HEPATITIS C COMMUNITY
A Word to jmjm..DON'T LEAVE!!!!!!!!!!!!!!!

A Word to jmjm..DON'T LEAVE!!!!!!!!!!!!!!!

David Koresh or David Koresh type I have never followed, just incase someone put me in that category. Jesus gets my full attention and him only.

You cannot help your obvious leadership skills, BUT I do not feel you try to control this board in any way. Your answers are to the point, backed with data and experience and relayed to some very frightened people in a very calm way. You can't help if your intelligence in this invisible world is highly visible.Just because you are noticibly smart, doesn't mean you are in control. You can't help if your light shines a little brighter. Believe me, I don't look to kiss up...for what reason?? We will probably never meet, but I don't stay silent when I see people being downright mean and anyone else who sees what's going on and chooses not stand up and say its wrong how people have been hurt....you guys are then just as guilty as the mean people. Yes, "mean people". But to the mean people....... you can change, there is hope for you. No sermon, but you know the deal.
Talk about satan rearing his ugly head. I can not believe  that the people making the comments don't see how obvious their covetousness  towards you. Is tx same as truth serum? I'm hoping that tx makes people act out of character, so at least they have excuse and will hopefully return to having what may have been a pleasing personality prior to tx.

As I stated, I will be starting tx in October. I need everyones support, yes even the people who are acting out of character(giving you benefit of doubt).
Please everyone quit the ****. Jims a great guy. No one leave!
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Avatar_n_tn
Well put, My.  Thank you and ditto from me.  God bless us everyone!  Lori
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Avatar_n_tn
I just posted this to another message so i will put it here to

I have been comming hare for a long long time and I have seen this so many times.a handfull people that come here run this place they have several screen names and get real upset if they loose popularity.they come in under the pretense of a newbie sometimes just so they can get ratings higher for this site over other hep cites.i see people come and i see the smarts one go if you have leadership ability or are getting too popular they run them off.i think hep plays with the mind and lets not forget that the majority of us are all junkies anyway so we know how to manipulate and be negative.this is one of the reasons why i always tell people don't take what you see and hear on here as gospel.talk to you doctors.remember none on here has a face and we can be anyone we want to be on the big screen of interent broadcasts.i have a job that takes me away most of the time but most that come here are bored and have time too much time on their hands so when people say they are taking a break you can bet they will be back in an hour with a new name.
slow

  

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Avatar_n_tn
If I leave will you open a thread asking me to come back too....LoL

Sorry, I couldn't resist....

He already said he wasn't leaving merely taking a break or not posting as often... he & many have done this before...
it's no big deal.... he'll be back (I PROMISE)

I know your new so you don't know but just wanted to tell you that we've even had a few over the years make grand exits... just so the PLEASE DON"T Leave" thread pops up & gets a bunch of people rallied up....

So don't take it to heart... Many like JmJM, Cuteus, MikeSimmon, Kalio, TNHEPGUY, REV, Snooks, NEWSOUJ, Both our Fish's, Friole, Califia .... ect .... ALL share a WEALTH Of Info with & KNOW how much we appreciate them.

Opps & of course Chev & Slow Too...LoL
Good to see all the familier faces....
& WELCOME TO ALL THE NEW ONES!!!!
:)
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Avatar_n_tn
thanks you for the nice words i have been comming here a long time so i know the way things go around here i don't post very much but i don't like it when people try to act like doctors and give out advice to people that may take it for gospel.slow
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Avatar_f_tn
Yes. if you're nice as Jim, I'll plead for you to stay.lol
It's good I wasn't in one of my sensitive moods and answered...NO TIME FOR JOKES, YOU INSENSTIVE TATORTOT!! I can be very sensitive, but my venting calmed my nerves.

Good talkin to ya!
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Avatar_n_tn
LoL... well depending on how you answered
(or if you possibly took that wrong)...
then I was gonna post....

"But What If I PROMISE To Leave... will ya throw a party for me then"......I could do either.... LoL

I'll bet your gonna be a hoot on TX... Ha!

