Aa
Allergy Medication Post TX / Use for Other Posts
Does anyone know if medications, such as Claratin, are okay following tx? I'm primarily interested from the perspective of relapse, not liver health (my liver is okay:). Thanks!
Stop the abuse your putting on Majneni
(hows that for not staying silent?
It seems that majneni wrote nothing to deserve the rant above
(hows that for not staying silent?
It seems that majneni wrote nothing to deserve the rant above
Rev: I really don't know what you're talking about re: my e-mails to the "victimS". I only ever had e-mail with Chevy; and that was meant to be private, between the two of us. I was hoping I could understand how two good people could interpret the same events and words in such diametrically opposed ways. It is still a mystery to me, but I can live with unanswered questions.
Scott, we started the main tx round about the same time. Hatred and anger are toxic to the liver, which Native Americans held to be the center of the emotions. I truly wish you healing. Part of that is letting go.
Maj Neni
Scott, we started the main tx round about the same time. Hatred and anger are toxic to the liver, which Native Americans held to be the center of the emotions. I truly wish you healing. Part of that is letting go.
Maj Neni
Thanks to all of my friends for the good wishes.
Califia, you must be somewhere in the doldrums now, in the 30's? Did I by any chance run into you at the original Great Human Be In? Lol. Just a bit of history there... I hope your arm is ok now. I love your gritty attitude. How else does one get through this scandalous HepC thing except by spitting in its face?
Cuteus (and others who have finished by now), hang on tight. The waiting is such mental torture; if a S.O. did this to us, we could have them arrested for abuse. I still want to join in on any gathering in the NYC area that you may organize. How about at Bear Mountain next summer? Just holler "yahooooooo!"
Ambush, :) right back at you.
Cao, I'm taking Clarinex right now. Dr. ordered it. I don't think it will bring back the varmints, and it's way better than sneezing my brains out... good luck with it all.
This disease is so da...d overwhelming at times, and keeps lobbing one thing after another at us. Only thing we can do is treat it with contempt, beat it back as well as we can.
Louiseep, Susan, good luck; I truly hope your efforts are rewarded. Beware, this site does not have enough threads to handle too many child care questions... which I hope you will soon have in great abundance.
Honey, you sure sound like you're starting to feel better. See you around... How's Mr.Honey?
Ben, thanks for the good wishes. You are ok post tx, right?
Hepcgetlost, good luck for these final weeks. Hopefully you'll get your hands on someone's leftovers... but I have a good feeling that you'll be ok now. I'll hold you in the Light.
TonyZ, you're a doll. Keep it together, bro.
Layla, you're still around! How are things with you?
Ral, I hope things are improving for you.
Mikesimon, you... are... the... best.
DH, hope you're feeling good and out there riding again!
AKHepper, I'd bet it's colder here today, with wind chill factor. How are you?
Everybody, I wish you all restored health. Laugh as much as you can, it's good medicine.
Doubledose,
I realize that the aches and pains that riddle me in one place, then another, seem to arise spontaneously... and I think they may be related to the treatment, cuz so far all the tests for various culprits are negative. I think we haven't tested yet for Cryo, and Sjoergen's also has connective tissue, etc. aspects; those two are definitely highly correlated with HepC. I'm dealing with the problems one or two at a time, because my docs look at it like that: my PCP, Rheumatologist, Physical Therapist, Dermatologist, Allergist and GI are not getting their heads together, but each looking at separate snapshots.
I may yet get nerve conduction studies, but actually the p.neuropathy has gotten better with the PT.
I've done PT for my hands and strengthened them. They're usually pretty good, but some days they're horribly stiff. Usually they are not visibly swollen, just stiff, can't grab things in the morning; later in the day they may be fine, and then zap, it's back. This is certainly nothing I ever had before tx. The trigger fingers have been a real surprise.
