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active or inactive?

by queah, Apr 04, 2004 12:00AM

Hi, Here are my lab results:

S antigen + ve
A antibodies - ve
E antigen -ve
E entibodes reactive
AFP 6.0
HBV DNA 1700 / ml
ALT 34
AST 18

According to my doctor I am inactive carrier. Is he correct?
Is it possible that I have precore mutant? According to some
information I read, precore mutant is usually associated with
high viral load. However, my viral load is low.

I am exteremly worried. I am single and deciding against
getting married as I am worried that my illness is unpredictable.
Can someone with HBV manage the illness and still have a long
life. I am 34 now and not sure how long I will live. My questions
are:

a) do I have precore mutant?
b) is there any place where I can get tested for precore
   mutant in california?
c) How long will I live?
d) Can I expect that I can manage the illness with anti-viral
   therapy and hence live a long life?
e) Do you anticipate that future medicines will make the
   illness cured or atleast something that can be managed
   without lot of side effects?

I will fairly ok now physically other than the stress, but
very worried about the future. Thanks for your help.
-Rob
Member Comments (14)

by cuteus, Apr 04, 2004 12:00AM
To: queah
I am not sure if you realize that there are no medical drs. at this forum.  is a patient to patient exchange.  One of them might have a guess on your first question.
as for how long you have to live, not even a dr would venture a definite response to that, as no one can tell for certainty.

Med help does have a section to ask the dr, for a fee.

Good luck on your quest and if you need specific answers, make those inquiries of your GI.  if the answer is not satisfactory, a second opinion might be warranted.

by Indiana, Apr 05, 2004 12:00AM
To: queah / Gwithhepc
Queah............
Hep B tests are VERY complicated to asess and it takes a real professional to decipher them I am not the Guru of HBV here.....but I can give you some pointers. My wife is a HBV "carrier". PLUS she tests positive for Hcv on a qualitative Pcr!  She has been an HBV carrier for over 30 years. It has not affected her in any way. Since she was diagnosed we have had 3 kids (all negative). She is an NP and has worked in nursing for many years. It has not affected her either personally or professionally. If you are really just a carrier then the only thing ya need to worry about is blood contact with others. Just realize that you have this condition and take the proper precautions if you bleed. It's really not a big deal for a male to be a carrier.

Gwithhepc.........
Hey there. You and I apparently have some things to talk about. You have sent several posts my way lately. Write me at ***@****  I would be happy to "talk" to you in E-mail about "stuff". I don't bite and I am not mad at you. I just think that personal stuff should be taken care of off the Forum. You may be pleasantly surprised with me if you get to know me. There are several others who write to me and I have not gotten any complaints yet. I'm just here to help. I promise not to "lecture" you. It's just an offer to help diffuse our little "situation".

by shebee, Apr 05, 2004 12:00AM
oK, HERE IS SOME Shebee thoughts...for what they are worth...

want2live...yes....the answer is YES!  You do.








"Why you ask?  Why should I want2live?”














Aw, what a great question!  I so pleased that you asked this particular question!  I have some answers…maybe…





Please be advised that the other post has not biased me.
I stopped at yours and chose to answer first before I read other's pearls of wisdom.  



I have often wondered why my hubby would work 90-hour weeks.




Day after day I watched him get up (or stay up all night and wrap 2 days without sleep) and go back to work.  ?????

Personally, I think that I would have given up.  








There are a few conclusions or theories that I have come up with:

1. My hubby is crazy.  (This is the best one.)

2. He loves his family with all of his heart.

3. He is semi-brain damaged and does not know why himself.

4. There is something that the rest of the world does not know.

5. He knows that he can make difference to many.

6. He was picked by outerspace beings and has an implant of some kind.



ok….

Why does someone go on against all odds??????







Truthfully, I don't have a clue.  I can only guess what makes one live instead of choosing death.

I think that death is easy...peaceful...at least for the one who dies.  LOL!  




The ones who are left are tormented and always feel a loss. …




All of us, whether we admit it or not have impact on others.
A SLOW DEATH?????  wHAT A bLESsING!  A slow death means that you have time to do all that you want to do...and more.


Once we walk out the door, we never know if we will see each other or not.  So, MAKE EACH MOMENT COUNT. I do.






When faced with death, we all go through stages.
If you are lucky...you will come to the point that you realize how very precious life is...


Every day is so precious that it almost hurts.




I have almost died 2 times...my life flashed before my eyes...When faced with death, you realize that  you really need to live a little more because you have  a  lot  left  to  do.




Death is ok; however, life is much more fun!


Life is meant to be lived.





Live EACH day To the Fullest and more!




You have dreams, yet unfulfilled.
If you so chose, you can step out and make them come true.  Change your heart...change your thoughts.  
We are ALL goin' die a Slow Death.  Hopefully…slowly.  LOL!

Are you depressed?  Yep...with good reason.
Whenever I go to the doc with hubby, they do the little mental health questionnaire.  LOL!  He passes with flying colors...
I FAIL EVERY TIME.  (bUT i AM NOT tHE pATIENt...so nobody cares. ROTFL!)  When I confess this to his  dr., he is amused.  When I confess this to hubby, he tells me to "Buck Up."  If I HAD the time, I would tell my doc.  But, last time I did, he told me that life was full of stress and that I could expect it.  LOL!

I don't have support from family or friends; my co-workers are very competitive and would love so see me fail, but in spite of my situation and bizarre metal condition, I just do what I need to do.

Surely if I, being just a little housewife can support our family during hard times and survive...
YOU CAN DIE A SLOW DEATH...VERY SLOWLY.

Eh?  …And live before you do.


I know that you are having a tough time...and many times I have sat in front of this computer crying because I had no help or support, and then I remember my hubby that
Kept on...

Keeping on...




Working harder than any man that I have ever known,
...And surviving.... and more...




Always taking time with our children...and me.




What an example he has been to me.  

He is now on tx and I, little me, am supporting our family. I am amazed!  I hope you are, too.



I know what this tx does to your body...I know how sick you are...


I know that sometimes every step you take is a major accomplishment...I know.  However, you don’t need to run…if you only crawl…you will make it.




So, what would I say to you?





Buck up.







Do what you need to do.






TX does not last forever.



Life is full of changes.

(We do not like change, do we?)


Better meds are on the way...until that time…




Live life to the fullest! (even if you feel like ****!)



You are so important to others.

I am sorry that you are alive...and need to make a contribution to the world, but that is just the way it is...ROTFL!  Aw, come on...."Buck UP."  Hell, if I had to do it, you should, too!  LOL!

Oh, yea, we didn't deal with God, yet.  LOL!
"Trust in the Lord with all of your heart, and lean not onto your own understanding."

Punishing you?  LOL!  Not yet...Not ever, if you believe in him.  :)  

Just buck up...life is worth living,
You’re residential,
Shebee

by shebee, Apr 05, 2004 12:00AM
To: want2live LAST POST WAS FOR YOU....
sorry to but in on the post, but the last one was for want2live .....

by cindee, Apr 05, 2004 12:00AM
To: Shebee
I have a question for you? Why do you use up so much of the thread with all the long spaces? Your spacing is so long that I just skip them. Please let me know. I hope I haven't missed any good comments from you. Respectively, Cindee

by Indiana, Apr 05, 2004 12:00AM
To: SheeBee
GREAT POST GIRL!!!!
Good to see ya back and doing well..............

by cindee, Apr 05, 2004 12:00AM
To: Shebee/Indy
Shebee..Okay, Forget my question.....I just read Indy's comment and he is one of my God sends...so I went back and read your post. I'm so glad I did. I don't care about your spacing...( I try to not let little things rent space in my mind, as it is sometimes hard to do now, since my replase). Your post was sweet and I agree with you. I am glad you sent that post to want2live. It was great and will give her something to think about. I truely apologize and I will always read your post!!!!!!! Sincerely, Cindee ps I think I need to "buck up" myself!!! lol