Glad to meet you... & seriously regardless of people agreeing to disagree & what-nots, or what-evers this is still the most Gosh Darned informaticve place I have ever found on the net!

Glad You Stumbled Across It!
:)
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Avatar_n_tn
Well I am smokin Chicken Today... so bring your appetites!
Ha!
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Avatar_n_tn
It's been a while for me, so looks like alot is going on..
but there was a thread somewhere that looked like suggestions for the forum to run better,
so if someone is paying attention and going to update the system.
I would like to see a way to go to the forum and click on
1. posts since your last visit
2. post that you started & now have responses
3. post that are in need of responses

Does this make sense?
sometimes, I might respond to something so long ago
I wonder if anyone saw it, then I think, great they
didn't , it wasn't written well anyway.

but to go quickly to 'most recent posts'
or 'posts since your last visit' is my idea of a good
time.
ok, now having said all that, I have lots of catching up on my reading to do now.
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Avatar_n_tn
Wow!  Maybe I don't get out much but this board today is unbelievable.  I truly can't believe some of the unkind and petty minded nonsense that's gone on today.  

For whatever it's worth, I too vervently agree with Myown in hoping that you don't go anywhere.  Quite honestly, whenever I post a question, I'm sort of hoping that you'll be one of the folks that responds.  You do bring a kind of quiet calm to the board. I've not ever seen you try to take over in any way. You are knowledgeable and when you respond, I know that response is going to be concise, thorough and well thought out.  Like a lot of other people here, I'm newly diagnosed, just started treatment yesterday and it's downright comforting to know I can come to the board and get answers and advice and you are one of the best at those things.  It's really sad to know that people can be run off because they're perhaps too smart, diplomatic, or sincere? I guess you are intimating to some, but to me, you're  a voice of reason.  I sincerely hope you don't stop or even slow down posting.  I always enjoy and appreciate your posts.  Just a thought...would it make sense to just skip right over the posts from people that you know in advance may be falsely sincere or consistently critical...I mean just skip the hell over them. I don't see why you have to continuouly feel like you have to defend yourself.  Who cares what they say?  You know you're not trying to take over the board or be a dictator or whatever the hell it is that you're supposed to be doing, so why concern yourself.  I know that's easier said than done but please just know that you would be sorely missed.

THanks for all of your help and wisdom.

Charlotte
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Avatar_n_tn
You all make me laugh, I love it.
I was going to say...similiar...

actually I have wondered would anyone
miss me?....if I ever would be missed, or would
I just be one less post to read??

does that show my insecurities or what.????

or just childish behavior??

anyway, glad to be back on line after a break of
way too long
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Avatar_n_tn
i am pretty new to the forum and not getting in the middle of anything but. i have been posting more and noticed not to many posting back..thought were busy and wouldn't dream of thinking being ignored? know you all are going through lots of things 2. i am happy just being able to put my thoughts feelings out there and if someone chooses to post bck i appreciate it greatly. i might act out of character at times but i am not completely crazy..or at least not yet..tx is hard and jimjim has given me some sound advise as have others..chevy,52 and so so many of you..i appreciate it always..thank you :)
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Avatar_f_tn
Talk about leaving vs staying. You must be just lurking these days, cuz never seen ya here this neck of the woods. Where ya been? You thought or think I'm nutsie by my post and came to the rescue. lol What a kind soul you are,can I call you Tator and leave out the tot?

Are you one of the informed people that I can count on???? huh, huh??? How much ya know about tx and sx and ads and all that??

Your comment,"you're going to be a hoot" comment. boo-hoo *crying with head on desk*, I think that was sorta, kinda "negative" slightly -little bit... meaning I need help with my inner child. Amazing how I can figure this stuff out. *feeling better about self, head is almost in upright position*

So on a serious note... Where are you as far as treatment? Hope your finished and all is well. What's your genotype? Ya know this is depressing when you think about it. Sad..remember years back, we would ask, what your sign? Hope you stopped asking people that. (If not, stop now, not cool.) Now we're in a camp where we ask, what's your genotype. Bummed out again  *her head is back on desk with eyes welling up with water.*

Well, keep me in your prayers cuz I can't stand thinking about treatment, being I fall into the "hoot category," your right. I'm hoping I am like Way or Rock with little to no sides, this way I won't be a hoot. lol...help!!!

good to meet ya. Stop ya lurking and add to the info pool for us newbie babies.


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Avatar_n_tn
Chev....
Well I am fixin to leave work now (been trying to get out of here since this morning) but I'll be home in 5 minutes, If You promise to have the table set & a salad made, you can eat with me.... but you gotta bring some of your organic tomatoes! Otherwose it looks like peanutbutter & jelly for you.. Haa, Haa!

StangShelly...
Same thing happened to me back in October 03, & we even had limited threads back then.... I don't think it's so much ignored as it is just simply OVER LOOKED

Paris....
LoL (We're insecure & Childish)... Ha... Least I am, & TX only amplified it.... Double Ha... so join the crowd! Actually I Like Your Idea.... & I Liked Part Of Jims Too... but your idea address's the issues I was concerned with better...

Here's what I wrote this morning, but decided not to post when things started going ascrew:

************************************************************

Well I get totally LOST in all the new threads & wadding thru them now.... BUT I never come up here to contribute any more since I am no longer treating... so I just stick to old unused, or lower threads & talk about basically NOTHING....
Although I rarely post up here, I have always tried to keep up with old friends & read..... but It's almost impossible to do that now, & if you miss a day or two... then there is no catching up...

Makes me wonder how much VALUABLE Info is getting buried, or how many might feel as if they are getting ignored!

If I recall correctly it seems like back when the threads were restricted, that everybody wanted more, & unlimited posting.... Thus the old "be careful what ya pray for cause you might just get it" antage kicks in ...... but now it almost seems like TOO many.....

Then Also If I remeber correctly the powers at be actually tried it with "Just The Titles" before, & nobody liked it because they couldn't see who all was on the threads & If they wher being addressed... so to see IF anyone was talking to you, you had to open up each & every thread to see IF Your name was mentioned.... ????

I think you are dead on with opening a thread per title, or question & not combining questions on threads.... & although change comes with some advantages, some people are still not going to be happy... I just don't think you can ever please everyone..... so is there any real solution to the madness...???

Okay, I'm going back to the bottom to stay out of everyones way... but I am reading (When I Can) But I sure am missing a LOT These days......

Sooooo I'll be watching from afar & I want to THANK all those wonderful people whom rallied together & helped me during my time of need... I haven't posted about it for OBVIOUS Reasons... so let's leave it at that & ya'll know who you are... but I just wanted to let ya'll know that you haven't been forgotten, & that you're appreciated, & that not a day goes by that I don't think about all ya'll...

:)


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Avatar_n_tn
Please forgive me for the cut and paste, but this was well written and it's me so well.... & I don't always get to express myself this well, so please forgive me for my cut and paste.
but I wanted to say something as I catch up on the posts.
I've been out for awhile..
Quote from another post that was great!!
thanks..


"It is unfortunate that we have to critize each other at all. I for one, know I can't take conflict or stress at all during tx. I am very fragile and this is certainly not the place I want to come and be put down. We are all sick here or have loved ones that are. I don't understand why posters feel the need to critize each other personally. I know we can debate and disagree, but there is no reason I can think of to disrespect other members for what they ask questions about or how they post. If we don't like someones' style or questions or posts WE can just skip them over. This is the beauty of having more threads. It really isn't that hard to pass them by

Sometimes tx does make us more angry, but it's still no reason to go off on someone else."
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Avatar_n_tn
You like my ideas...
whew....I'm on cloud 9
thanks

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86075_tn?1238118691
Nice to see you gals and guys have spunk! Youre able to withstand the "board wars" jockeying for position, ego fights, etc...looks like you've found the "holy grail" secret at these types of boards....seek out the good and informative, ignore the rest...

