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To Indy

Indiana -
The post about Hep B & saliva in the eye was closed & I really need to clear something up here........

I have both Hep B AND C CHRONICALLY. No, someone does not have to be "very noticably" sick if they are infected w/ Hep B. Many people never feel sick from it.

I have never felt sick a day in my life, and I have both. I even jog 5 miles 3 times a week! Often times people do not get sick upon transmission or after. I am not a carrier - I am chronic, due to my Hep C & not be able to fight it off.

I know that there is not a lot of info on Hep B here, but I do what people to get the correct info. I, too, thought I was fine b/c I was never sick. Found out I've had both for years.........

This is also an OPEN THREAD...
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Avatar universal
Fantastic news, thanks so much for sharing..:)
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hey lady  we definitely have some things to discuss
where did I ever say the pix sent to me had to be in bikinis??  I think that was or is VERY presumptuous of you  I never specified them to be bikini  shots If and only IF; I were to specify specific attire to any photos to be sent to me THEY definitely absolutely without a question wuold have to be au natural  like the one you sent!!!! Iam sorry to remind you of this, of course : but what can a fella do ,but try to bare the situation ...
there now that this misunderstanding has been undressed  I respectfully rerturn to our sponsors program......Daryl
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DARN I WISH SOMEONE WOULD HAVE TOLD ME BEFORE I SENT HIM THAT PICTURE...HE LIKED THE CAT SUIT TOO...
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here's one for your collection of jokes....



A minister gave a talk to the Lion's Club on sex. When he got home he couldn't tell his wife that he had spoken on sex, so he said he had discussed horseback riding with the members.

A few days later, she ran into some men at the shopping center and they complimented her on the speech her husband had made. She said, "Yes, I heard. I was surprised about the subject matter, as he's only tried it twice. The first time he got so sore he could hardly walk, and the second time he fell off."



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mythoughts,

i am so sorry for all the hardships you are going through...it can make anyone crabby...i too have had that flip flop sleep schedual at times and it's enough to drive you crazy...isn't it?  

i guess i personally thought you sounded upset at indi...it's so hard to communicate accuratly on these boards...things can be taken the wrong way alot...the same sentence can be read differently then we intend them to sound...please don't worry about this...you will always be accepted here and we were just being protective mommies to indi...who always holds his own anyway...

love and peace, sandi

HI CHEV,the kitties are adorable as usual but still sneezing...Simba has it the worse and fuzzy...the antibiotics are keeping the bacterial infections at bay...but,the upper resperatory virus is still active...all the kitties are now sneezing...too bad it's serious otherwise it would be cute...they have not come down with any secondary bacterial infections yet and are still on antibiotics to prevent bacterial attacks to nose,eyes,throught,lungs...so that has been a blessing...and there still acting and looking very healthy...i just gotta keep them healthy and eating so there immune systems are as strong as possible...but, it's like
hep b i think...when you get worn down or stressed etc...it will come right back...and it always stays with you...

i've been doing some reasearch on the disease and believe it or not some vets suggest for these cats some of the same things as they suggest for our virus...

the big things that keep popping up in these articles is
l-lysine and oral interferon....so i called my dr and he ordered me some interferon for my kitties...they will need 30 ml orally daily of interferon,to fight the virus whenever it shows up, i guess it can even be diluted in saline eye drops to actually help directly on site of problem....ie...nose and eyes...

also 250 to 500 mls of l-lysine daily...a suppliment and an immune helper bought in stores  for humans...(just make sure it has no preservatives or other bad stuff in it...if not sure ask pharmisist)...

i take l-lysine because of an article i once read on it from a reputable source that it helps the immune system...unfortunatly i didn't save it...

well apparently it also does more than help immune system too for the upper respretory virus in cats.... the virus,as far as i understand it, eats up the lysine instead of the chemical in the cat that causes damage to the cat...and thus the l-lysine inhibits the replication of the virus,and for those with mouth sores from tx i've read it could help....the article said these two (interferon and l-lysine work best together....

so the kitties are to be on combo tx...at least the two sicker ones...

HERE'S SOME INTERESTING READING;

check out this article....this one is about "human" immune system suppliments...(not intended to cure hep c) but only "possibly" aid in immune system strenght...

http://www.findhealer.com/glossary/L.php3



these below are about cat "upper respratory virus",also called herpsivirus... treatments also including l-lysine and interferon...

http://www.marvistavet.com/html/herpes_viral_conjunctivitis.html

the info is toward the bottom of this article and says;

   Oral Interferon
This inexpensive oral solution uses a natural immune system modulator to suppress herpesvirus symptoms. Though interferon use has not been scientifically tested {IN CATS}, it has certainly been in use for many years as something that seems to help shorten the course of infection. In tissue culture, herpes infected cells are inhibited much more easily by anti-viral drugs if they are exposed concurrently to interferon. Interferon has no side effects potential at the doses used {IN CATS} and it appears there is no reason not to try it as it may be helpful.
  
   Oral Lysine
Herpesviruses as a group are highly dependent on the presence of an amino acid called
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Avatar universal
Mythoughts.......
I thought that your original title post to start this thread was entirely appropriate and nicely put. I saw no attempt at anything personal but rather an effort to put out accurate information. That is what this place is for. A good debate and/or clarification of information is what we all like to read.

Chevy & LvdByGod......
Geeze, thank you ladies. I am blushing.....WAIT, Guys don't blush....it's just a bad Sunburn...I Swear!!
Don't go erecting any statues to me just yet though. I am just an old guy here who tried to help people get through all this **** with their sanity. I make mistakes....like anyone else. I talk a lot about a lot of things. I am just very opinionated. That opens me up to a lot of criticism from all kinds of people. Thats just a hazard we face when we speak about anything. "Someone" will always be offended by almost anything we say if we are giving opinions. So What? That doesn't mean that everyone is or that even most folks are and certainly doesn't mean that we should clam up. None of us are Doctors. We all just try tp put out information that we honestly believe to be true in order to help others here. There are enough people here that if something is wrong someone will see that and call us on it. We then clarify, or realize the mistake,apologize, and learn from the information. It's all for the benefit of everyone here that we talk about any of this stuff.
Play??...Sure we play sometimes. It's good for the immune system to laugh and play around. Its also a direct natural help against the depression. Laughter releases chemicals in the brain that directly combat the depressive brain chemicals caused by the meds. It works....and Very well too. As with anything else, the play sometimes gets a bit out of hand. And some people can't stand to see any play or happiness at all when they are facing something so depressing as a potentially fatal disease. Some are offended by whatever type of play we engage in. Again...So What? We can never please everybody. Jokes about sex,maxicans,jews,englishmen,Frenchmen,Chinese,Eskimos, and even Badgers.....and anything else you can think of,all will always upset someone. Funny is in the eye of the reader....or not. That doesn't mean we can never tell a joke or be funny........

   Sister Mary burst into the office of the principal of Our Lady of Perpetual Motion parochial school in an advanced state of agitation.
"Father!" she cried, "just wait until you hear this!"

The priest led the sister to a chair, and said, " Now just calm down and tell me what has you so excited?" "Well, father" the nun began, "I was just walking down the hall to the chapel and I heard some of the older boys wagering money!"

"A serious infraction, indeed!" said the priest.

"But that's not what has me so excited, father" replied the nun, " it was WHAT they were wagering ON! They had wagered on a contest to see who could urinate the highest on the wall!!"

"What an incredible wager!" exclaimed the priest, "What did you do?"

"Well, I hit the ceiling, father."

"How much did you win?"  
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Thank you so much for all of your kind regards. This is a good place, God bless you.

Pete
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Lucky,,,Great News!! I'm so happy for you!! Please continue to come here and finish cheering us long timers on,,,,haha Maybe the good Luck will rub off on us!!  God Bless!

Califia,,,,LOL You are funny! You have done alot of research and yes,,,maybe wasted in one direction but I bet ya,,,Someone was helped that day!

MyThoughts,,,I do know when first learning I had hep c,,,I made my drs appointment first,,,,Most important to get the ball rolling and see exactly where you stand! After finding all my information and knowing where I stood,,,I came on internet to seek out support and to get feed back on my labs and drs ways. You have claimed since July,,,You are scared which is understandable but you really do need to go to the dr to get the answers you are seeking,,,Good Luck to you and your husband!
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Lucky-you are-cause of effort you made. I know from personal experiance you will enjoy recovery from tx. Enjoy!
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I wish you peace, for a long time, and also refresh your mind and body from the whole experiance of haveing hep-C, and the tx.

     I wish you well.


          TonyZ
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My I offer my deepest CONGRATULATIONS!!! to you. That's great news and very welcome for a newby to hear. Here'e wishing you all the best and a long, happy and prosperous life.
Peace - Gulfcoast
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YEAAASSSS that is great news !

Mr Billy is on his way back from Louisiana and his 1st shot is waiting so sayyy some prayers.
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Aw, shucks.  (Back at ya.)
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Ok....Lets get a little more "In-depth"  here.
Hep B is a VERY confusing disease for most average folks to understand. Even the professionals have problems sometimes with diagnosis and deciphering the test results. So we are not gonna be able to explain it totally to anyone except in VERY general terms.
"Acute" phase is when you first get it. 70% of folks are noticeably sick. 30% are not.
About 1 in 20 people will be infected with HBV sometime during their lifetime.
90-95% of folks will fight off the disease on their own.
After that, the rest will be chronic carriers of the disease.
Some carriers are not sick at all and have no viral replication going on at all. They are simply carriers.
Some carriers DO have viral replication going on and so also have liver damage happening. These folks need to be treated.
There is currently no cure for HBV. The treatment merely holds the disease at bay at best.
Hbv is much more contagious than HCV. It can be transmitted sexually as well as casually sometimes. Hbv is found in most body fluids. How infectious one is depends on the results of the various blood tests.

I think everyone should be vaccinated against HBV.....no matter what.
But that poor soul is not gonna get it from some spit in his eye. I would be very hard pressed to believe that.

Here are a buncha links to info on Hbv.......
http://www.globalserve.net/~harlequin/HBV/
http://www.cdc.gov/ncidod/diseases/hepatitis/b/
http://qa.hopkins-hepc.org/forum/view_question.html?section_id=121&category_id=95&id=5607
http://qa.hopkins-hepc.org/forum/search_result.html?section_id=121&keywords=hepatitis+b

Test explinations...
http://www.dpcweb.com/medical/infectiousdisease/hepatitus_b_us.html

Btw....my wife is an Hbv carrier and has been for 30 years. She is not replicating the virus so has no need to treat. We have been married for 27 years and have 3 kids. None of the rest of us have it.
Is everyone sufficiently confused now??
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Congarts Pete!  Grab a seat on the SVR bus with Tom Rudgren
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I can't figure out how a person can have a chronic virus presently but not be a carrier? when the bats go in the belfree they are there to stay chronicly right?...i then have to carry them around for a long time until a cure is found...

"mythoughts", or anyone have info on this?...just curious...maybe the virus can only be shed while your "actively sick"...but then you would still be a carrier just not always able to infect others...i'm talk'n hep b here of cource...anyone have ideas?

oh, i do gotta say....i think indi is a Big Boy and can handle the critasism (sp), but i think there could have been a nicer way to discuss the differences of opinion...it sure sounded like you were being nasty...and to such a very sweet person...how do you do it?

i haven't been here alot since computer probs and finding out the tx isn't working...i've been going crazy around here...so there's probably more to this than meets the eye...???

~~~~~~~<><~~~~~~~~~~~<><~~~~~~~~~~~~~~~~<><~~~~~~~~~~<><~~~~~~~

Indi,i just gotta say your top notch, the best, faithful, trustworthy, kind, funny,and have always given us well researched info for years...and you have cared deeply for us...even long after you cleared you continue to come and cheer us on....your preparing a bus for us :O)....now that is a faithful friend!!!...

indi, i personally want to thank you and say that i couldn't have made it through all this without you...it's almost been 2 years since i started here, and you have always been a constant caring person...always going above the call of duty to help others understand this disease,and making yourself personally available for off the record chats from anyone...thanks ever so much...me luvs you!!!

p.s. by the way could us "nonresponders" have a compartment off to the back of the bus? ya, will sit by the washroom...we would'nt want to miss out on celebrating everyones victory... or better we could just hang out on the roof, and tie our lawn chairs to the top,or possibly even be dragged behind on ropes,we'll each bring our own matrises to ride on...just to be with you guys on that glorious day...  o.k. we'll leave our needles at home that day...we wouldn't want to stick anyone...


~~<><~~~~~~~~~<><~~~~~~~~~~~<><~~~~~~~~~~~<><~~~~~~~~~~<><~~~~~

p.s.mythoughts, none of us here claim to be perfect and never make mistakes,i bet, even your dr screws up occasionally,(although ""indi"" is as close as anyone can get to being perfect on this side of the pearly gates... so if someone ever does make a mistake, (and i'm not saying indi did...i really have no clue)...but, don't you think it's a good idea to be kind to that person and very gently, in the spirit of love, pass on your opinion?...otherwise some of us,not indi of cource, will be afraid to say anything to one another here...

ps. i only say this in a "spirit of love" to you...just some of "my thoughts"...hee hee,(i love puns...puns intended :O) heeeooowww...yaw...

ya all,i know i'm loopy...

stop it! yikes! scarey! getaway! ...boo boo!!! they don't scare easily...the bats are really getting to me now...if they would only stay in the belfree...my belfree is guarenteed empty...they should set up house or leave...this in and out stuff is crazy!!!

that has been a problem lately and also trying to type while honey pumkin is sucking on my ears...the bats must hate that..."""ohhh they're sore"""... my ears that is. the bats are probably fine, able to quickly duck in when honeypumkin is approaching...(someone please post me the articles on this)...why does he have to be so darn sweet ????he looks at me with those cute kitty eyes and leaps to my ears.... i tried the pacifier and it was rejected as a replacement ear...the shower cap is ok...but it's itchy and the pacifier didn't stay in place even with the nipple being taped to it...now i might have to go to the holloween store to buy some dr spock ears...the side affects of tx are taxing...anyone else having a problem with thier ears? i wonder what everyone else is doing while they type?
anyone have bats or cats?

your friend, sandi

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Avatar universal
I will try to address the comments made to me, but I'm not sure that I can remember them all.

First, to Califa. I've always valued your replies and have appreciated being connected to someone who is local. I really am sorry if I never thanked you. I really thought that I did, but perhaps my manners got away from me.

It is hard to get across all the aspects of one's life online, so I will try to correct anything that came across as strange........I am self employed. My husband & I are landlords & own a contruction company. For 4 out of the past 5yrs we have been killing outselves doing physical labor - often 10hrs a day, 7 days/week. After we finished our last project (1yr ago), we took some much needed time off.

At first, we really enjoyed the freedom to sleep in. So much, in fact, that we found ourselves sleeping all day. It became a pattern where we would sleep all day & them stay up all night. Often we would have things to do in the day, and in an attempt to get back to normal, we would then sleep at night so we could get up early on those days (on top of sleeping that whole day, as well).

The sleeping pattern started screwing with my body. I became very depressed and felt tired all the time. I thought that it was because it was seasonally due to the winter, but winter passed. Then I thought I was depressed b/c of my lack of structure, and probably b/c too much sleeping will actually make you tired. I had been jogging 5 miles, 7 days a week for 4yrs, but I started doing it intermittenly - maybe 3 days a week, then 2 days/week, etc.....

When I was dx about a month ago, I started doing research online. I found out that many people with Hepatitis are tired. I immediately assumed that was the reason that my husband & I were so tired and depressed - thinking that everything made sense. Other than the depression & tiredness, I had been feeling perfectly healthy. I had noticed some hair thinning, but 3 visits to gynocologists & 4 to doctors helped me to realize that it is 'probably' due to a hormone change b/c of my MMT (common).

After dx 1mth ago, I was (and still am) terrified. I assume d the worst. I spiraled into a month long frenzy of death & despair. Finally i decided to get over it. I have been working this month, as I'm also doing advocacy work for MMT/OBOT & have a meeting with the SF mayor next week. This motivated me to jog. All of this has made me feel great physically. Now I'm wondering if being tired had nothing to do with my Heps & more to do with just too much sleeping & a lack of structure.