Indy, Once again, Thank-You for putting your comment next. I'm having a bad morning...it's 4:25. I'm going to bed! Hope all is well with you. PRAYERS TO ALL, including MYSELF! Cindee

by cuteus, Apr 05, 2004 12:00AM
To: cindee
I found myself doing the same thing on that post.  I don't want to miss a good thing, but it is not easy to read clumped up words or extra spaced ones.  Is not a complain. we don't want to miss out.

by oldhippiechick67, Apr 05, 2004 12:00AM
To: Shebee
Hey girl, great to see you checking in and that you are doin okay in your new role.  You are an inspiration for many of us!

by cindee, Apr 05, 2004 12:00AM
To: cuteus
TY for understanding. I felt so bad all day today about my 1st post to Sheebee. I worried about all the "spankings" I might get for that 1st post. You see, I have to wait for my husband to get in @ nite, so I can use his laptop, as we have no other computer.

I guess I just have "built up" feelings in me right now, and I'm going to have to STOP @ THINK before I post anything these days. I have never been a "mean" person or one to cause hurt or bad feelings. I reckon the devil got hold of me!

I really am happy to read of all the good posts lately and I am TRUELY HAPPY for all the ppl who have been clearing lately. I think I'm still up-set because I relapsed. I feel "left out". That's why I'm going to Duke. I hope it not only helps me, but help others. And I mean that from the bottom of my heart. (girl the tears are flowing as I type this).

I wish for each and everyone of my hep c family to get nothing but the BEST news. I hope the new tx is not so invassive and will Help us all. Love ya bunches, many prayers, Cindee

by cindee, Apr 05, 2004 12:00AM
To: cuteus
TY for understanding. I felt so bad all day today about my 1st post to Sheebee. I worried about all the "spankings" I might get for that 1st post. You see, I have to wait for my husband to get in @ nite, so I can use his laptop, as we have no other computer.

I guess I just have "built up" feelings in me right now, and I'm going to have to STOP @ THINK before I post anything these days. I have never been a "mean" person or one to cause hurt or bad feelings. I reckon the devil got hold of me!

I really am happy to read of all the good posts lately and I am TRUELY HAPPY for all the ppl who have been clearing lately. I think I'm still up-set because I relapsed. I feel "left out". That's why I'm going to Duke. I hope it not only helps me, but help others. And I mean that from the bottom of my heart. (girl the tears are flowing as I type this).

I wish for each and everyone of my hep c family to get nothing but the BEST news. I hope the new tx is not so invassive and will Help us all. Love ya bunches, many prayers, Cindee

by cindee, Apr 05, 2004 12:00AM
To: cuteus
TY for understanding. I felt so bad all day today about my 1st post to Sheebee. I worried about all the "spankings" I might get for that 1st post. You see, I have to wait for my husband to get in @ nite, so I can use his laptop, as we have no other computer.

I guess I just have "built up" feelings in me right now, and I'm going to have to STOP @ THINK before I post anything these days. I have never been a "mean" person or one to cause hurt or bad feelings. I reckon the devil got hold of me!

I really am happy to read of all the good posts lately and I am TRUELY HAPPY for all the ppl who have been clearing lately. I think I'm still up-set because I relapsed. I feel "left out". That's why I'm going to Duke. I hope it not only helps me, but help others. And I mean that from the bottom of my heart. (girl the tears are flowing as I type this).

I wish for each and everyone of my hep c family to get nothing but the BEST news. I hope the new tx is not so invassive and will Help us all. Love ya bunches, many prayers, Cindee

by cuteus, Apr 06, 2004 12:00AM
To: Cindee
I feel that , in the future, you will be on the top of the thread typing:
"I'M SVR PERMANENTLY"!!!!  because of your and your team determination.    I don't want a relapse, but if I do, you and a couple of others will be my inspiration.   On with that fight.  You can alomost see that big(political correct?) lady sing.

by cindee, Apr 07, 2004 12:00AM
To: Cuteus@Chevy
I love you all soooooooooo much!!!!!!! TY for your kind words. Cindee
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