Thank you for the site. I will definitely check it out. And I think uR right about the yoga and excersize . . . I am 10 months post treatment and I am able to work out a few days a week now and it is finally helping me start to rebuild muscle. It has been a long recovery road getting to this point though. To everyone who reads this thread be gentle with yourselves, recovery takes time. For me it feels like it's taking forever sometimes but I am so grateful treatment worked. Floridian you are right also about watching the diet in my experience cutting out sugar, breads, and dairy has made a huge difference in the inflammation for me and maybe the food triggers are diff for everyone. Idk. . . . But I'm so grateful for all of you on this site!!! This experience is one that no1 can really understand unless you've been through it.
Also, the Dr's at the research clinic say they are hearing really positive feedback from patients who are using Beneflex. I got some and I'll keep you posted.
Big hugs to all of you. You are in my prayers!
The site I listed was only for the physical description of inflamation not to plug the supplements. I don't take them.. It is very informational about natural herbs and how they act in our bodies to fight inflammation. As an example only. But we know that all herbs must be taken with caution as they are not regulated..
This is Dr. Weil's anti inflammatory food pyramid.
http://www.drweil.com/drw/u/ART02995/Dr-Weil-Anti-Inflammatory-Food-Pyramid.html
And I think we need to do yoga, exercise, gentle weights to strengthen our bodies.
Thanks Brandi for the information. I did not experience high Uric acid, but that is a inflamation contributor for some. Your info is right, I think the triple therapy meds cause an ongoing responce of inflamation in our bodies. We should take anti-inflammatory medications and herbs as well as eat anti inflammatory foods. Staying away from sugars and other things we injest that causes inflamation. Even though the doctors do not recognize the long term Inflamation caused by the meds we took can be the culprit that destroys good cells, joint linnings, arteries, organs and other body parts: causing damage that last years: Joint aches, muscle tenderness....We can help ourselves. Here is a site that talks about that.
http://www.inspirednutrition.com/3/Chronic_Inflammation_Relief_-_Supplement.html
Ok I have a friend on a new experimental triple therapy study at a local vet hospital. He asked the dr'a there about the joint pain issues and they say it is a very common side effect. It's usually caused by a built up of uric acid that build in the joints if untreated and causes problems. They suggested a combo of allopurinol for uric acid and an anti-inflammatory. Unfortunately my doc wouldn't prescribe it for me at my last appt so my friend on the study splits his dose with me. I have tried it 2-3 times now when the pain and inflammation was so bad I could barely walk up stairs. It worked so well for me! It takes about a week but the pain is so much better when I've tried these 2 meds together. His dr's also said that dr's should be testing for this the entire time uR on treatment so that if uric acid levels elivate they can be treated immediately to avoid long term problems. As far as I know I was never tested for this while on treatment.
Some of the other symptoms I've experienced post treatment, are severe stomach pain, bloating, inflammation, a newly squired allergy to milk that causes cystic acne for me, continued hair loss, skin problems on my face, neck, shoulders, and back, and weight gain. Just to name a few.
Luckily it wasn't all for nothing though. You are all in my prayers and I hope u each achieve SVR and have the easiest time on treatment that u possibly can!
OMG I just wrote the longest response and it wouldn't send! Ahhhhh sigh! ;)
Well, back from the docs. Yes, the rheumatologist did run all the tests for autoimmune disorders and nothing came up positive. We've done the thyroid and everything else they can think of. I do find it interesting that I have the elevated marker for inflammation (ANA?), but they can't figure out what is inflammed. So, a lot of it will just be called fibromyalgia, but we're also going to look further into kidney stuff. I have an odd history of kidney stones so we'll see what turns up.
Best wishes for better health to all who are still having issues.
Hang in there. :)
It really does take time and if you were once an active person I am sure you feel impatient.
I believe my joint pain which was severe was a result of HCV. However, I felt so bad during treatment I was barely mobile which I believe worsened my condition.
I have found gentle or restorative yoga to be helpful. My joints had hurt so bad I as afraid to exercise them for a long time. I began to swim and when I found the movement to be pain free, it gave me the confidence to try the yoga moves. It is helping.
Like I have been told countless times, be patient and just stay with it, when you find the that exercises work for you.
I believe in time you will improve.
I wish you all the best.