Aa
Very very worried
Could one of the regulars maybe answer this as asap? I am so very very worried. This morning I got a phone call from my liver specialist concerning my last liver results which were all but zero HBsAG 0.1 He called and asked me to go in and see him. He said that I was still positive and he wanted to give me something to boost my immune system to maybe clear it? Is this possible? I am very upset with this call. It was totally out of the blue. Over the last 7 months or so my immune system has been working really well at clearing this virus out on its own and now it seems like they are saying it appears to be chronic???? My last post on this gave all my results in detail. Can anyone tell me what they think. I am waiting for the GP to call back and let me know exactly what came back resultswise on the last blood test. But its not looking good. Is maybe the doc talking about having to boost the immunity thing. Can a HBV carrier have difficultly simply with building immunity? Would this still make them positive?
Britgirl477
Britgirl477
I had read some of your previous posts and must say that your situation is a little unique. 8 months in the acute stage and soooooo very close to clearing it.
Hope you get good news soon….We’re all pulling for ya.
Hope you get good news soon….We’re all pulling for ya.
That's really great to hear that you will get rid of the HCV. I am so very happy to hear that. It will make things much easier for you will it not? I am presently waiting to hear if I can clear my HBV but it aint looking good so far. Its been a bit of a weird result this time around as my IGM is still present after 8months!!! Doc thinks its coz of my diabetes. That's why I am on the TNF, so see if it makes a difference to immune system. I didn't realise that if drugs could wipe it out then the antibodies would follow? I am confused by this. I mean if the doc is trying to do this with me (my HBsAg is 0.6 at moment before meds) then why not try this with EVERYONE? I get so very confused by this virus at times and so very very angry that it like your situation came from a hospital!!!!!
Brit
Brit
Yep….I had both but I’m not sure if I contracted both of them at the same time or not. I may have had HBV since birth (adopted) and I can only guess that I’ve had HCV for 20 years or so. At my old job, I had a couple of accidental needle sticks and had to clean up blood from a miscarriage without any gloves. Long story.
As far as the HCV goes, I should be cured of that one. I had the easiest genotype to treat (2b). I’ll know for sure in about 5 months if I have been cured of HCV but so far everything is looking good for me being cured of it. The HBV may be a lifelong thing.
As far as the HCV goes, I should be cured of that one. I had the easiest genotype to treat (2b). I’ll know for sure in about 5 months if I have been cured of HCV but so far everything is looking good for me being cured of it. The HBV may be a lifelong thing.
So you are both HBV and HCV? Were u infected at same time w2ith both? It sounds like you are doing really well tho as the whole VL thing is half the battle isn't it. How long have you had HBV and HCV? Are you chronic for both?
Brit
Brit
I was taking Pegylated Interferon injections before starting TDF and my viral load (HBV DNA) was UND when I started TDF, but my latest lab result after 1 month of TDF shows that my DNA is still UND so it looks like it is doing what it is supposed to do. Of course the IFN is what did most of the work in my case and got me to UND. Here is a post about my first month of TDF and results:
http://www.medhelp.org/posts/Hepatitis-B/Update-and-my-first-month-of-Tenofovir/show/923544
http://www.medhelp.org/posts/Hepatitis-B/Update-and-my-first-month-of-Tenofovir/show/923544
Is it working well for you? Have u noticed any good results in just the 5 weeks? Are u on it for good?
Brit
Brit
Hopefully the next time you see black on your eyes, it will just be from your mascara running as you cry tears of joy after finding out you cleared the virus.
I’m doing pretty good on the Tenofovir. I have had some issues with off and on nausea, but I’m not sure if I can blame it on the TDF yet….only been on it for a little over 5 weeks.
yeah you could be right but I am sure they began prior to my turning yellow and now seem to be getting very much less. At any rate I am getting rid of them whatever the reason and am getting more beautiful by the day;) lol How are you doing on ur TNF? I just started on that a week ago.
Brit
Brit
I have not personally had the shadows around my eyes or heard of that being a symptom, but I guess it's possible. Maybe others have heard of this happening.
Could be just from stress and worry over trying to clear an acute infection.
Could be just from stress and worry over trying to clear an acute infection.
just a quick qn. I am wondering if anyone can tell me if they got black shadows around their eyes with HBV? It's just that I developed these shadows at around the time I got infected with HBV and since going on Tenofovir, it looks like they are getting less black. Am I imagining things or is it possible that this has really all happened with HBV? I understand that dark shadows can be a symptom of many other things.
