92 weeks tx and relapse

[smaug48]

Just got my 3-month PCR back - the dragon is back.  My viral load currently is 1.5 million, whereas my baseline pre-tx viral load was 750,000.  I don't have to tell you how I feel right now...

So, now I'm in the boat of having to live with HCV until tele or boc becomes available.  I'll probably opt for some variation of HR's supplement regime to try to keep fibrosis progression to a minimum.  

This would be easier to take if I was employed and didn't have so much time to think about it.  I haven't been able to find a job in this dismal economy since graduating in May.  If anyone knows of any available telecommuting work for a recent MBA grad, let me know  :-)

smaug

[susan400]

I am so sorry.  I have, unfortunately, had that news too many times to count and I KNOW how you feel.  It is such a kick in the gut.  You and I will be counting on treating in 2011..., and I as well as you will be hoping for a way to cover the cost of these new drugs.  I don't work either so, I understand that problem of thinking about it all the time.  I've been off of treatment for 18 mon. now and believe me, it's hard for me to not obsess about it.  Since you haven't been exposed to the Telaprevir yet (as I have), you do have a great chance on clearing with the triple therapy.  Could you get into a trial in order to cover the cost of the drugs?  I've been doing ALOT of exercise in order to keep things at bay for me.  It's helped me to stay busy, to keep my mind occupied, to help my depression and my figure..., so for me, it's my way of coping with this cr*p shoot of a thing.  That and ALOT of prayers.  Best to you, Susan400

[IAmTheWalrus]

This really bites! I am so sorry. Misery loves company, but I would have preferred more solitude in this regard. You are on my prayer list. - Brent

[Rockerforlife]

After all that time treating,the liver must have improved quite a bit so when you do the PI`s next round,you should have a better chance at SVR.My nurse says this "pre treating" helps with the next TX as our liver is is a" better fighting mode' in the improved state.

[IMstacie]

I have tears in my eyes right now.  I'm very sad about this.  All that work you put in on this. I pray your next tx, whatever it is, will be bearable and sucessful.

[smaug48]

My teeth are fine, fortunately.  I'm married to a dental hygienist so I've been taking good care of them for a long time.

Body is gettting better, able to exercise pretty strenuously now.  The CBC I got at the time of the PCR said I was anemic, though, not sure what was up with that.

Are you doing anything to keep fibrosis at bay?  If yes, what?

[frijole]

How depressing.  I don't suppose there is any sense it doing anything until the PIs are out.  It is hard to believe that 92 weeks is not enough.  How is your body holding out?  How are the teeth?  That is a lot of interferon.

holding on for the PIs too
frijole

[alijee]

O God. it is very very bad news. im much disturb to hear this.

[Marte313]

I'm sorry to read this. Hang in there! It will all turn out good in the end, you'll see.

[child24angel]

Truly very sorry to hear this smaug...very sorry.

Hugs to you
Elaine

[Joey_M]

That sux! But it is one battle in a long war and hopefully something will be approved soon to win the next battle.

What specialty is your MBA in? What time of work are you interested in specifically? The market here in the SF Bay area seems stronger than elsewhere so maybe check craigslist in SF.

[neptune235]

Aye yi yi!  Really sorry to hear this news smaug -- at least you have a strong response to interferon, and the PIs will do the trick for you.

[smaug48]

Thank you so much for the kind words, thoughts, and prayers.  Receiving so much support from people who really understand makes it easier to get over the disappointment.  

You guys are great!!!

[Kristina538]

So gutted to hear this news.  I wish  that by some miracle the new drugs come out sooner - just soon enough to give you some long overdue pause for the SOC meds before you undertake another dragon slaying strategy.    Thinking of you;  if you managed that long haul on SOC, I know you have it in you to beat this eventually.      

[Marcia2202]

I'm so very sorry. I hope you will be able to keep up your spirits. I'm sending you warm thoughts. I will always be rooting for you that you will beat it the next time around with the PI's and 'only' 24 weeks of tx.

Hugs, Marcia

[annieCinMD]

So sorry to hear this. From a fellow relapser, it was hard enough to get the news after stopping at 28 weeks. I can't imagine 92. My heart goes out to you. Yes, the PIs may well be the ticket for you. Best to you.

[copyman]

sorry for the bad news. you really deserved svr after tx'ing all that time.  the dragon may have won this time but in about 1 year you will have the upper hand with the new PI's. this will kill the dragon dead after tx'ing for a few weeks! and hopefully you will only have to treat for 24 weeks. best of luck

[cb867]

I am so sorry. try to keep a positive attitude
Good Luck

[medicmommy]

Damn, that su#ks. I thought 24 weeks was bad enough....Don't worry, your natural immune system is still recovering and relearning how to do things on its own, and hopefully, once it does, it will put that dragon back into its corner...You'll see. At 6 months post tx, your viral load should drop again. Remember, that nasty beast has been weakened, and it was probably just hanging on by its toes when your treatment ended. In the meantime, you may want to investigate some alternatives to maintain and possibly improve your liver health. For seven months prior to treatment, I was on Sho-Saiko-To (Japanese hep C treatment) and I saw my viral load decrease and liver enzymes improve. Sadly, it didn't squash the hep C, but it did seem to improve my liver health...
Just a thought...Have you ever entertained the thought of starting an on-line business? Low overhead, your schedule, etc.? Some just start on Ebay and progress from there...Many people are creating their own income this way...Keep your chin up and know you're in my prayers...((((((((((HUGZ))))))))))))~MM

[kciav]

You are in my thoughts and prayers for strength and healing and a new job!
Take care...

[jacksonblue]

Very sorry to here this 92 weeks is avery long time you definiley gave your liver a break i relapsed 72 weeks then got svr 24 weeks telepriver never give up regards steve

[orleans]

man o man, so sorry. jerry

[Andiamo1]

I've been where you are a few times, so I know how you feel.  'Every time I re;apsed, the VL went above the previous baseline and stayed there for a month or two and then subsided back to baseline.  At the very least, your liver probably recovered some and you have reduced your risk of cancer.

I am sure the PIs will do it for you, so hang in there.  They did it for me and they will for you too.

Best of luck to you.
Eric

[GreatBird]

This is such sad news. I'm tremendously sorry to hear it. I just came off 48 weeks of this stuff; I can't imagine going 92. You are made of tough stuff.

[Isobella]

So very sorry to hear your news.  The reality of relapse is heartbreaking, but know that we are all pulling for you.

These new drugs cannot get here fast enough for those of us waiting to treat or waiting for loved ones to treat.  

Hang in there.  Your day IS coming.

Isobella