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468276 tn?1207107867

Alinia Trial over for me

I just wanted to check in for y'all who are interested in Alinia.  After 12 weeks of standard treatment and 16 weeks of Alinia (or placebo) I failed to reach a 2Log drop.  I started at 20 million and ended up at 570,000 and rising.  I have treated twice before and always made the 2Log drop Wk 12 but failed to clear.  I will say this 3rd treatment was the easiest.  The depression and fatigue that hit me like a truck the first time are much easier to see coming and head off.

I guess I will start daily Infergen as soon as it is approved but don't feel too motivated with this latest news.  I really like this forum and the old regulars.  It keeps me up on the latest treatment info and your stories are appreciated.

Background:
Gen 1A, stage 3 fibrosis, twice non-responder, started first treatment 2005, I feel like I am forgetting something (my current state of mind)

5 Responses
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Avatar universal
Oh, how disappointing for you!

Thank you for letting us know.  Would be great if you could post when you find out if you got the alinia or the placebo,

Good luck to you.  This disease sux,

dointime    
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Avatar universal
sorry you did not clear. you are a true warrior to have tried tx 3 times. hopefully the new PI meds in trial will be what is needed to kill the dragon. best of luck
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548668 tn?1394187222
Your strength is really motivating;  I'm sorry for what you've had to endure to get such a result....  There are some other infergen users on this site.   If no-one else comes on board this thread, perhaps start a new one entitled 'infergen'.   I really wish you the very best and thankyou for the heads up on the depression and fatigue.  I so hope your determination and persistance get the results on the infergen.  
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Avatar universal
Have you had any additional medical problems after treatment?  I tried treatment twice and it did not work.  I now have medical problems developing, I believe, from the meds taken.  I have constant gas, my nails seem to be rottening, and I developed a lot of cavaties after treatment.
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Avatar universal
sorry, jm ps when do you find out if you were in the control? if so are you still interested in alinia?
Helpful - 0
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