a doppler of the vessels in my legs and an echocardiogram. There were scores of blood tests including thyroid (I have Hashimoto's). I was told the TSH was.01 and Free T4 was high normal. I have had blood levels like this before but no POTS. The attending and the endo docs signed off on a diagnosis of hyperthyroidism. I am to follow up with the endo but I don't see a connection. The POTS is thought to me a collection of symptoms of dysautonomia, right. My speed date with the cardiologist ended in his reassuring me that my thyroid was the cause. I can't find any such info. They assure me that we'll fix my thyroid and thereby fix the POTS. My POTS is completely debilitating. I can stay upright, walk about for a minute or two or take seven stairs and I flop onto the bed heaving and gasping. I take a beta-blocker but it only keeps the rate down. The feelings are the same. I cannot accept that this is forever and I can't find a case like mine or a case where there was resolution. Thank you in advance for your ideas.
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