Aa
How long does it take to rid ones self of the cure?
As I scroll and read so many post's about lasting sx's it concerns me. Not to be considered as being ungrateful. I am very grateful for having been able slay Dragon.
I had an appointment with my PCP yesterday and we discussed the lingering discomforts I am having, no need to go into detail, seems many us have them. Her first question was," What does Dr.Prince say about this?". Before I could offer a response she nailed,"Talk to your primary."
Her only response was," It could take as long as 18 months if ever, but you will begin to have more good days than bad, and during this course of a good day, the length, depth and scope of that goodness will increase."
Good news to be sure!
I mention PIS to her and her response was it is still to early to make such a call, and reminded me to rejoice in the idea that at the moment I no longer have a foreseeable expiration date.
I refuse to get involved in debates over who are right and wrong, everybody has a point of view, I no longer have the need to be understood or accepted by anyone based on what might or might know. For me that is a huge step in this healing process and gives me room to heal.
Tim
I had an appointment with my PCP yesterday and we discussed the lingering discomforts I am having, no need to go into detail, seems many us have them. Her first question was," What does Dr.Prince say about this?". Before I could offer a response she nailed,"Talk to your primary."
Her only response was," It could take as long as 18 months if ever, but you will begin to have more good days than bad, and during this course of a good day, the length, depth and scope of that goodness will increase."
Good news to be sure!
I mention PIS to her and her response was it is still to early to make such a call, and reminded me to rejoice in the idea that at the moment I no longer have a foreseeable expiration date.
I refuse to get involved in debates over who are right and wrong, everybody has a point of view, I no longer have the need to be understood or accepted by anyone based on what might or might know. For me that is a huge step in this healing process and gives me room to heal.
Tim
Best Answer
i am 8 months post and still have a lot of symptoms the worst is the fatigue some days better than others.
A year from now when you post here....You will be lots better. You won't be thinking about how it changed your life for the worst....but how much better you feel. It sometimes takes a little longer than you want it to be. But it's really worth it. I feel better now than I felt in years....and that was a surprise.
Hey great job on the brakes : )
Hey great job on the brakes : )
I hate writing in this forum, yes treatment changed a lot of things for me. But I have never allowed things I can't change change me entirely. Just one example, less than 6 months ago I payed a neighbor to do the brakes on my own car. Yesterday I was able to complete the brakes on my sisters SUV in 2 1/2 hours.
Yes I still have lingering side effects, I wake up with the sun, mornings have always been my time of the day. Complete what I can, and am usually whooped by 6 or 7 at night.
No I can not do all the things I use to, but I believe someday I will and even better. It truly is a new reality, one in which I must learn to survive in. I did not suffer treatment to proclaim defeat.
Treatment was very hard and I wanted not only it but my life to end many times during it. Today I thank God for given me the will and strength to continue to move forward.
Yes I still have lingering side effects, I wake up with the sun, mornings have always been my time of the day. Complete what I can, and am usually whooped by 6 or 7 at night.
No I can not do all the things I use to, but I believe someday I will and even better. It truly is a new reality, one in which I must learn to survive in. I did not suffer treatment to proclaim defeat.
Treatment was very hard and I wanted not only it but my life to end many times during it. Today I thank God for given me the will and strength to continue to move forward.
Thank you Tim, I appreciate you writing this, I believe what your doctor said is true for many people. Not everyone as we are all different. I think it depends on how damaged your liver is, how long you have had HCV, what kind of emotional support you recieve, physical too.
There are so many variables, too many to list here.
I am now wondering if I had a hard time because I was taking Metformin as I had heard it could help me get to cured.
I was very sick all through tx I stopped taking MF at some point after finishing tx.
I recently started back on MF and it is making me so sick I just can not continue. I found a supplement to help me with my sugar level. It is working really well. I also found that this Nopal Cactus is good for inflammation of the body, aches and pains, lowers cholesterol, helps asthma. I am amazed in the difference in how I feel.
Take Care my friend
Dee.
There are so many variables, too many to list here.
I am now wondering if I had a hard time because I was taking Metformin as I had heard it could help me get to cured.
I was very sick all through tx I stopped taking MF at some point after finishing tx.
I recently started back on MF and it is making me so sick I just can not continue. I found a supplement to help me with my sugar level. It is working really well. I also found that this Nopal Cactus is good for inflammation of the body, aches and pains, lowers cholesterol, helps asthma. I am amazed in the difference in how I feel.
Take Care my friend
Dee.
Thank you Dee,
As always I appreciate your compassion, something that is so lacking in this world.
I have to also add she actually was talking add another 18 months from yesterday... making it 24 months.
It would seem 6 months to even start feeling good is about right, only over the course of the passed two weeks have I begun to feel as if I wae retuning to a state of health I wanted to participate in, and is no joke.
My hands have become so stiff and my wrist are numb most the time.I can no longer manipulate the fret board on my guitar. My typing has returned as a one or tow finger hover and drop sequence. Very irritating to say the least.
But I am getting better, mentally and physically..
God bless you
Tim.
As always I appreciate your compassion, something that is so lacking in this world.
I have to also add she actually was talking add another 18 months from yesterday... making it 24 months.
