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[TnHepGuy]

The following was too big to put in this opening thread. I'll post it right below here:

[Galen]

Actually, while the last debacle was mainly woman to woman, the current one is attack is mainly being carried out by men (TnHepGuy,revenire)as have several in the past. I also agree that those with issues against each other should exchange phone numbers and keep us all out of it.  However, perhaps your AD needs adjustment if you are having unreasonably angry feelings toward women ;)

[St. Georgie-Girl]

"Think for yourselves, and let others enjoy the privilege to do so too."

Essay on Tolerance
Voltaire

[berlynn]

That would be confused..  berlynn

[berlynn]

OK now I'm really confuses???? berlynn

[newb]

Could you please just shut up for awhile?

You're taking up band-width that could be used for meaningful discussion.

You KNOW that we only have a limited amount of posts and space each day, DON'T YOU??

sincerely,
newb

[harley dude]

I've been following this forum for about 10 months now and all the fights I have seen on here were mainly Women, it might be the fact that the Womans body reacts different to interferon + ribaviran. Some of the fights that start on here are like a bunch of grade school kids fighting just because they are bored. And alot of the fights that start out on here are just plain stupidity. I feel if you don't like what a person posts, just don't comment on it, unless it is posted directly to you. And also I've noticed the Men on here are usaually trying to break up the fights and say humorous things just to break the tension of the moment(way to go guys). This forum is here to ask questions about HCV, especially when you are a newby, you are in the dark about almost everything. This is the main reason for this forum- Questions and answer, it's ok to tell a funny story now and again and jokingly tease people here and there, if you want to argue back and forth amongst each other, get each others E-Mail addresses and go that route. Please let this forum run like it was set up to run- To help those that need answers on a very serious disease.-- HD

[audreywald]

Not fair. You have no right to hit someone you barely know so hard in the funnybone!!

THAT was hilarious.

[Indiana]

Dear Abby,

My husband is not happy with my mood swings. The other day, he bought me a mood ring so he would be able to monitor my moods. When I'm in a good mood it turns green. When I'm in a bad mood it leaves a big ******* red mark on his forehead. Maybe next time he'll buy me a diamond.

Sincerely,
Bitchy in Boston


  Sorry for the distraction.........
  You can all go back to fightin again.........
  I'm just happy and enjoyin myself today.......

[audreywald]

WOW!  I must really be losing it, I seem to agree with everything you are all saying, even the opposing views.

Here is my 2 cents worth: I was introduced to this forum by a friend I met through email via the pegassist site. I was told that this is a place where I could get and give support. That is why I come here. I need and want to talk with other people who have hep C. That is what it says at the top, a patient to patient forum.

There are LOTS of places to get information, medical information, herbal information, treatment information, alternative treatments. Really there are. THIS forum is supposed to be for the patients with hep C. The ones on tx and the ones not on tx.

I am on tx but every day is a struggle and this is the hardest thing I have ever been through. I am not totally pro treatment. I have friends who are going with Chinese herbs, friends who are on this tx, friends who are basically living healthy lives and doing nothing else now, a friend on the transplant list who was on 5 different courses of treatment and is alive because of these drugs. I totally do not know what is for sure right for anyone, not even myself.

Some people say, you MUST be totally committed to this tx. You must research it and then give it your all. I am trying my best, but am by no means locked into this to the death. And I spent 7 years researching this and think this is my best shot (for now) but if I am unable to stick it out or am a non responder, I will still be here or at some forum, talking with other people with hep c.

Just look up when you start a post here. It says, in red, "this form is for patient to patient COMMENTS only."

It doesn't mean Teresa Haneby is a bad guy or a monster or a person who means to cause harm. It just means that this is not the place for her.

Is it so terrible that we patients have a place just for us?

[jg2001]

How do they do this....(((((HUGS)))) or is it {{{HUGS}}}}... or [[[HUGS]]]...who knows!  Ya get my point!

Jamie

[hph5477]

Will all of this stop if I holler "calf rope"? so we can get back to the business of helping and providing support for each other.

[jg2001]

Well put.  Along with Tallblonde, Honey, Reposyco (love that name)and yes, Ringading, have said, we must look at all issues relating to this disease.  I was diagnosed in Nov. 2003 with HCV.  I am a 1b...however, through the testing, it has been determined that my body has fought off this on its own.  Why do I have to continue to test?  Is there a chance that it may become active?  If it does, will I treat?  What alternate treatments are being explored that maybe available in the near future?  How will my body hold up against the current treatments considering my current medical problems?...whatever.  I have found that most posts can be beneficial or hold some substantive information if read with an open mind.  If it doesn't pertain, then let it go.  There can be a softer resolve to this controversy.

Jamie

[Tallblonde]

So if Thanbey removes the link to her website when she posts in the future, everything's cool with you and TnHepGuy?  Okay, point taken.  All THIS over a little link to a website.  Wow.

[Tony-z]

Folks Step back and take a long look at what everyone is saying. I have been comming to this board for many years and have never seen this. Were here for a greater goal.

            God Bless,

                  Tony

[Revenire]

Free speech is something we all value.

People can post what they like but if we're debating some scientific issue or aspect of treatment people should be able to ask questions too right? If the person asked doesn't know the answer just say so. Easy.