These "airing outs" usually blow over soon enough, then it's back to "normal crazy"...ha ha! But yeah, lots of good insights, information, support from a lot of good people here, whether you like them personally or not, we're all here for the same reason....hopefully in the near future, there won't be much reason for hep c boards, because the disease will be something of the past...then we'll all go argue on those sports and political boards like that one guy was talking about, ha ha ha! Just kiddin...Good luck to everybody....
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Avatar_n_tn
LoL.. we posted at the same time....
Really I only live like 5 minutes away from work... so I'll answer when I get home.... I have been trying to get OUT Of Work Since 10:30 this a.m.  but NOOooooo It Didn't Work...

Darn It!

I'll be back in just a few & catch up..
Psst... You are already a hoot... TX just amplifies pre-existing Don't Cha Know... Ha!

Yea.. you can call me Tater Everyone else does these days... Heck I'm sure I've been called worse!

See ya in a few! LoL
:)
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Avatar_f_tn
Tell me your not for real! I totally disagree with your "thought processing." You may categorize yourself but leave others out of it. Jim has taken the time to become knowledgable about this disease and is willing to take extra time to share this with all, in a way that is understandable and sincere, and what YOU do with it, is what YOU do with it.

Sandy
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Avatar_n_tn
Jim, you were the first person to answer my questions as a newbie over a month ago. Thank you for welcoming me and giving me a more calm perspective regarding my dx. I have since zeroed in on your posts and have learned so much. In fact, I'm due to receive my VL, genotype, and bx report next week, and was looking forward to running this info by you and asking your opinion on how to possibly proceed--simply because I value your knowledge and show of compassion.

I'm certain your leaving is our loss. Wishing you all the best.

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Avatar_f_tn
not again!! another please stay thread!  and then there will be another "Here I am. couldn't stay away thread" and people spending the whole thread thanking the person for coming back and there she/he is the center of attention again>
it is getting mighty old after three years.
please, people let folks do what they want to do and stop feeding their egos!

tator please stay!! pretty please!!!
notice how i never say goodbye (to many people's dismay?) because I know I will be back and it is kind of embarrassing leaving with a bang only to come back a few days later.  
If you want to leave, just leave, stop announcing it to get a reaction.
it's a free forum
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Avatar_f_tn
Thanks equine, appreciate your dittos.

Paris..good idea's you have. Are you the girl who was in the bottom ten of American Idol? You have a nice voice. lol Hey i'm calling the Star newpaper...

stangshelly, hi, I think maybe the reason you don't receive alot of posts is some of your questions were very technical and can only be addressed by doctors or people on the site who have been around a long time, but as you stated, you have received sound advice and that's what counts. Wish you the best!

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Avatar_n_tn
Chill Pill, can I have one??

sorry, but just the thought made me laugh,
you see for once, I am having a good evening.
and for once I feel like I can't write.
and for once I feel good...
but hey you got some chill pills...????
with all my hep c drugs
and my bipolar drugs
I want more!!
MORE!!

love ya (insert smile here)
thanks for making me smile,
and letting me smile
and helping me smile,
the first good day in .... a LONG TIME
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86075_tn?1238118691
Hey Jim only said he wanted to take break, that he maybe was posting too much...personally, I like the fact that he posts a lot, he helps a lot of people out, but believe me, Jim and I don't agree on everything...and he's always been okay about me not agreeing with him on something, he's big enough not to take it personally...if we all agreed on everything we'd all be pod people....But I can see where he might not need this much aggravation and need to take a break...hope all is well with everyone...

But the best post yet was SlowSoutherstyle, he he he! the one where he said he was used to people falling in love with him at work, ha ha! Talk about a hoot!!!!
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Avatar_n_tn
Sorry that wasn't me, can't carry a tune,
but try,
I do a great Bob Dylan or Neil Young impression!
Which in case anyone cares or not...
I get to see Dylan Aug 19
and Neil Young Aug 12
what a novel coincidense..
must learn to spell, can't sing,
can't spell,
can't hardly express myself...with this brain fog.
guess I'll go eat worms..
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Avatar_n_tn
I didn't get to respond to the post...regarding attitude
during tx..already full..