I also seem to very easily pull muscles and get sudden new pains; the PT said it's very easy to rip just one or two fibers of muscle and have a lot of pain, in the lower back for example. (This happened yesterday... or is someone sticking pins in my doll?) This is not necessarily from the tx, or interferon, but more likely from the out-of-shape condition I got myself into in the last decade and more, particularly during the tx time. I lost 26 lb including muscle during tx; that's like NOT lugging around about 3 gallons of milk. (This suggests that people on tx should always try to exercise and stay in shape as much as possible, and that getting in good shape before tx is great preparation.) Now I'm lugging that wieght again, with a slacker frame... and it's hard work to reverse that and build muscle. During the tx year, I was sooooo pooped out; now the PT sait I had a stoopy posture that pinched the nerve; I had great posture before! So it's reconstruction time. I just don't know what is directly connected to HepC or tx, and what is collateral damage. If you know of anyone who is putting these things together, let me know.
I just turned 58, and for the first time in the 14 years that I've known about my HepC, I am not contageous, I don't have a deadly disease. For me that's wonderful news, and it makes me walk through my life with great optimism. I'm dancing on my dragon's grave. This other stuff I can deal with.
Best to you all, from the most wordy Hepper of the century...
Maj Neni
Califia, you must be somewhere in the doldrums now, in the 30's? Did I by any chance run into you at the original Great Human Be In? Lol. Just a bit of history there... I hope your arm is ok now. I love your gritty attitude. How else does one get through this scandalous HepC thing except by spitting in its face?
Cuteus (and others who have finished by now), hang on tight. The waiting is such mental torture; if a S.O. did this to us, we could have them arrested for abuse. I still want to join in on any gathering in the NYC area that you may organize. How about at Bear Mountain next summer? Just holler "yahooooooo!"
Ambush, :) right back at you.
Cao, I'm taking Clarinex right now. Dr. ordered it. I don't think it will bring back the varmints, and it's way better than sneezing my brains out... good luck with it all.
This disease is so da...d overwhelming at times, and keeps lobbing one thing after another at us. Only thing we can do is treat it with contempt, beat it back as well as we can.
Louiseep, Susan, good luck; I truly hope your efforts are rewarded. Beware, this site does not have enough threads to handle too many child care questions... which I hope you will soon have in great abundance.
Honey, you sure sound like you're starting to feel better. See you around... How's Mr.Honey?
Ben, thanks for the good wishes. You are ok post tx, right?
Hepcgetlost, good luck for these final weeks. Hopefully you'll get your hands on someone's leftovers... but I have a good feeling that you'll be ok now. I'll hold you in the Light.
TonyZ, you're a doll. Keep it together, bro.
Layla, you're still around! How are things with you?
Ral, I hope things are improving for you.
Mikesimon, you... are... the... best.
DH, hope you're feeling good and out there riding again!
AKHepper, I'd bet it's colder here today, with wind chill factor. How are you?
Everybody, I wish you all restored health. Laugh as much as you can, it's good medicine.
Doubledose,
I realize that the aches and pains that riddle me in one place, then another, seem to arise spontaneously... and I think they may be related to the treatment, cuz so far all the tests for various culprits are negative. I think we haven't tested yet for Cryo, and Sjoergen's also has connective tissue, etc. aspects; those two are definitely highly correlated with HepC. I'm dealing with the problems one or two at a time, because my docs look at it like that: my PCP, Rheumatologist, Physical Therapist, Dermatologist, Allergist and GI are not getting their heads together, but each looking at separate snapshots.
I may yet get nerve conduction studies, but actually the p.neuropathy has gotten better with the PT.
I've done PT for my hands and strengthened them. They're usually pretty good, but some days they're horribly stiff. Usually they are not visibly swollen, just stiff, can't grab things in the morning; later in the day they may be fine, and then zap, it's back. This is certainly nothing I ever had before tx. The trigger fingers have been a real surprise.
I also seem to very easily pull muscles and get sudden new pains; the PT said it's very easy to rip just one or two fibers of muscle and have a lot of pain, in the lower back for example. (This happened yesterday... or is someone sticking pins in my doll?) This is not necessarily from the tx, or interferon, but more likely from the out-of-shape condition I got myself into in the last decade and more, particularly during the tx time. I lost 26 lb including muscle during tx; that's like NOT lugging around about 3 gallons of milk. (This suggests that people on tx should always try to exercise and stay in shape as much as possible, and that getting in good shape before tx is great preparation.) Now I'm lugging that wieght again, with a slacker frame... and it's hard work to reverse that and build muscle. During the tx year, I was sooooo pooped out; now the PT sait I had a stoopy posture that pinched the nerve; I had great posture before! So it's reconstruction time. I just don't know what is directly connected to HepC or tx, and what is collateral damage. If you know of anyone who is putting these things together, let me know.