Both my husband & I put off going to the doctor for several reasons. First, OASIS only has meetings on 2 days a week, and only at 12pm. We have a vacancy in one of our rental units this month & a job this month that requires us to work every day. We don't have the money to not work right now, and we don't have insurance to go elsewhere than OASIS. I am also a big, fat baby who is terrified. It takes 3hrs to draw blood if I'm lucky & I'm scared. Point blank. I also don't drive and although I know it's an excuse b/c I can take the bus, I'm waiting for my husband to come with me with the car.

I am actually glad that I have waited this 1st month, as I needed to realize that even with Hep B & C, I am not going to die right away & life will still go on as usual. This was a decision that was not made lightly - between me and my MMT clinic doctor & counselor. I have been in contact with the doctor at OASIS who says that I have time to research before making any decisions. But you're all right - I really need to get off my ass & do something.

I grew up with no family other than a mother who died of Cancer in my care when I was 13. I have PTSD b/c of this, so my medical dx has really screwed with my head. I am working on this as fast as I can, while trying to maintain my 5yr sobriety. It is a delicate balance - for me. Maybe you all think I'm a loser, and if so, so be it.

Regarding my post, I said that I am chronic Hep B/C meaning that I was not able to clear either the B or C & am actively infected with both. From what I understand of B - which is limited - if you do clear the B, you can still passi to n but it will not damage your liver. If you don't clear the B you can pass it on & it is damaging your liver. Ever since I found out about my Heps, I've noticed the very slightest twinge in my upper, right quad, but that could be mental (or not).

I'm sorry that I never explained that I have been jogging again & feeling alot more rested lately. Maybe the tiredness is my Hep. Who knows. I do know that for years people told me that I didn't have Hepatitis b/c I was so obviously healthy. That I would 'know' if I had B or C. Well, I didn't 'know' & now I find out that I have both. I just wanted to get my point across that there are lots of people with B, like C, who never get tested b/c they feel fine & people say you must be sick if you have it. If people didn't tell me that I may have gotten tested years ago. Just wanted to help, and am sorry if I didn't.
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I humbly acccept your apology, feel like a jerk for not having given you the benefit of the doubt, and just want you to know how much I respect your sincerity and candor.   Thanks for all the clarification--you really went above and beyond the call of duty with that.   It's so good to hear you guys are feeling better.
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Mythoughts said: "I am not a carrier - I am chronic, due to my Hep C & not be able to fight it off."

I'm confused.  It was my thinking that as long as we had the virus, we were carriers.  Did you mean you kicked the B, but not the C?  

~RR
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It is awkward responding to you after this celebration of Pete's good news, which I'd rather be contributing to.   But there is something I've wanted to say to you for a long time.  You have appeared and reappeared here with some worrisome accounts of  the trouble you and your partner are having, and I, like the many other compassionate people on this list, have become alarmed on your behalf.  On at least two occasions I have responded at great length, the first time providing the names of books and URL'S and clinic addresses and phone numbers--quite time consuming, I might add.   I have limited energy right now as I am on treatment,  and this time investment to you is a gift  which is motivated by real concern.  You have never even bothered to acknowledge the information or counsel--from me, or anyone else.

Today you even announce that you " have never felt sick a day in my life, and I have both [B & C]. I even jog 5 miles 3 times a week!"

This description is a far cry from others you have offered here in the past, in which you have portrayed yourself as someone so sick with hepatitis that you were spending 12 hours a day in bed.

We may be invisible to one another in cyberspace, but the usual rules of decent human conduct still pertain.   Get my drift?
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Great news! Congratulations. Mike
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That is <b>WONDERFUL NEWS!!! CONGRATULATIONS!!!</b>

Now, on to post-tx recovery-ville! And off to SVR-ville!!!


Best to you as you continue forward.


TnHepGuy
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I finished my Tx, and my PCR was negative!!!!!!!!!! I am soooooo Happy! 4,000,000 VL to UNDETECTABLE!!!!


God has given us a cure for HCV, and it is called Interferon/Ribavirin Combination Therapy.

Thanks to everyone for your help, especially Chevy, Honey, Donl, Revenire, TnHepGuy and many, many others.Brain fog still here, can't remember much in the way of names today. Looking forward to feeling better, I hope that all can share in becoming SVR.


Love to All,

Pete
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They asked the same question at "The Body"

http://www.thebody.com/Forums/AIDS/Hepatitis/Current/Q159276.html
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