I'm not a doctor, not an expect on HCV, etc. I am learning and want to learn.

Teresa presented herself as "the final word" on whether peginterferons are antifibrotics (and I do not believe the HALT-C or COPILOT studies are completed) and contradited Dr. Dieterich on whether the peginterferon molecule crosses the blood brain barrier. I sided with the doctor and simply asked for something that would prove him wrong: Teresa came up empty handed. That is what started ALL of this.

Then it came out that a few other members here knew her from other websites.

Of course, charities need money. Is this the place to solicit? I don't know. I am here to learn, support, get support and have some fun while doing it.

[Revenire]

I agree with you on that one.

And, please tell me if I am wrong but when we both pointed out studies showing peginterferons do act as antifibrotics -- they can and do reverse firbosis -- Teresa attempted to refute that fact.

[Galen]

I, for one, think that YOU are the divisive force on this forum  Everyone has been extremely polite and accepting of the attacks you have launched on Thanby.  I've been on this site for about two years now and finished tx last September, but continue to check in fairly regularly to see what is happening to my "family".  That makes me an ex-patient.  So am I no longer allowed to post either?  Many of the folks here, inclucing Indiana, britgirl, tallblonde, jg2001, greatbird, and others have asked for a cessation of the hostilites toward Ms Hanby, but you seem unable to let her post in peace.  She has never posted even the smallest negative word about you or her other detractors.  You are single-handedly driving a wedge between the folks with HCV and this forum.  I respectfully request that you cease your crusade against this woman who has never been anything but civil and let everyone make up his or her own mind about the extremely personal decision to treat.

[Fubarcat]

I am amazed.  This thread goes on and on about the pros and cons of Dr. Henby.  I have no dog in that fight and do not intend to get into that mess.  What I am amazed about is the post just previous to this where Breslinhoops was asking for advice and the only person kind enough to respond to him was Galen.  Everybody else was too busy stating their position on the Henby issue.  Everybody says this is a patient to patient forum and here Breslinhoops is asking for help and nobody jumped in to help except Galen.  Shame, shame, shame.  I'll continue to review the posts on this board, but I'm quickly leaning to taking Kimmy's (Ringading) approach.  I never contributed that much, so I know I won't be missed, but I feel very bad for the newbies who come here for help and all they read about is bickering about whether or not to consider all opinions.

[honey1616]

Hey Dr. Scott,,,,Ok...I understood everything you have said today, yesterday, day before. You got my attention.  I know you are totally pissed about her no reply to your blood brain barrier.  Its been eating away at ya and I hear ya but...What do you want us to do with this?  I mean seriously...what do you want to see happen here?  Her leaving the board totally?  Will that make you happy?   You then say...then it comes out that a few know her from other boards???  I said I have been to her website but know her...NO  I never knew her but saw some of her postings elsewhere.  I only recognized her name when she first posted here.  So...actually didn't know or understand where you were going with that comment???  As far as the donations..are you donating?  Don't worry about it..if people want to donate they will.  Her links certaintly arent going to twist my arms or mind...only if I allow it.

[Revenire]

I didn't mean you. I meant the people who posted derogatory comments directed toward Teresa who knew her from other message boards.

Actually, I believe mofosr echoes my sentiments.

All I wanted was an answer. I am not out to banish anyone to Siberia.

[newb]

mofosr and tnhepguy,

Thank you for such great explanations of this issue. Here's my pathetic attempt....

When a newbie goes online to get information about their just-diagnosed hcv, there's a good chance that they'll end up on one of the hep boards, like medhelp.org or healthboards.com. If they were to read only one-sided descriptions of failed treatments, explanations of why the current treatments won't work, and the horrible, debilitating disorders that will definitely occur because of having been on tx. AND when any and all tx-positive input is BANNED, then that totally skews the reality. If you go to the healthboards site, where Thanbey is the queen bee that everyone comes to when they're desperate for information and she completely discourages them from attempting tx, and when anyone willing to refute that information isn't allowed to post and you have a small cult following of ThanFan dittoheads, then you would have a completely one-sided, negative view of the tx reality.  Phew.

There's also the  "posing as a doctor" component to this whole thing that bothers me, and the fundraising stuff too. I apologize for my negativity on this matter, but I've gotten most info about hcv from the web, and am so happy that I found all the knowledgable, helpful, and generous people here at medhelp rather than continuing to read the **** on other boards.

A great weekend to you all,
newb (now doneB!)

[jg2001]

Can we calf rope in the bomb shelter?

[Revenire]

Doesn't the posing as a DOCTOR bother anyone?

Surely, she looked at the site as she advertised it in her long-winded "look at me" listing of her reasons for sainthood.

What does it say about the site if they didn't even bother to check out her credentials before they listed her as a doctor?

[newb]

Yes, it does bother me. I think people on other boards assume she is a doctor, because she always seems to be so knowledgable about hcv, she's always there with answers, and she has the authority of her organization in her signature.

People who are in shock about a recent diagnosis and desperate for information might unwittingly stumble upon someone claiming to be an authority on hep c, that's not. It's important to let other people know the truth and to urge them not believe everything they read.

newb