I just turned 58, and for the first time in the 14 years that I've known about my HepC, I am not contageous, I don't have a deadly disease. For me that's wonderful news, and it makes me walk through my life with great optimism. I'm dancing on my dragon's grave. This other stuff I can deal with.
Best to you all, from the most wordy Hepper of the century...
Maj Neni
Maj, thank you so much for coming back to share the good news. It's so good to know that you've made it, and it gives me great hope for myself...on week 61 of 72....almost done, yippee!!!!
Please don't be a stranger. Your posts were always so great and helped a lot of us, many you don't even know. Congratulations, and enjoy every minute of your new virus-free life! Judi
Please don't be a stranger. Your posts were always so great and helped a lot of us, many you don't even know. Congratulations, and enjoy every minute of your new virus-free life! Judi
Congratulations!!! Great Work!!!
You may remember, I also was a 1-B, and I did 18 months high dose Peg-Intron/Riba tx, with many of the same problems you experienced. Procrit 2X/wk., RBC's in the low 8's, etc. But I cleared, and am near 18 months post-tx, and have tested clear ever since finishing tx.
It is interesting to hear your comments about a 'pinched nerve', Peripheral Neuropathy, etc. These are major post-tx issues I have also been fighting. I think the pinched nerve thing is either a long-term effect of HCV itself, OR from the heavy dosages of interferon. (also heavy tinnitus!!!)
My pinched nerve tends to be in the mid/upper back, and ribs, and flares up whenever it wants to, with no real connection to activity. I also experience neck and shoulder nerve pain, and a syndrome similar to 'pinched nerve'. I have had all the x-rays, and MRI studies known to man since ending tx, but no significant findings!
Please tell us more about YOUR arthritic issues, and 'pinched nerve' problems. There may be more connection to the post-tx effects than is currently understood. I cannot sleep on my side anymore, and have a variety of 'autoimmune type reactions regularly, including facial rash, arthritic symptoms, hot burning feelings in areas of the skin, low body temperature, etc.
I also saw a great rheumatologist, who found no typical markers, as in Luopus, RA, etc. BUT said my symptoms were similar to many he has seen who were post-tx interferon patients. The ANA is slightly to moderately elevated, and symptoms are autoimmune in nature.
What have you observed in your own post-tx symptoms????
DoubleDose
You may remember, I also was a 1-B, and I did 18 months high dose Peg-Intron/Riba tx, with many of the same problems you experienced. Procrit 2X/wk., RBC's in the low 8's, etc. But I cleared, and am near 18 months post-tx, and have tested clear ever since finishing tx.
It is interesting to hear your comments about a 'pinched nerve', Peripheral Neuropathy, etc. These are major post-tx issues I have also been fighting. I think the pinched nerve thing is either a long-term effect of HCV itself, OR from the heavy dosages of interferon. (also heavy tinnitus!!!)
My pinched nerve tends to be in the mid/upper back, and ribs, and flares up whenever it wants to, with no real connection to activity. I also experience neck and shoulder nerve pain, and a syndrome similar to 'pinched nerve'. I have had all the x-rays, and MRI studies known to man since ending tx, but no significant findings!
Please tell us more about YOUR arthritic issues, and 'pinched nerve' problems. There may be more connection to the post-tx effects than is currently understood. I cannot sleep on my side anymore, and have a variety of 'autoimmune type reactions regularly, including facial rash, arthritic symptoms, hot burning feelings in areas of the skin, low body temperature, etc.
I also saw a great rheumatologist, who found no typical markers, as in Luopus, RA, etc. BUT said my symptoms were similar to many he has seen who were post-tx interferon patients. The ANA is slightly to moderately elevated, and symptoms are autoimmune in nature.
What have you observed in your own post-tx symptoms????
DoubleDose
Thanks all, for the good wishes & for all those crossed fingers & toes.
Tallblonde,
Good luck & best wishes for March 1st.
Louise
Tallblonde,
Good luck & best wishes for March 1st.