It would seem 6 months to even start feeling good is about right, only over the course of the passed two weeks have I begun to feel as if I wae retuning to a state of health I wanted to participate in, and is no joke.
My hands have become so stiff and my wrist are numb most the time.I can no longer manipulate the fret board on my guitar. My typing has returned as a one or tow finger hover and drop sequence. Very irritating to say the least.
But I am getting better, mentally and physically..
God bless you
Tim.
I did the wondrous 48 week Interferon and Riba. Been posting here on MH since early January 2013.. I truly take my hat off to you 72 weeks seems totally unbearable, as for myself I was ready to throw in the towel very early on.
I am very lucky I have a GP/PCP who truly cares for me. This has been an learning experience for her, not only am I her first patient that tolerated the whole 48 week treatment. At first I thought she was blowing smoke up my ... But she has taken a true interest in the information and question I bring her, taking note only notes but making copies of my notes as well.
Much of that information I gathered from here MH.
And as always I have great respect for those who do post good information.
Hope your get some more good days, it's great to fell good however fleeting those times are.
Thank you for your insight.
Tim
I am very lucky I have a GP/PCP who truly cares for me. This has been an learning experience for her, not only am I her first patient that tolerated the whole 48 week treatment. At first I thought she was blowing smoke up my ... But she has taken a true interest in the information and question I bring her, taking note only notes but making copies of my notes as well.
Much of that information I gathered from here MH.
And as always I have great respect for those who do post good information.
Hope your get some more good days, it's great to fell good however fleeting those times are.
Thank you for your insight.
Tim
Hey there! I am really glad to see that the doctor told you it could be 18 months.
You must have a good doctor. I know it took that long for me. I had been told it would take 3 months to feel better, 6 months for my hair to grow back.
I would say it took 18 months.
Like Frank I think it is very unfair for the Hep Docs to treat people then just let them go. Lie and tell them everything is fine, go to your GP
My GP wanted to know why she should treat me for something "they" did to me.
It reminds me of a surgeon who does the operation and doesn't feel the need to see you again, tells you to go to your GP.
Vicious circle
On this forum I found many different real experiences which I appreciate very much. .
I found it takes up to 6 months for the riba to leave the body. Once it has left the real recovery starts.
Give yourself some time.
Take Care
You must have a good doctor. I know it took that long for me. I had been told it would take 3 months to feel better, 6 months for my hair to grow back.
I would say it took 18 months.
Like Frank I think it is very unfair for the Hep Docs to treat people then just let them go. Lie and tell them everything is fine, go to your GP
My GP wanted to know why she should treat me for something "they" did to me.
It reminds me of a surgeon who does the operation and doesn't feel the need to see you again, tells you to go to your GP.
Vicious circle
On this forum I found many different real experiences which I appreciate very much. .
I found it takes up to 6 months for the riba to leave the body. Once it has left the real recovery starts.
Give yourself some time.
Take Care
Tim, I don't know your history, how long you were on treatment, how long off, the kind of treatment, etc... but it is always most important to remain positive even if you spend an enormous amount of energy on putting on a smile just for yourself! I hope you understand.
I treated many years ago, for 72 weeks. I "cured". My good days never started but got worse and worse. Two years after "curing" I got an appt with the nurse for the Liver Guru of the University of Pittsburgh (considered one of the worlds top Liver Centers) - when I ended reading over my issues this wonderful health care professional actually spoke the truth and said "I'm sorry. We destroyed your life!"
At first I thought "No, you shouldn't say that! That is horrible to say!" We talked a bit more and she repeated it a few more times and it hit me. I was so grateful that she spoke the truth, finally! She rushed out to see if The Guru was available to see me immediately but he was off to a class. His nurse bumped another person and put me in to see The Guru. Of course The Guru said my issues had nothing to do with his wonder drugs!
Soooooo, here I am, many years later not knowing what will pop up day by day and the medical community that should/could help me/us sends us off to our PCP. How very uncompassionate! Didn't these Liver Gurus read the list of warnings of their wonder drugs?
Glad to read that you are in a good place to heal and hope you will be a lucky one and won't have to even think of PIS but always laugh no matter the bumps.
best of luck, frank
I treated many years ago, for 72 weeks. I "cured". My good days never started but got worse and worse. Two years after "curing" I got an appt with the nurse for the Liver Guru of the University of Pittsburgh (considered one of the worlds top Liver Centers) - when I ended reading over my issues this wonderful health care professional actually spoke the truth and said "I'm sorry. We destroyed your life!"
At first I thought "No, you shouldn't say that! That is horrible to say!" We talked a bit more and she repeated it a few more times and it hit me. I was so grateful that she spoke the truth, finally! She rushed out to see if The Guru was available to see me immediately but he was off to a class. His nurse bumped another person and put me in to see The Guru. Of course The Guru said my issues had nothing to do with his wonder drugs!
Soooooo, here I am, many years later not knowing what will pop up day by day and the medical community that should/could help me/us sends us off to our PCP. How very uncompassionate! Didn't these Liver Gurus read the list of warnings of their wonder drugs?
Glad to read that you are in a good place to heal and hope you will be a lucky one and won't have to even think of PIS but always laugh no matter the bumps.
best of luck, frank
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