Brit
Brit
awwwww you are such a cutie too...answering me back coz u know how worried I am. I really don't know what I would do without this forum! Thanks for your explanation it has reassured me. I have not had huge flare up but have some painful joints again and earache which were the symptoms I remember most of all just prior to going yellow last summer. Hey you guys, I bought cherry juice today. Have you all heard about it. I can give you all the website. It apparantly is superb for boosting immune system. It was in the press over here a few years back as being wonderful. My huge bottle arrrived today. One 30ml glass is equivalent of summit like 25 pieces of fruit. I am gonna drink it every day. It tastes alright too. It also helps with muscular pain and is generally good for fatigue and sleep probs. Go buy now!!!!!!!! Even if it's a con, we lose nowt.
Brit
Brit
brit
not sure about Tenofovir . not familiar with it or what it does as baraclude is the only pill i am taking and know more about but like steven said which makes sense ont only to hepB but any condition or illness. any time you take meds to controol an illness specially viruses you should expect a flare up..virus feels danger coming so its acting up against it with everything it coulnt mount up to and that case a flare up..two sides putting up a good fight against one another but ofcourse your immune system will adjust and hopefully in no time we hear good news from you
good luck
not sure about Tenofovir . not familiar with it or what it does as baraclude is the only pill i am taking and know more about but like steven said which makes sense ont only to hepB but any condition or illness. any time you take meds to controol an illness specially viruses you should expect a flare up..virus feels danger coming so its acting up against it with everything it coulnt mount up to and that case a flare up..two sides putting up a good fight against one another but ofcourse your immune system will adjust and hopefully in no time we hear good news from you
good luck
YET AGAIN, you always answer me,,,,thanks. Yeah I did wonder about the flare up maybe being a good thing. But then again I could be imagining all this as I am pretty stressed at the moment. Either way it's not drastic then. Spoke to a nurse the other day, who said that she thought I could still maybe clear this as the tabs would prolly kick out what's left.....geeez here's hoping. So are you on Tenefovir too then Steve?
Brit
Brit
(Knock on wood)...I've never experienced any side effects on Tenofovir (TDF). Could there be some effects of TDF and diabetes (and its meds), I don't know but I haven't come any readings on it. Best to ask your prescribing doctor.
Also in your case, a flare up may not be a bad thing. It means that you immune system is recognizing the virus and attacking the virus.
Also in your case, a flare up may not be a bad thing. It means that you immune system is recognizing the virus and attacking the virus.
Can anyone tell me are there any side effects that I could get after having taken this Tenefovir for 1 week? I have noticed my blood sugars are very high this morning and I have not eaten much at all. StevenNyer or bberry could this be a side effect of the Tenefovir or is at sign of a flare up in my condition? I have also noticed urine slightly darker and possibly even slightly clay -like 'toilet stuff'. Any clues? I have been on pills since only last Thursday. I had read somewhere that when you start on pills they can cause a slight worsening of condition before it improves. Is this true? Yet again bberry, I am worried and not being the positive person that you thought I had begun the other day. I am very worried that these things are signalling a move to chronic and flare up. But then again maybe they have just begun since the pills. Any advice be much appreciated.
Britgirl477
Britgirl477
dohhh tell me bberry does HBV affect intelligence levels???? Coz I am not getting the last post? Plz explain. Do you mean 'whatever happens in Vegas, stays in Vegas.' Coz I have heard that before lol.
Britgirl477
Britgirl477
ssshhhhhhhhhhhhhhhhhhhhhhhhhh
what happens in vegas ...............
hope britgirl catches on the expression/tv commerical
what happens in vegas ...............
hope britgirl catches on the expression/tv commerical
Dear bberry and StevenNyer,
I only have the labs that were taken in January. This time I never got a print out but he did go thro the whole series of tests with me on his computer since I was admitted to hospital last summer.
As I am a worrier by nature I asked after every comment 'and is this bad, does it indicate me moving on to be chronic?' Each time he said no. Everything has pretty much stayed the same as the last results taken in January. The only one that has changed is this HBsAg one in that it has increased slightly. But he has totally NO answer for this IgM still being there almost 7 months on. The only answer he has is that I am a Diabetic Type 1 for last 24 years.