Louise
Hey Louise,
We're scheduled for a frozen embryo transfer on March 1st! Good luck with your IVF attempt. Perhaps you and I will both be looking forward to motherhood 9 months from now!
Please keep us posted on the outcome.
Susan
We're scheduled for a frozen embryo transfer on March 1st! Good luck with your IVF attempt. Perhaps you and I will both be looking forward to motherhood 9 months from now!
Please keep us posted on the outcome.
Susan
It's very kind and generous of you to come back to offer encouragement and hope. Thank you -- and best wishes for continued good health and much, much happiness!
Warmly,
Susan
Warmly,
Susan
Hey life sound like it's going much better for you now. I am so glad to hear you are feeling better. It is great that you stop in here and share your story so others can get some hope and inspiration. I only wish you the best health and much happiness. LL
Cao,
not sure if this is any help to you but I've been put on a steroid nasel spray for an allergy I have developed since completing tx successfully. Weird as I have never suffered with allergies before tx.
Also wanted to tell those that remember me here that my hubby & I start our first attempt at IVF next week in London & hoped some of you would keep your fingers crossed for us.
After being diagnosed with hep c & going through tx, we never thought we'd get the chance to try for a baby, but here we are.
Should be home around March 13th, hopefully pregnant. Will let you know how things go when I get back.
Best wishes to everyone
Louise
not sure if this is any help to you but I've been put on a steroid nasel spray for an allergy I have developed since completing tx successfully. Weird as I have never suffered with allergies before tx.
Also wanted to tell those that remember me here that my hubby & I start our first attempt at IVF next week in London & hoped some of you would keep your fingers crossed for us.
After being diagnosed with hep c & going through tx, we never thought we'd get the chance to try for a baby, but here we are.
Should be home around March 13th, hopefully pregnant. Will let you know how things go when I get back.
Best wishes to everyone
Louise
Greetings to my old Friends, and to those I have not met.
I haven't been here for a while. After being a member of this site for more than 2 years, I left here back in November. I was disheartened after a very ugly character assassination episode. A glance at other posts shows me that some people are still bickering and venting about old grudges. Most of you are giving and receiving support, info, humor, etc., so overall the list seems to be functioning. There are lots of people here who are able to support those who follow.
I am glad to report that I finally received the results of my 1-year post Heptimax, and I am clear. 1 year SVR.
MY HISTORY, briefly: Genotype 1b, VL 8.3 million IU. Stage 1, grade 2-3. I started twice with PegIntron & Ribavirin and had to stop early due to adverse events... I washed out for six months and got the best doctor I could find around here; much, much thanks to those who helped me through those times. On the third go, Feb.03-Jan.04, I was able to complete 48 weeks therapy. Most of the time I was riding at WBC around 1.4-->1.7, and HGB in the 8's, although I dipped below 8 some of the time. I was using Procrit and Neupogen most of the way through; 2x/week for about half the time. In addition to the Procrit and Neupogen shots, my ribavirin was greatly modified during the 2nd half: 16 days off in weeks 25-27, and reduced from 1200mg to 600-800mg most of the time after that. In the end, I pushed it to 1000mg for the last month on my own... I don't remember precisely, and don't have the papers in front of me.
Anyway, GAME'S OVER, and I WIN. I hope this gives some of you some hope.
AFTER TX, my blood counts came back to normal within about 2 months. My memory started improving immediately, and it is still improving. My energy level is better than 10 years ago. My vision improved. My appetite improved too much: the 26 lb. I lost on tx all came back and it didn't come as muscle, so I am now working on building muscle and losing fat. My skin and hair took the better part of a year to quiet down, but I can't remember when my hair was nicer. I do have some eczema and quite a few arthritis type problems; these include a series of trigger fingers (I'm on the 4th one) and various joint pains and limitations. RA and Lupus have been ruled out. These problems may come with the territory of advancing age; some may be due to a pinched nerve. I had some peripheral neuropathy; this, too, may be related to the pinched nerve. Physical therapy has helped a lot (thank God for insurance). We'll see. Life is good, and I am still riding the countryside on the SVR bus, enjoying the scenery.
I've tried to e-mail some friends here and had mail bounce. Keep up the fight when things look dark, around 30 weeks and beyond... Hope you are relatively well and that all here will eventually be cured, one way or another.
