Hey..well.. the hematologist said the tests showed 'weak' clotting factor inhibitors,,which hw says means.. they couldn't find anything.. & that what it means is that my liver is not working very well and I NEEEEDD to be on treatment. can't help but wonder if it is really going to help....but, guess I'll just have to do it and see..so, I gues, in a month I'll be whinin and riba ragin with the rest of ya's!! at least I'll be in good company !!
I need NIOXIN for my hair..like 3 weeks ago..!! Guess I will do a quick post above to see if anyone knows the cheapest place to get it!!
talked with someone I know locally today.. she is a year post TX.. did Pegasys.. she is TOTALLY FREE of virus.. and feels wonderful.. she was in BAADDD shape while on Tx..her hubby had to carry her from the bed to the bathroom. and up and down stairs.. She also said the she was the sickest AFTER the midway point and for the rest of the 48 weeks.. she had to do procrit for awhile! she told me to get started on Tx.. and she will be here for me.. she will take me to the doc if I am too sick to drive..
HMMMM>... wonder if my cat ( she is 16 pounds of fur) is up to carrying me or dragging me.. to the bathroom and back??? LOL...
maybe this would be a good time to get another Giant Alaskan Malamute!!
hope you're doing well... later.. C
Good luck at your appt. I am sure the possibility of moving in August is adding extra stress in your decision when to tx. Have you told your doc that you may be moving? Perhaps he/she can refer you to some docs in the area you may be moving to. Yes, you are right......it is very important to feel comfortable with your doc, and to have a good communication and understanding. This was my third tx....my first doc was definitely _________ do not even have the words to describe, but then, I was "ill"informed, not a lot of information was available about hep c tx, I was scared, in shock, etc, etc....I had no computer at the time, but am sure there were probably not many support group sites out there at the time anyway.....(since the medical arena was on a "learn as you go"/experiment ) My first attempt at tx was 1995. It was horrific...I really was a "guinea pig" for my doc, I guess....did not know better....(boy, have I learned a thing or two.....) this was with mono therapy. Anyway, I have a good feeling about this time....I go by: "the third time is a charm"
(but I still have my fingers crossed) :>) have a great day
Awwwww 2 weeks away from the big "drum roll" haha Hey,,,so glad you found your way to Medhelp as you seem like such a fun loving person!! As you can see,,,the meds will give you some days not so great but the humor will carry you through it!! Good Luck!! Thanks for the great links!!
Hey.. nice note, again!! Thanx.. I am 'supposed' to start TX Aug 16.. I have several complications already...... and am not thrilled with my doc.. he just goes ny standard Tx..and wants me to use Scherring,,,I want, insist on,, Roche. I am checking into a couple other docs...
...also, may have to move by end of Aug..and don't want to start Tx and then have to move..so...??? also, things may change when I see the hematologist tomorrow..I have low pllatelets and I'm have a clotting problem that didn't respond to transfusions. so they are looking for the cause of that.
I am glad I found this 'family' because I am certain that I will need all the info, laughs and support I can get! and I hope to be able to provide the same for others. It is , afterall, all about caring and mutual respect... people are people are people are people..we are all different, yet we are all the same..
Happy for you, that you are done with Tx.. How are you doing?? Hope you are feeling well and that the sides have drifted away! must be GREAT to be done.. sweet dreams!
When do you start tx? I am glad you found Medhelp. You are right, this site is great. I do not always post either, but read almost every day when I can. I love the people here, and learn much from everyone. It makes going through tx (as a patient, friend or loved one) easier and allows us to keep a sense that we are "sane" on our worst days...
Just remember that you are allowed to whine here as well. :>) This "Hep Family" is a wonderful group that "picks up our pieces" when we need it. It is the "give/take" of commaraderie/friendship, respect, humour and informative guiding light that has kept me going through out my tx. I ended 48/48 in May....but will be here on and off (mostly on, so far) for a long, long time. Welcome. Peace.
thanx.for the note... you are most welcome... I have been researching for quite awhie and save every site I find helpful..and I am gald to share any info I have.
I am fairly new here and am trying to get a 'feel' for everyone..I probably won't post as much as most do.. but at least I feel comfortable doing so!! well, once I start TX,,that may change!!! LOL.. but I will try not to "whine"...LMAO
this site is great.. good info and very caring and 'colorful' people here.. glad I found it..have a fab night..
I forgot to mention that this site is usually pretty quiet on the weekends, and you may have many more answers starting the new week day, Monday....
Lake::: Hello, and welcome to this site. It looks like Silvermoon gave you some wonderful links to check out. Good luck to you and your friend. Your friend is very lucky to have a friend care this much to help in finding information. I think that having that type of love and caring is a blessing.
Silvermoon::: Great links....thank you. I am always looking for ways to eat healthy.....I need many guidelines in all aspects of my life....
Here is a link that will get you to a site with good info..with any hepatitis, you need to eat to support immune system and protect the liver.. all hep affects the liver..whicj in turn affects other organs.. so try this link>>>
http://www.hepatitisneighborhood.com/content/treatment_options/food_and_nutrition_802.aspx
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you can also just type in hepatitis B, into the search engine and it will pull up lots of good sites.. here are a few more.. may be a duplicate in here... the last 2 have good info on hepatitis and living with hepatitis..
hope these will help your friend.. wish you and your friend the best...
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:Health\HEP C\Diet & Hepatitis C.htm
:\Health\HEP C\HCV-Recipes.htm
:\Health\HEP C\Hepatitis Neighborhood Diet for Liver Disease.htm
:\Health\HEP C\Hep C Vets, Hepatitis Diet.htm
:\Health\HEP C\Hepatitis Neighborhood Nutrition in Liver Disease.htm
:\Health\HEP C\HepC Diet.htm
http://www.liverfoundation.org/db-home/articles
:\Health\HEP C\How to Live with Hepatitis - Hepatitis Foundation International (Health Travel, Hep B, Hep C, Chronic Hep and Cirrhosis).htm