He has put me on Tenofovir and said I could be on this for up to a year!!!??? and that he wouldn't expect me to clear in anything less than 3 months. I started the tabs yesterday geez they are the size of submarines!!!! And there was me thinking I had a large gob! And have been on a day of selenium, zinc, vitamin C, E and A boosting regime...ummmm am fed up already. Just about to muck into 2 large oranges!
I was a bit concerned that I was being put on Tenefovir. Is this not a difficult drug to come off? I mean does it not sometimes cause further damage to liver? He said that if I was to fail to clear the virus and be immune then the next 'chat' we would need to have would be about whether or not to stay on the drugs or not. I am not sure what he meant by this.
bberry I haven't yet got any Anti-Hbs, but have the other antibodies there - is it core antibodies and anti-HBe antigen? I am praying that I get rid of this HBsAg and all the rest falls into place. But my last labs that I got from January are on my page...altho' you've seen them before as you commented on them for me a few weeks back bberry.
StevenNyer I will allow you to use my Bart remark at anytime! In fact it's yours to keep. And as for YOU bberry huh a business trip to Las Vegas....who are you kidding? Hmmm contrary to what you might think about us Scots I DON'T zip up the back!!!
I will however be sure to harrass my GP for the next set of results which specialist took yesterday. altho the specialist did say that he did not expect to see anything different this time around. And yes StevenNYer my HBV DNA was in the millions when I was first diagnosed. Now 14000. Anyone know how much HBVDNA can jump down per week/month on average?
Well I am off to watch the rest of 'The Greatest Story Every Told'
Britgirl477
Happy Easter from Scotland.
I only have the labs that were taken in January. This time I never got a print out but he did go thro the whole series of tests with me on his computer since I was admitted to hospital last summer.
As I am a worrier by nature I asked after every comment 'and is this bad, does it indicate me moving on to be chronic?' Each time he said no. Everything has pretty much stayed the same as the last results taken in January. The only one that has changed is this HBsAg one in that it has increased slightly. But he has totally NO answer for this IgM still being there almost 7 months on. The only answer he has is that I am a Diabetic Type 1 for last 24 years.
He has put me on Tenofovir and said I could be on this for up to a year!!!??? and that he wouldn't expect me to clear in anything less than 3 months. I started the tabs yesterday geez they are the size of submarines!!!! And there was me thinking I had a large gob! And have been on a day of selenium, zinc, vitamin C, E and A boosting regime...ummmm am fed up already. Just about to muck into 2 large oranges!
I was a bit concerned that I was being put on Tenefovir. Is this not a difficult drug to come off? I mean does it not sometimes cause further damage to liver? He said that if I was to fail to clear the virus and be immune then the next 'chat' we would need to have would be about whether or not to stay on the drugs or not. I am not sure what he meant by this.
bberry I haven't yet got any Anti-Hbs, but have the other antibodies there - is it core antibodies and anti-HBe antigen? I am praying that I get rid of this HBsAg and all the rest falls into place. But my last labs that I got from January are on my page...altho' you've seen them before as you commented on them for me a few weeks back bberry.
StevenNyer I will allow you to use my Bart remark at anytime! In fact it's yours to keep. And as for YOU bberry huh a business trip to Las Vegas....who are you kidding? Hmmm contrary to what you might think about us Scots I DON'T zip up the back!!!
I will however be sure to harrass my GP for the next set of results which specialist took yesterday. altho the specialist did say that he did not expect to see anything different this time around. And yes StevenNYer my HBV DNA was in the millions when I was first diagnosed. Now 14000. Anyone know how much HBVDNA can jump down per week/month on average?
Well I am off to watch the rest of 'The Greatest Story Every Told'
Britgirl477
Happy Easter from Scotland.
Britgirl477:
"....you are in fact really some sort of millionaire who does not work but instead has chosen just to use his time doing good and responding to folk like me."
Okay....okay....who let the cat out of the bag. Yes indeed, I am the Bruce Wayne of HBV. Please keep this under wrap people...please. Thank you.
As for the DNA (viral load) question, yes it could be in the millions, even in the hundreds of millions. I'm sure your DNA was much much higher when you were Bart Simpson yellow (I like that and will certainly steal that for future reference :)
Now it has been some months since the onset and most do clear in a few months in with the usual lab markers (HBsAg - , HBsAb +, and UND DNA). But for some reason, the virus is holding some ground with + DNA. The higher the DNA the more adaptive power the virus has so it's important to get it UND, so I think treatment is a good idea. Given your lowe DNA, monotherapy with Tenofovir will certainly get you UND. I'll be shocked if you don't reach UND DNA after even 2 weeks with Tenofovir. This way you give your immune system some help and hopefully you will fully clear and be immune.