Maj Neni
I haven't been here for a while. After being a member of this site for more than 2 years, I left here back in November. I was disheartened after a very ugly character assassination episode. A glance at other posts shows me that some people are still bickering and venting about old grudges. Most of you are giving and receiving support, info, humor, etc., so overall the list seems to be functioning. There are lots of people here who are able to support those who follow.
I am glad to report that I finally received the results of my 1-year post Heptimax, and I am clear. 1 year SVR.
MY HISTORY, briefly: Genotype 1b, VL 8.3 million IU. Stage 1, grade 2-3. I started twice with PegIntron & Ribavirin and had to stop early due to adverse events... I washed out for six months and got the best doctor I could find around here; much, much thanks to those who helped me through those times. On the third go, Feb.03-Jan.04, I was able to complete 48 weeks therapy. Most of the time I was riding at WBC around 1.4-->1.7, and HGB in the 8's, although I dipped below 8 some of the time. I was using Procrit and Neupogen most of the way through; 2x/week for about half the time. In addition to the Procrit and Neupogen shots, my ribavirin was greatly modified during the 2nd half: 16 days off in weeks 25-27, and reduced from 1200mg to 600-800mg most of the time after that. In the end, I pushed it to 1000mg for the last month on my own... I don't remember precisely, and don't have the papers in front of me.
Anyway, GAME'S OVER, and I WIN. I hope this gives some of you some hope.
AFTER TX, my blood counts came back to normal within about 2 months. My memory started improving immediately, and it is still improving. My energy level is better than 10 years ago. My vision improved. My appetite improved too much: the 26 lb. I lost on tx all came back and it didn't come as muscle, so I am now working on building muscle and losing fat. My skin and hair took the better part of a year to quiet down, but I can't remember when my hair was nicer. I do have some eczema and quite a few arthritis type problems; these include a series of trigger fingers (I'm on the 4th one) and various joint pains and limitations. RA and Lupus have been ruled out. These problems may come with the territory of advancing age; some may be due to a pinched nerve. I had some peripheral neuropathy; this, too, may be related to the pinched nerve. Physical therapy has helped a lot (thank God for insurance). We'll see. Life is good, and I am still riding the countryside on the SVR bus, enjoying the scenery.
I've tried to e-mail some friends here and had mail bounce. Keep up the fight when things look dark, around 30 weeks and beyond... Hope you are relatively well and that all here will eventually be cured, one way or another.
Maj Neni
p.s. my 48 weeks was with Pegasys and Copegus.
(Each person is different and reacts differently. The side effects were much worse for me with Peg Intron.) MN
(Each person is different and reacts differently. The side effects were much worse for me with Peg Intron.) MN
I just wanted to let you know that I'll be thinking good thoughts for you and your IVF attempt. I have a few friends who have been through the whirlwind that is IVF and both have wonderful little kiddos now. Best of luck!
What an immense relief that the scandal which is Hep-C is over and finished for you. Please accept my warm congratulations! And thanks for braving these waters to share your news with the rest of us who are still making our way through treatment.
I wish you all good things with your IVF next week! Will keep fingers and toes crossed for you.
ambush
ambush
You already know how insanely happy I am for you!!! Onward and upward! I can see your smile from here :)
ambush
ambush
Louise,,,Ohhh that will be wonderful for you to have a baby! Can't wait to hear the good news!
Majneni,,,Wonderful news! Now that you are free of the dragon you will have to continue posting over here with your great sides remedies! You always have had plenty of good information and there is so many new coming in and starting tx. Its so encouraging to see so many 1's that are clearing,,,Especially when I see the high viral load...Free at last,,,Its been a long hard road for you but now you can just enjoy and no more worries! ((((hugs))))
Majneni,,,Wonderful news! Now that you are free of the dragon you will have to continue posting over here with your great sides remedies! You always have had plenty of good information and there is so many new coming in and starting tx. Its so encouraging to see so many 1's that are clearing,,,Especially when I see the high viral load...Free at last,,,Its been a long hard road for you but now you can just enjoy and no more worries! ((((hugs))))
GREAT NEWS & CONGRATS on your SVR results. Thank you for posting & pls update us more often.
Good luck all,
Ben
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