Aa
Post interferon/ribivirin long time effects
In 1984 I was diagnosed with nonA-nonB hepatitis and was told I might get fatigued easily. In 1999 I quit my job to care for my ill mom for 9 months and 2 children. My husband works on civil projects around the US and is gone 200+ days a year. I started feeling unwell a couple months after my mom passed. I went to my doctor and in the waiting room I saw for the first time, it had a name. HepC. I tried a trial and had too many unbearable side effects. In 2003, my doctors promise to get me through it. Given 5-10 years to live.
Peri portal fibrosis 2.5, type 1B, VL 1,000,000+ per ml. Finished June 2003, no virus! Side effects from beginning: fatigue, horrible insomnia, nausea, depression, weight loss, scalp lesions
Long term side effects: insomnia, severe arthritis in spine C2-S2, ringing in ears, inability to get fever no matter how ill, regular temperature dropped to 97.2, thyroid quick working and gained 60 lbs, fibromyalgia, allergies to almost everything nature and food, brain foggy, depression, chills and sweats, isolation from most social events.
No doctor has ever believed me I say I can't get a fever. They look at me like I am crazy. I even doubted at first and bought 4 ways to check. I have not had a fever since August 2001. Anyone else? 15 years of this, I rarely have a good day. I got 5 Extra years...but I am tired of feeling like **** everyday
Peri portal fibrosis 2.5, type 1B, VL 1,000,000+ per ml. Finished June 2003, no virus! Side effects from beginning: fatigue, horrible insomnia, nausea, depression, weight loss, scalp lesions
Long term side effects: insomnia, severe arthritis in spine C2-S2, ringing in ears, inability to get fever no matter how ill, regular temperature dropped to 97.2, thyroid quick working and gained 60 lbs, fibromyalgia, allergies to almost everything nature and food, brain foggy, depression, chills and sweats, isolation from most social events.
No doctor has ever believed me I say I can't get a fever. They look at me like I am crazy. I even doubted at first and bought 4 ways to check. I have not had a fever since August 2001. Anyone else? 15 years of this, I rarely have a good day. I got 5 Extra years...but I am tired of feeling like **** everyday
Hi there! I am so very sorry to hear. I have not heard about not getting a fever but I believe anything is possible. It is possible that it screwed up your immune system. I have low thyroid and low body temperature. If I get a fever I know it is much higher than it says.
I hear you about all of your side effects. The interferon was an awful drug. I did it twice. The first time I relapsed within 4 weeks. The second time cured me. That was 4 years ago. For a long time I tried to find anything and everything that would help me heal. The first thing I tried was NADH. It helped me quite a bit. It is supposed to heal us in some way. There is fre information out there about NADH. I then tried probiotics which helped me and others. I went on to systemic enzymes with serrapaptase to try to help heal the scar tissue. I found some research that states that interferon reduces our dopamine, our feel good chemical. L'Tyrosine can increase it. I started taking that. The difference is amazing. The only thing I have to watch is that L'Tyrosine can make one too peppy.
Have you found anything that helped you>
Another member on here found that Cerefolin NAC helped him. Some have used naloxone, not really sure how that works. I guess it fills the opiate receptors. I still don't know how that is good but it it works it is worth a try. It is a prescription, no sure why, as it is a food grade vitamin. B12 helped me as well. Before that I was having terrible leg pains, took calcium, magnesium, potassium, zinc, vitamin D. Every little bit helps. It is like making a cake, using all ingredients I have slowly gotten better.
I hope you can find some help, take care, Dee
I hear you about all of your side effects. The interferon was an awful drug. I did it twice. The first time I relapsed within 4 weeks. The second time cured me. That was 4 years ago. For a long time I tried to find anything and everything that would help me heal. The first thing I tried was NADH. It helped me quite a bit. It is supposed to heal us in some way. There is fre information out there about NADH. I then tried probiotics which helped me and others. I went on to systemic enzymes with serrapaptase to try to help heal the scar tissue. I found some research that states that interferon reduces our dopamine, our feel good chemical. L'Tyrosine can increase it. I started taking that. The difference is amazing. The only thing I have to watch is that L'Tyrosine can make one too peppy.
Have you found anything that helped you>
Another member on here found that Cerefolin NAC helped him. Some have used naloxone, not really sure how that works. I guess it fills the opiate receptors. I still don't know how that is good but it it works it is worth a try. It is a prescription, no sure why, as it is a food grade vitamin. B12 helped me as well. Before that I was having terrible leg pains, took calcium, magnesium, potassium, zinc, vitamin D. Every little bit helps. It is like making a cake, using all ingredients I have slowly gotten better.
I hope you can find some help, take care, Dee
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