Now, I have to disagree with your doctor saying that diabetes is worse than HepB. It really depends on the severity of each disease. It like comparing, as they say, apples and oranges. If you get HepB as an adult and become chronic, you are at low risk of something bad happening. Unfortuately many of us were infected at birth / young age, then if unmonitored, it could be bad, possible cirrohsis / cancer bad.
Bberry:
Vegas and business huh.....what kind of business....hahahaha
"....you are in fact really some sort of millionaire who does not work but instead has chosen just to use his time doing good and responding to folk like me."
Okay....okay....who let the cat out of the bag. Yes indeed, I am the Bruce Wayne of HBV. Please keep this under wrap people...please. Thank you.
As for the DNA (viral load) question, yes it could be in the millions, even in the hundreds of millions. I'm sure your DNA was much much higher when you were Bart Simpson yellow (I like that and will certainly steal that for future reference :)
Now it has been some months since the onset and most do clear in a few months in with the usual lab markers (HBsAg - , HBsAb +, and UND DNA). But for some reason, the virus is holding some ground with + DNA. The higher the DNA the more adaptive power the virus has so it's important to get it UND, so I think treatment is a good idea. Given your lowe DNA, monotherapy with Tenofovir will certainly get you UND. I'll be shocked if you don't reach UND DNA after even 2 weeks with Tenofovir. This way you give your immune system some help and hopefully you will fully clear and be immune.
Now, I have to disagree with your doctor saying that diabetes is worse than HepB. It really depends on the severity of each disease. It like comparing, as they say, apples and oranges. If you get HepB as an adult and become chronic, you are at low risk of something bad happening. Unfortuately many of us were infected at birth / young age, then if unmonitored, it could be bad, possible cirrohsis / cancer bad.
Bberry:
Vegas and business huh.....what kind of business....hahahaha
britgirl
you said : "So I am now starting on Tenefovir" ?
this may need a second opinion.. usually enough rest alone takes care of the hepB virus when in clearing stages.. not sure why your doctor would start treatment if you were acute . usually they tell you to go home, rest up, take car eof your diet and let your body do the rest
hmmm, im not sure about starting treatment but maybe someone else on here has a different opinion. cajim or steven might want to comment on this.
i was in Las Vegas for a short business trip. YES Vagas and business together can you believe it ..well did manage to fit in a Criss Angel's show which kinda sucked.. was more of an entertaining show than an actual magic show. nothing like what he does on TV.
then back home to rest for two days only to hop back on with the misses and two young babies to disney world . well, that was ok i think the weather helped alot being cool and sunny at the same time so it wasnt bad bad bad.. i have a 5 and 2 year olds and i know they had fun .
Britgirl477, you wanna share with us what your last lab work said with you developing antibodies , please !!
you said : "So I am now starting on Tenefovir" ?
this may need a second opinion.. usually enough rest alone takes care of the hepB virus when in clearing stages.. not sure why your doctor would start treatment if you were acute . usually they tell you to go home, rest up, take car eof your diet and let your body do the rest
hmmm, im not sure about starting treatment but maybe someone else on here has a different opinion. cajim or steven might want to comment on this.
i was in Las Vegas for a short business trip. YES Vagas and business together can you believe it ..well did manage to fit in a Criss Angel's show which kinda sucked.. was more of an entertaining show than an actual magic show. nothing like what he does on TV.
then back home to rest for two days only to hop back on with the misses and two young babies to disney world . well, that was ok i think the weather helped alot being cool and sunny at the same time so it wasnt bad bad bad.. i have a 5 and 2 year olds and i know they had fun .
Britgirl477, you wanna share with us what your last lab work said with you developing antibodies , please !!
where were you away to? Was it somewhere sunny and peaceful? Hope you had lovely trip.
Britgirl477
Britgirl477
Hi there,
Hey thanks for your recent post bberry. I have just got back in from seeing my liver specialist. We chatted for a long time and he says that he is not saying that I am chronic YET. He said he was quite suprised by my blood results and that he has only ever seen a similar case to mine ONCE in all his years in liver work. It was with a man in his 40s who was Type 1 diabetic. Apparantly this guy didnt quite clear all HBV and got down a really low level like me but it just stopped towards the end and didnt budge. He said he gave this guy a booster and it took about a year but he eventually cleared the virus and developed antibodies on his own. WELL the good news (if that's at all good) is that I am also Type 1 diabetes. So my doc is suggesting that there is maybe some sort of minor problem with the diabetic immune system and that it needs the last shove to be able to finally conquer the virus. It appears that my HBsAG is 0.6, my IgG is still there along with my IgM. He said he was very suprised to see that the IgM was still there as this is usually only present in first few weeks and then disappears. But the fact that it was still there and had not disappeared leaving me with HBsAG and IgG only was good, as HBsAG and IgG alone are usually chronic??? Is this right? He also said that the 6 month cut off is fine and good in normal healthy person but that I am not classed as that because of my diabetes. My HB e antigen is negative and the antibody to it is positive which is apparantly very good too. Finally I asked about the HBV DNA as StevenNyer stated and this is 14000, which he says is not that high as I was in the millions to begin with??? Is that possible to be in milions for HBV DNA? He is also confident that the initial presentation of me at hospital was one that totally fits in with non chronic condition as I was very jaundiced and had yellow eyes (Bart Simpsonish) and was nauseaus and upper quadrant pain. So I am now starting on Tenefovir. This he thinks might finish the job and help me clear out last bits of virus. I have been to shops and bought today many immune boosting foods and nuts and berries etc. I am gonna cut fat outta this diet of mine and keep my alcohol ban on for yet another year. I was very distressed when I met with the doc but he was quite matter of fact as in, 'Yeah I think you will probably get rid of this and you'll be immune, and even if not then you will be fine and not have any probs with this.' In fact over the last year most people I have seen about this have had similar outlook. In fact doc said my diabetes was by far more serious than the HBV...so there you go guys there's not much worng with any of us!!!!
I woke up this morning with a new outlook on this illness, I am gonna fight that swine inside me and get it once and for all...and if I should fail then I will take whatever drugs are out there just to p**s it off! Thanks everyone again for being so kind yesterday and to you too bberry for responding today!
Britgirl477
Hey thanks for your recent post bberry. I have just got back in from seeing my liver specialist. We chatted for a long time and he says that he is not saying that I am chronic YET. He said he was quite suprised by my blood results and that he has only ever seen a similar case to mine ONCE in all his years in liver work. It was with a man in his 40s who was Type 1 diabetic. Apparantly this guy didnt quite clear all HBV and got down a really low level like me but it just stopped towards the end and didnt budge. He said he gave this guy a booster and it took about a year but he eventually cleared the virus and developed antibodies on his own. WELL the good news (if that's at all good) is that I am also Type 1 diabetes. So my doc is suggesting that there is maybe some sort of minor problem with the diabetic immune system and that it needs the last shove to be able to finally conquer the virus. It appears that my HBsAG is 0.6, my IgG is still there along with my IgM. He said he was very suprised to see that the IgM was still there as this is usually only present in first few weeks and then disappears. But the fact that it was still there and had not disappeared leaving me with HBsAG and IgG only was good, as HBsAG and IgG alone are usually chronic??? Is this right? He also said that the 6 month cut off is fine and good in normal healthy person but that I am not classed as that because of my diabetes. My HB e antigen is negative and the antibody to it is positive which is apparantly very good too. Finally I asked about the HBV DNA as StevenNyer stated and this is 14000, which he says is not that high as I was in the millions to begin with??? Is that possible to be in milions for HBV DNA? He is also confident that the initial presentation of me at hospital was one that totally fits in with non chronic condition as I was very jaundiced and had yellow eyes (Bart Simpsonish) and was nauseaus and upper quadrant pain. So I am now starting on Tenefovir. This he thinks might finish the job and help me clear out last bits of virus. I have been to shops and bought today many immune boosting foods and nuts and berries etc. I am gonna cut fat outta this diet of mine and keep my alcohol ban on for yet another year. I was very distressed when I met with the doc but he was quite matter of fact as in, 'Yeah I think you will probably get rid of this and you'll be immune, and even if not then you will be fine and not have any probs with this.' In fact over the last year most people I have seen about this have had similar outlook. In fact doc said my diabetes was by far more serious than the HBV...so there you go guys there's not much worng with any of us!!!!
I woke up this morning with a new outlook on this illness, I am gonna fight that swine inside me and get it once and for all...and if I should fail then I will take whatever drugs are out there just to p**s it off! Thanks everyone again for being so kind yesterday and to you too bberry for responding today!
Britgirl477
Have an Answer?
You are reading content posted in the Hepatitis B Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
