I just wanted to throw this out there, because there was mention that I may have autoimmune hepatitis. I have an autoimmune disease called Sjogren's Syndrome. I have elevated liver enzymes...chronically...and an array of different things that goes with liver, gallbladder, and GI issues. Ihave to have my enzymes checked every 6 months. They dont want to do a biopsy yet, because they say that the levels are only slightly elevated. Sometimes they get high and then the come back down to my baseline (which are slightly elevated). I have seen a hepatologist and am being followed by a GI doc and several others...
Well, I passed out Sunday. It was so weird. It's happening again today. I don't know what's going on. I've been so afraid to call my MD. I have been crying on deaf ears that I have not been feeling well...no one has answers. My right side is bothersome..sometimes it hurts, sometimes it's swollen...no one knows what to do.
Should I go to the ER for passing out? I mean really....Should I? I feel like I have been having mini seizures...it's weird..like all my muslces are getting tense for a second and then it stops. What is all of this? I'm so scared.
I AM A 28 YEAR OLD FEMALE WHO HAS HAD AUTOIMMUNE HEPATITIS FOR TE PAST 11 YEARS. I ALSO HAVE DEVELOPED SJROGENS IN TE PAST 5 YEARS. I ALSO SUFFER FROM SOME OF THE EXACT SAME SYMPTOMS THAT EACH OF YOU LADIES HAVE. i HAVE BEEN TAKING PREDNISONE AND IMURAN FOR THE PAST 11 YEARS. SOMETIMES I FEEL THAT MY BODY HAS GOTTEN ADJUSTED TO THE MEDICATION AND IS STARTING TO REJECT IT. THERE ARE TIMES WHEN IM SO TIRED THAT I DONT EVEN HAVE THE ENERGY TH PLAY WITH MY 6 YEAR OLD SON. IT HURTS ME SO MUCH THAT I HAVE TO EXERIENCE THIS, BUT I FELT AS IF I WAS THE ONLY PERSON. I HAVE DONE AL TYPES OF MEDICAL RESEARCH TO TRY AND FIND A CURE OR EVEN GET SOME RELIEF FROM ALL OF THE SIDE EFFECTS THAT ARE CAUSED Y THE MEDICATIONS. I JUST HOPE AND PRAY THAT ONE DAY THAT THEY WILL DEVELOP A CURE FOR THIS PARTICULAR DISEASE . NO ONE REALLY UNDERSTANDS WHAT YOU ARE GOING THROUGH UNLESS THEY SUFFER FROM THIS ILLNESS AS WELL. THERE ISNT VERY MUCH INFORMATION OUT THERE ABOUTT THIS DISORDER EITHER. SO, ALOT OF THE RESEARCH THAT I FIND ITS RESEARCH THAT IVE TAKEN THE TIME OUT TO DISCOVER ON MY OWN TIME . IF THERE ARE THINGS THAT YOU 2 ARE ANYONE OUT THERE CAN COME ACROSS AND THINK THAT IT WILL HELP THEN PLEASE POST IT. I WILL CONTINUE TO KEEP YOU 2 AND ALL THOSSE OUT THERE THAT SUFFER WITH THIS DISEASE IN MY PRAYERS. ITS BEEN A VERY LONG JOURNEY FOR ME AND MY FAMILY.LUV,DEBRA
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