Just wanted to say

Yes, this one reason my dr wouldn't let me start tx until
the spring (I started in March)
the dr agreed with how the weather affects peoples attitudes
and then your attitude  can then affect sx of tx.

My sx have been bad, but I do feel fortunate that they are
not as bad as I thought they would be, and the support here
is part of the help I get with maintaining the positive attitude.
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Avatar_f_tn
Hi, great name. I can relate. How come that's not my name? Why didn't I think of that?? I admire your clever mind. See, isn't that nice?? I am not going to try to pull you apart because you know how to come up with a good name . And, if I write a book, I will ask you to read it and come up with a title. This is called admiring someones gifts and talents. I know you agree. You're cool because you agreed with me about Jim..Friends to the end baby. ha

Okay enough with my stupid, silly, stuff. Can you tell me about your first day of treatment? How did you do with the injection?Did you do it at the doctors office? Did sx come right away and how are you feeling now. also are you on ads and if yes, which one?

Thanks, I am nervous about upcomming tx, but only when I think about it(24/7). Tator says I'm gonna be a hoot on treatment, so now the cat is out of the bag to the entire internet. Luckily no one can see us, but just in case, I wear one of those fake big noses with the mustache when I go on this site. Cleaver huh? Hope your first day went well and continues. Let me know please when you get a chance. Thanks prettydamscared.
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Avatar_n_tn
I wish you could come along,--anywhere close to MD?
my big fear, I'll be too tired,
my fatigue is one of my top 3 complaints.
So lets get Shelly and get going before the
fatigue sets in again...
ready ...
set...
we're off....
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Avatar_f_tn
Going to Dylan concert, enjoy yourself. I used to listen to him all the time back way when. "Just like a woman,"  most incredible song!! He can write music for sure. Have fun.
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Avatar_n_tn
Wish you were closer,
anyway...one thing I think I do different than
others (I think from what I read most seem
take their shots on Fridays)
I take my shot on Mondays.
I have a different way of looking at my life
due to having lost years to the bipolar ****

So by the time the weekend comes, I am 'a little' better
but not my usual high energy self.
But 'the show must go on'
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Avatar_n_tn
One of my favorites!!

I used to listen to him, since I had
older brothers, and must admit I hated his music,
at first...I secretly wanted my brothers attention, not
to listen to music...sheesh...
but then I 'woke up', and really heard the music,
and when I did.. just couldn't get enough music in my
life....
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Avatar_n_tn
My good god, the drama here the past couple of days is just incredible. If it wasn't for something I read yesterday it would be laughable. Why DON'T some of you take a break? Anything that pleases you and makes you stop obsessing about this virus? It seems so many of you eat, sleep, breathe HepC, don't you have anything else to do???

Myown, the last comment on the thread "State of mind and sx on Tx" was yours yesterday and I have to say, it was the rudist comment I have ever read on this forum. I hope that when you start tx and perhaps have an off day, you are not attacked like you attacked Mike. Obviously you have no idea what Mike has been through the past years and no idea what a gentleman he is, if you had a clue, I'm sure you would have re-evaluated your attitude. At least I can only hope so.

Mattie
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Avatar_f_tn
You have the right attitude. You said you and Jim may at times disagree, but you  I can see you obviously don't have venom dripping from your fangs because of it. I can hear by your tone, that you have respect for one another. That's the way it should be.

