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You can't be too careful.
Second, I think Mike Simon's point is a good one. Perhaps these supplements and vitamins have more impact on cases that are less advanced. Maybe that's why I appear to be benefiting. My VL was low to begin with, and my liver biopsy revealed no fibrosis.
By the way, I haven't ruled out treatment prior to my next biopsy. If my symptoms become worse, or if my enzymes and VL begin to soar, I would definiately think seriously about doing treatment immediately. But it seems reasonable to me to wait and see if my body has the ability to fight off this disease on its own. My VL is only 1,580 I.U./mL -- a 93% decrease from six months ago. Something's happening. Maybe I'm still in the "acute" stage and have a chance at clearing this virus. I know the supplements don't have the ability to kill the virus, but maybe, in my case, they're giving my immune system just enough of a boost to make a difference. Still, I'm not getting my hopes up too high. It's VERY RARE to clear this without treatment.
Now, back to your original question. Here are the supplements I I've been taking daily for the past three months:
"Healthy Liver" (from Vitacost.com) - 6 capsules
Vitamin E (natural, not synthetic), - 800 I.U.
Ester-C - 2,000 mg.
Centrum Silver - 1 tablet
Sam-e - 400 mg.
BTW, the ingredients for "Healthy Liver" are listed on the Vitacost.com website. It contains Milk Thistle, selenium, alpha lipoic acid, etc. I used to take each of these things separately, which was really inconvenient (not enough room in my medicine cabinet!) and much more expensive.
Susan
Susan
So, I'm in favor of doing it all. And I'm still alive and take no meds @all now. I'm still working w/a very diseased damaged liver and have to stay on basically the same regime for ever.
I'm sure the total approach (incl meditation and exercise) helped me heal the damage, make the most of the tx and continues to keep me alive. BUT, it did not cure the virus.
As to what and how much to take, that's individual. Tallblond's suggestions are a good start. I use massive more amt's of many of the herbs & suppliments. I beleive in the top end of suggested use, and rely on Dr Andrew Weil's recommendations. So, i think 1200mg of milk thistle and SAM-e are more in the range needed. Also, I drink gallons of green tea w/ginsing and organic honey daily. Right now, I'm into fewer supplements and more fresh farm produce and juicing. I think its good to rest from a heavy vit/min/sup regime, esp during the summer.
Give yourself a few months to build up the depleted and missing things, then just do one thing-tx. If you're tired rest. If food makes you sick, move to a liquid diet you can sip all day. If your depressed-roll a joint and watch really bad tv. Take your vit/min in small dosages-not one massive pill of vit c, 4 little ones spread out, like that. It's nearly 3yrs since my bleed, 2 hep c free. So, what I'm doing works for me. Discover what works for you.
It is just hard for me to trust in a Dr., that is in the business to make money. By this he prescribes meds to make things tolerable. If he gave you a cure, he would be out of business. Medicine, is a business, simply put. If they developed cures and vaccines for viruses and diseases, population would sore, and Dr's and pharmacutical companies would be out of business.
After being dx, I went to an allergy Dr. to see if he could fix allergies. He told me that I had deviated septum, and surgery would fix all my problems. Damn, did he put his foot in his mouth!! three surgeries later to stop bleeding, 3 days in ICU, and nothing is better. Still have all the same sinus problems and some are worse.
I will probably not even get a break from tx, as I go to my Dr. on the 14th, to discuss tx options. My wife wants me to restart, on whatever doc recommends. I am going to place a folder of research in his hand, and have him give me his opinion on everthing. I want to be 100% confident in my decision, before facing the beast again. However I face it, I will be doing some dragon slaying in the immediate future.. Thanks, and best wishes
Susan (who happens to think that both of her GI's are creepy, but isn't ready to jump on the Snookman conspiracy theory bandwagon).
Susan
As far as drinking, I have not had a beer or any alcohol since March.. I will never touch alcohol again. In the past I drank alot, as I am a young man that loved the keg parties.I did not drink 2 or 3, but 20 or 30 in a night. Two of us would pound a handle bottle of rum, and take a xanax.. That lifestyle is gone.. So if you doubt my sincerity toward change, I am sorry.. I am on a quest to inform myself with every slice of info possible on my disease, AS DOCTORS HOLD BACK, unless YOU ask.My depression is is a testament of my sincerity towards recovery.. It is hard to face this at such a young age. I just got married last year, have my own house, two cars, two dogs, a mother that I help out, and a brother in law that can't wipe his @ss w/o help. Besides that, I blew my back out at work, and was told that I was to young to have back problems, sent to physical therapy by Dr, and sent back to work.. A month later, collapsed at work, had tingling in my legs, and could barely walk. MRI came back herniated disk, and buldging, with narrowing of spine.But yes, as Dr said, I am too young to have back problems.Other than that, I am just facing life one day at a time.
alll the best and we'll be here to support you ..Daryl
I did have an invincable to the world attitude, till reality of bx came back.It was a low blow, and I'm still trying to get up.Then this whole back situation came into play, and tried to knock me down again.Right now, I'm feelin my second wind building, and it is coming strong.I do talk alot, but talking builds confidence and character.Alot of what I am going through is unexpressable to wife and family, as they do not understand, so I apologize for being so vocal today.Hope atleast it made for a better understanding of where I'm coming from.Best wishes to all!!
as for the Pegasys been easier to tolerate; back in 3/2003 when I first started reading the forum, many comments were made as to how it was easier to handle than their previous treatments, that is why I chose it.
Plus it shows a slight advantage towards geno 1 in some studies.
Print out the Tarantino and the Teravic 4 studies tnguy posted links for, it focuses on tx for geno 1. If you can't fully trust this dr., get that second or 3rd opinion. I am on my third GI, but make sure you keep copies of every blood work and tests for your records. The next practice might need to be reminded of some facts, and that is our job to do, to make sure they keep accurate track of things.
The sx do stabilize for most of us as tx goes along and many of these problems you hear us complain about, were here before the meds. for me, the meds have enhanced them a little, but I Know they did not caused my carpal prob, my joint aches, etc. I like chev's, twotells and others style of telling when the problems they are now having were there before, to remind the newcomers that ALL our problems are not due to the meds. Indy keeps reminding us that tx does not = long term side effects in every case, another balancing case, so that you and others get an accurate picture.
I am so happy you are now concentrating in strenghtening your physical and mental health in preparation for a cure, yes, drs ARE talking of hcv CURE, not only suppression (another tnguy link posted before) and I believe it. Cancer is curable and so is hcv.
You might need a briefcase by the time you finish printing your written ammunition, but it will be worth it. be well
I was wondering also, that you are on pegysus right? It does not come in a redipen corresct? So you have to draw the correct amount from vial and mix yourself??
I am going fishing tonight, to let off some steam. Have to ease my mind for a few minutes, I am doing way too much thinking!!
Thank you, best wishes.
I started taking it when I was first diagnosed - 7 years ago. At that time I was a grade 1, inflammation 1-2.
Seven years later my biopsy is not worse.
Chev: Hahahhahah. I remember that. I am just glad you never fell asleep mid-sentence. (lol) You are almost finished with tx!!!!!!!!!! Yahoooooooooo!!!!! Is it 6 shots left? I felt the same way as you do as tx comes to a close end. I really looked forward to shot day just to get the next one over with, BUT, for me, I hated doing the "deed"...the actual stick was a heart pounding, sweat pouring experience....but hey, I am done, and you will be done soon too. Party time......(hey, how cool is it that you and Indi met.....I think that is really wonderful)
LvdbyGod: Hello, sweetie. I read your post and questionaire to Chevy about the "little one" and the adoption process. You really are too cute. I think you are a gracious human being. To care so much and to take such great and loving care with these babies. You are really doing a wonderful thing. When I lived in Los Angeles, my room mate and I (my best friend) used to rescue the kitties in our neighborhood. Once, we found two that were rejected from the momma (one was a runt, and the other had a paralyzed back leg) We took them to the vets, and I had to hand feed the runt with an object very similar to our syringes (without the needle) The med/food was the consistency of peanut butter....poor little baby. I only had to take care of these two, and that was a handful......you have an entire litter....God bless you. (my kittie, Mr. Will aka Little Will just jumped up on my lap....he likes to press the computer keyboard.....I have learned alot about my computer from him (lol)...........
Eyedeas: Have been thinking about you and how yesterday's Blessed Union was. Did you eat that piece of cake for me? I actually went out and bought myself a piece of "wedding cake" to eat in you and your daughter's honor yesterday....(and because talking about it made me CRAVE a piece..........I am still craving the sweets 3 weeks after stopping tx....hope that stops soon) Please let us know about all of the beautiful and humorous events that took place, and again, congratulations.
All: I am catching up on reading the posts, and wow.....alot of stuff going on.......birthdays,children, new granbabies, newbies, horses, kitties, doggies and wonderful support and web site information going out to everyone.....I missed you guys!!!! That will teach me to not miss a day (or in my case, days)......there is ALOT to catch up on. My energy level is coming back.....thank goodness.....and with it, my focus is better, so reading is much easier. I agree with whoever said we should decide on a "meeting place" and have one GREAT BIG PARTY!!!!!! We can even make sure that we have a "Fatigue Area" roped off so that when one of us "go down" we can still sort of be at the party......tee heee......I personally would love to meet you people too.......Take care
I wake up quite a bit at night, but it is "do-able". I plan to stay here at the forum (my second home).......I love you guys!!!!!!!!!!!!!!!!!!!!! (((((((hugs))))))
On this subject I have carefully stated my position in the past - basically if it does no harm, have at it.
Unfortunately people get sucked into a belief system that causes them to suspend rationality when sticking substances into their mouth or colon, whatever in the name of "alternative" medicine.
I have heard all the arguments and they too are BS. What you are doing is taking drugs, drugs that have not been rigorously evaluated by themselves nor any interactions; drugs with unknown purity and dosage. This is a new age russian roulette.
I have reported on an herb that produces a chemical helpful in reducing inflammation. I'm not close-minded as some would write, but cautious about outrageous unsubstantiated claims. If it works, it will work in a controlled study.
Oh, by the way, has anyone read that anti-oxidant vitamins are beneficial for only part of the population and harmful to the rest?
Come on! Be responsible! THINK!
Sorry to be so harsh, but, damnit, I'm sick of people being seduced away from rigorous scientific evaluation and taking drugs just because "someone said so."
I did the interferon-based treatment and suffered mightly - not as bad as others and certainly not as bad as those folks with a couple of retreatments under their belts. I want and pray as much as anyone that better treatment comes along - if it initially comes from a plant source I will be the biggest promoter of it, I don't care where it comes from, I just hope something better occurs that others don't have to spend a year(+) in the hell that is INF + Riba.
Please, indulge in homeo-sympatheticmagic-apthy if that is your wish, but do not represent it as something it is not, such as valid medical treatment.
Dear friends I have done my research and the conclusion I've come to is the best we can do is good diet and exercise, supplement where deficient, and medical treatment if it is truly necessary and don't take unregulated "stuff" with unknown dosages and purity from ANY source. God bless you all and peace.
You mentioned "belief" in an earlier posting and that is just the effin' point, man! People take stuff on "belief" and not evidence.
Don't know how old you are, but there was a big splash about the Chinese performing an appendectomy w/o anesthesia, but accupuncture. Why isn't this being done universally today and avoiding the risk of using general anesthetic? Is it a conspiracy? No! Doesn't work! The poor patient suffered like the damned!
Don't lay on me "facts" about China - people that aren't enslaved or killed by the gov. are the product of one sick Darwinian experiment.
Evidence. Repeatability. Withstands scrutiny. