Aa
long term after effects post interferon
My last interferon injection was 12 months ago. I feel tired, lethargic, my bones ache in the morning esp in my feet. I'm in bed asleep by 10-30....and now i've developed a fissula, a perenanal abcess. My doctor thinks it may be because since the interfeon my immune system is v.low to warding off infections.
Are these symptoms shared by others.
Are these symptoms shared by others.
I sometimes wish I had waited for the newer treatments. I wasn't sick when I requested a full blood panel and they found hep c plus my liver enzymes were normal. I felt great. Now I feel like crap. The joint pain is bad and I started a new job working 6 days a week. Sure I am glad my Hep C is gone but I wasn't sick to begin with!!
I was cured of my HepC2b 4 yrs ago. I still suffer from fatigue, joint pain and personality changes. I am not depressed but have panic/anxiety disorder. My sex life is gone! I have no interest what so ever!! You are not the only one who wonders about this treatment. I also have memory and vision problems.
I didn't see this until after I wrote back to your pm. Interesting to hear about your experience with LDN. We will keep in touch?
I think we are on the same page.
Good luck with the Snythroid! Let us know how that goes. Doesn't that sometimes have to be adjusted?
Us PISsers are in the great catch 22 with so distrustful of docs but finding them so necessary to help us!
On the LDN path - I couldn't find a doc to write me up so went the Thai full dose which I actually highly recommend - of course with the blessing of your docs & my GP is really excited by it all (he can't write it up in PA)! Doing the full dose thing means that you are able to liquify it then control the dose yourself without the fillers of LDN specialty pharmacies and those costs! There is a lot of money being made on LDN and a lot of bull on the forums which one can get away with since there is little research BUT a pharma just bought the rights to LDN so things will be changing in the future.
I did have a big problem with PM dosing and vivid dreams! I had to switch to AM dosing... and after nearly two months the vivid dreams have slowly subsided. BUT if you read most of the Pros on the forums they demand PM dosing which is total bull... it is based on lab mice tests which has nothing to do with human testing. So if your gestro demands that you stick with PM dosing run!
Well, I went off on an LDN tangent and it is crazy late here so I better end it there for now... more later.
Nite all, f
Good luck with the Snythroid! Let us know how that goes. Doesn't that sometimes have to be adjusted?
Us PISsers are in the great catch 22 with so distrustful of docs but finding them so necessary to help us!
On the LDN path - I couldn't find a doc to write me up so went the Thai full dose which I actually highly recommend - of course with the blessing of your docs & my GP is really excited by it all (he can't write it up in PA)! Doing the full dose thing means that you are able to liquify it then control the dose yourself without the fillers of LDN specialty pharmacies and those costs! There is a lot of money being made on LDN and a lot of bull on the forums which one can get away with since there is little research BUT a pharma just bought the rights to LDN so things will be changing in the future.
I did have a big problem with PM dosing and vivid dreams! I had to switch to AM dosing... and after nearly two months the vivid dreams have slowly subsided. BUT if you read most of the Pros on the forums they demand PM dosing which is total bull... it is based on lab mice tests which has nothing to do with human testing. So if your gestro demands that you stick with PM dosing run!
Well, I went off on an LDN tangent and it is crazy late here so I better end it there for now... more later.
Nite all, f
I, too, have all "normal" tests for everything until this 12 hour fast test. So I know the frustration of not knowing what is causing what!
I just got the call from the doctor's nurse this evening...they are calling in a Rx for Snythroid and I need to up my Vitamin D, it's low. More follow-up to come, but I am to start treating the hypothyroidism right away. Lord only knows how that will go; hopefully, I will see some improvement....and hopefully not more problems! You never know with us PIS people!
It would be great if your GP could talk to the endo before you make the long haul. Maybe give some background and ask if she will do the specific tests as outlined on the thyroidchange.org site, or see if your GP would do the 12 hr, a.m. draw? (I could give you the entire list of what was ordered.) Maybe your GP could also get a feeling for the endo's "enthusiasm" to be a true medical detective? Let me know how it goes.
Yes! My next step after the endo was a new gastro guy who is listed on another site as being open to prescribing LDN to folks like us. I have followed those posts on here and did start to research it. I guess not every doctor is open to prescribing it. I did get the referral to him and I will see how that goes; however, I think I should give this synthroid a chance before I move forward on that.
Besides upping my Vit D I am also going to start taking B12 again. I think you are very wise to stick with those two...can't go wrong. I just cut back so I could see my baseline without supplementing, but now I will get back to them.
Again, keep in touch. See if your GP will help you "vet" the new endo, or order the preliminary blood labs. It's a long way and more expense, and you don't want to waste any more of your resources!
Take care,
Faith
I just got the call from the doctor's nurse this evening...they are calling in a Rx for Snythroid and I need to up my Vitamin D, it's low. More follow-up to come, but I am to start treating the hypothyroidism right away. Lord only knows how that will go; hopefully, I will see some improvement....and hopefully not more problems! You never know with us PIS people!
It would be great if your GP could talk to the endo before you make the long haul. Maybe give some background and ask if she will do the specific tests as outlined on the thyroidchange.org site, or see if your GP would do the 12 hr, a.m. draw? (I could give you the entire list of what was ordered.) Maybe your GP could also get a feeling for the endo's "enthusiasm" to be a true medical detective? Let me know how it goes.
Yes! My next step after the endo was a new gastro guy who is listed on another site as being open to prescribing LDN to folks like us. I have followed those posts on here and did start to research it. I guess not every doctor is open to prescribing it. I did get the referral to him and I will see how that goes; however, I think I should give this synthroid a chance before I move forward on that.
Besides upping my Vit D I am also going to start taking B12 again. I think you are very wise to stick with those two...can't go wrong. I just cut back so I could see my baseline without supplementing, but now I will get back to them.
Again, keep in touch. See if your GP will help you "vet" the new endo, or order the preliminary blood labs. It's a long way and more expense, and you don't want to waste any more of your resources!
Take care,
Faith
Thanks for the advice... Yes, long past tx, and "cured" but with a whole lot of PIS!
I do like my GP but he is totally overwhelmed with his practice! He is young and excited by what I bring in but I have to do the research!!! and I really am not that knowledgable... where I live is a tiny area and I think the docs here are somewhat nervous about having an informed patient.
I can get to the BIG city where there is one Endo on your list so I will do some research on that doc along with my GP about her.
I do believe that I have a chronic condition that is inflammatory in base but just can not get any test to prove it!
This is what I was told at the University of Pittsburgh Liver Center - that my system was in such chaos numbers would change and it is true.
I will see what I can discover about this Endo in PGH and hold out hope that she is Very Good!
Thanks again. f
btw, in the meantime I am on my second month and up to 2.5ml of LDN which reduces inflammation thru-out the body & crosses the brain barrier = a study showed that those who suffer from chronic-fatigue had inflammation in the brain.
This past month has been a huge stressful time and maybe the LDN has helped a bit but then I am also taking B12 & large doses of the other Bs as well as D. That is all the supplements I am taking...
I do like my GP but he is totally overwhelmed with his practice! He is young and excited by what I bring in but I have to do the research!!! and I really am not that knowledgable... where I live is a tiny area and I think the docs here are somewhat nervous about having an informed patient.
I can get to the BIG city where there is one Endo on your list so I will do some research on that doc along with my GP about her.
I do believe that I have a chronic condition that is inflammatory in base but just can not get any test to prove it!
This is what I was told at the University of Pittsburgh Liver Center - that my system was in such chaos numbers would change and it is true.
I will see what I can discover about this Endo in PGH and hold out hope that she is Very Good!
Thanks again. f
btw, in the meantime I am on my second month and up to 2.5ml of LDN which reduces inflammation thru-out the body & crosses the brain barrier = a study showed that those who suffer from chronic-fatigue had inflammation in the brain.
This past month has been a huge stressful time and maybe the LDN has helped a bit but then I am also taking B12 & large doses of the other Bs as well as D. That is all the supplements I am taking...
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