To Drian

[Shanparm]

My son was diagnosed with AIH last year in Feb. of 2007, at age 2. Since his diagnosis he has had ups and downs but is doing well now.  He was originally started on a series of Prednisone and Imuron which lasted approximately 7 months, at that point his bone marrow began failing so we had to find an alternative, they felt the Imuron possibly suppressed him too much and he started attacking his bone marrow.  In Sept of last year he started Cellcept for which he has now taken for over a year with little problems physically, it does cause some emotional changes as well as affecting his appetite and sleeping.  We have now been told that should the Cellcept not work there is now a new alternative of Prograf.  This gives me some hope.  The hardest part of this whole battle comes with feeling like everything is such an experiment and that my son is a guinea pig.  I know medicine as a whole works this way but is very frustrating to watch your son go through self induced side effects adding to initial problems.  I just pray every day for a cure and until the day of a cure, i continue to enjoy every minute of my son.  I would be happy to answer any questions in detail of the road thus far.  Just feel free to write.

[Jody515]

I am so sorry for what you, your family & your son are going thru.  Words can't express how sad I feel for you.  I never thought of such a little one experiencing such horror from this disease.  
How are you all doing with this issue and how is your son doing?  Is he growing & learning as he should from all of this?  I have g-children & can't comprehend how you feel, any family member feels but most of all how your son feels.  please feel free to contact me any time you need to share.  Jody

[drian]

Hi! How is your son doing? Did you try some other remedies than medicines? He shouldn't get off drugs, but maybe with all the kind of tee and homeopat drugs his state may improve. All the best!