Hepatitis C: Post Treatment Issues Community
Constant joint and muscle pain
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This forum is for those who have taken HCV treatment, and have been off treatment for at least 6 months, to discuss any lingering or new health issues that may have been caused by the Hepatitis C virus itself or may be related to treatment for Hepatitis C. Some examples are autoimmune conditions, previous medical conditions exacerbated by the virus or the treatment, liver damage, and inflammation of the joints.

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Constant joint and muscle pain

I' am 42 years old was never ill before treatment  2012 for 12 months. Now have severe joint pain, hands swelling, and  low energy feeling fatigue all the time. Has anyone tried  steroids for after care treatment or high doses of vitamins ?  
9 Comments Post a Comment
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3093770_tn?1389742726
Have you done any investigations including checking your thyroid after tx?

I would start there.

And look into curcumin, Q10, NAC, vit B complex, vit D, etc as supplements
I have also tried Livatone Plus from Sandra Cabot and regained some energy within a few days. What I have mentioned it also help me with joint pain. Not complete but is somehow bearable now
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1815939_tn?1377995399
Welcome to the forum.

If you are still having these problems a year or more after treatment, I would suggest seeing a Rheumatologist.

Hepatitis C can trigger Autoimmune Disorders. In addition, Interferon can trigger or exacerbate an existing Autoimmune Disorders. It is possible that you had an existing Autoimmune Disorder but had few or unnoticeable symptoms prior to treatment. It is also possible that you developed an Autoimmune Disorder during treatment. And, of course, it is possible that your symptoms are not due to an Autoimmune Disorder, but are due to something else.

The doctor best qualified to examine you and test you for Autoimmune Disorders is a Rheumatologist. Regular doctors (other than Rheumatologists) do not know what tests to order and they do not know how to interpret the tst results. So seeing a Rheumatologist for an exam and testing would be a good first step.

I continued to have joint pains and aches and skin problems after finishing treatment in 2012. Last July I was seen by a Rheumatologist and was diagnosed with Sjogren's Syndrome, an Autoimmune Disorder. For me, I know I had Sjogren's Syndrome long before I ever treated for Hepatitis C. I have had the symptoms for decades. My Rheumatologist feels that Hepatitis C triggered the Sjogren's Syndrome.

If it was me, I would see the Rheumatologist before starting drugs or supplements. It would be better for the Rheumatologist to examine you are you are now feeling and presenting, before any of the symptoms are potentially altered with drugs or supplements.

Here is a link to extrahepatic manifestations of Hepatitis C:

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Extrahepatic.pdf

Best of luck.
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Avatar_m_tn
Thank you for these suggestions and no I have not had my thyroid checked truly appreciate your taking the time to make these recommendations will follow up on all.
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Avatar_m_tn
My doctor has made a referral to a rheumatologist will have to wait five months to see him. So glad I found this chat room as I now know it is not just me that has all these health issues since treatment. Thanks
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4113881_tn?1401895587
"Has anyone tried  steroids for after care treatment or high doses of vitamins ?"

Yes...I had a steroid injection 1 month after finishing treatment and then another a week later followed by a 3rd a month later. I felt they helped me very much and am now 11 months post treatment with no joint pain.
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Avatar_m_tn
Did you have any problems with getting your doctor to give you the steroids? This treatment one that I had previously ask my doctor about he was reluctant ...will use your comments as an example of how you did benefit from this Thanks
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1446517_tn?1304550175
Autoimmune diseases, is handled by endocrinologists.
Joint pain and inflammation would be handled by a rheumatologist.
Corticosteroids, actually can block your normal TSH, from getting to your thyroid. I vote you do not ever get cortisone shots. The relief is not long enough for the pain you endure initially....IMO.

I received cortisone shots, twice a year, for 13 years, for bursitis in my left hip.  All I ended up with, is a weak leg, that buckles, and I still took pain meds. (I found an osteopath who cured it with his hands)

I have a friend with RA, and she is miserable. She said the shots did nothing for her.

Steroids pull calcium from your bones, and all woman know, we do not need that to happen.

Try PENNSAID topical rub for your joint pain. I use it every day and it helps alot!
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1815939_tn?1377995399
"Autoimmune diseases, is handled by endocrinologists. "
-------------------------------------------------

Most Autoimmune Diseases are diagnosed and managed by Rheumatologists in conjunction with other specialists. Specific Autoimmune Immune Diseases which affect the endocrine glands are handled by Endocrinologists (thyroid disorders, diabetes).

Depending on the results of the diagnostic tests which the Rheumatologist runs, the organs affected, and the symptoms which the patient has other specialists are also part of the team.

Glenloo has joint pain, fatigue and swelling. A Rheumatologist would be a good place to start in terms of getting a thorough examination, work up, and testing. A good Rheumatologist will do a huge battery of tests to determine the cause of the problems and to rule out any and all Autoimmune Diseases. The Rheumatologist will refer to the other specialists as needed.

My Rheumatologist manages my Autoimmune Disease, Sjogren's Disease as well as the low Vit D level, but she has referred me to a Neurologist who handles the Peripheral Neuropathy, a Dermatologist who handles the skin issues (Psoriasis and Sjogren's related skin lesions), an Opthamologist who handles the eye issues, an oral surgeon for salivary gland biopsy, and an ENT who handles the nasal problem. She has will be testing me for Celiac Disease and if that comes back positive, then she will refer me to a Gastroenterologist. In addition, since most Autoimmune Diseases like company, and many people with Autoimmune Diseases have 2, 3, or more of them, if I develop any more of them, she will refer me to the appropriate specialist.  

Rheumatologist. A doctor who treats arthritis and other rheumatic diseases, such as scleroderma, Sjogren's, and lupus.
Endocrinologist. A doctor who treats gland and hormone problems, such as diabetes and thyroid disease.
Neurologist. A doctor who treats nerve problems, such as multiple sclerosis and myasthenia gravis.
Nephrologist: A doctor who treats kidney problems, such as inflamed kidneys caused by lupus.
Hematologist. A doctor who treats diseases that affect blood, such as some forms of anemia.
Gastroenterologist. A doctor who treats problems with the digestive system, such as inflammatory bowel disease and Celiac Disease.
Dermatologist. A doctor who treats diseases that affect the skin, hair, and nails, such as psoriasis and lupus.
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Avatar_f_tn
Thought I'd add this one to your list:

Hepatologist.  A doctor who treats diseases of the liver, gallbladder, biliary tree, and pancreas.
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