It amazes me how someone even came on board, Cuteous, not to mention any names, to say "oh no ,another please don't leave post".Why wouldn't cuteous just pass over the post. People are worried about Jim getting attention from people....well what was that??? I think maybe Cuteous was looking for some. Ya know I don't know half the time who is female or male and if they say, i forget half the time, but this petty stuff is very FEMALE and I am a female, who can't stand men who act female. Not to knock women, but "petty we be" at times. But when men act like this...euh, gag me. So I hope most of these attacks are comming from females. Not to insult my sisters here, but you know how we can be at times. But anyhow forsee, thanks for letting me know that this garbage will pass, because I was so happty to find this sight and then all this crapola started.Looking forward to better days ahead.
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Avatar_n_tn
Ok, you want me to show my age???
ready????
I saw Aerosmith, in DC, when they were the
opening show for 'Mott the Hoople"
yes , I did say Mott the Hoople.
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Avatar_m_tn
Mike has been a big help to this board. Why don't you read YOUR post. Who ever you really are.
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Avatar_m_tn
hey jim, i'm also a newbie that you have helped and i will continue to feed your ego if that is what it will take to keep getting the valuble info that you provide here. as you can see by the posts in this thread that you are needed and appreciated here by MANY. so do let a few jerks push you away. for you to have hung around here this long must be because you like helping people with this dreaded disease.

PS, it is not that hard to start your own forum (for FREE) and you would have the power to boot these troublemakers. you would have 75% of the posters here move over to that forum. if you want i can email you with the info.
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86075_tn?1238118691
Let's all take a chill pill, newcomers can't know the history of all the regulars here and take that into consideration when they are posting complaints - and even a regular can make mistakes and have bad days, God knows...and Mike apologized for it and all was forgiven...wish everyone would just get back to trying to cope the best way they can with this disease and all it's variations and let's all just let bygones be bygones, this stuff has gone on way too long...just my two cents...
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Avatar_f_tn
Well I guess you were blinded by your love for mike that you didn't see his rude comments.Lots of others did. Continue reading. Whatever people have been through does not give them the right to think they can be condescending and knock people for what they post. From grade school on, never keep my mouth quiet when I saw a bully in action. Sometimes people get away with soemthing for so long, they think it won't catch up. But then comes a knock at the door. I don't dislike him, don't know him. Just think he and others should stop bullying people.
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Avatar_f_tn
Get help
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86075_tn?1238118691
I didnt notice I was speaking for Mike, I made an observation, different thing entirely...
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Avatar_m_tn
Jim what's this I hear you want to leave. we all value and trust your opinions. YOU HELPED ME WHEN I WAS ON THE VERGE OF QUITING!!!! if you leave what's the use
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Avatar_n_tn
Hi Foresee,

Yep, you put it well when you spoke of "airing out" on these boards.  I hope we're finished with that for a while....I'm just shaking my head here.  I guess I'm not used to all this drama and I have teenagers.

Myown, thanks for the compliment regarding my nickname.  It actually doesn't feel that clever...it was just basically really accurate at the time, although I'm pretty much past the scared part.  Like FLguy said the other day, at this point I should be calling myself pretty dam lucky.  lol

I did start treatment yesterday through the vertex-950 trials. The study nurse gave me the first shot in the office although I will be doing them at home myself from now on.  I'm not on any ads.  The sides came on rather quickly and very intensely.  I felt like I had a really bad flu, ached all over, chills, fever, even my teeth hurt.  For a while I was really upset & thinking how does everyone do this each week. I actually even cried when no one was around, wimp that I am.  

Just as suddenly as the sx came on, they abated around 10:00 last night, so they were really only intense for 5 or 6 hours.  I've been tired and listless all day today...accomplished very little but I could have if I'd pushed myself.  All in all, it wasn't that bad for me, because the really bad sx didn't last that long.  I did take tylenol which helped a lot.  So far, I feel this is do-able and I am sort of a baby about pain and suffering.  If I can do it, you can too.  

I know what you mean about thinking about it 24/7....I think that's kinda normal.  For me, the anticipation and fear leading up to that first shot were worse than actually doing it.  I'm glad the 1st shot is over with cuz now I know more what to expect.  Hopefully , it'll be that way for you too.

I'll keep you posted and I'm sure we'll be talking as your start date gets closer.

All the best, Charlotte
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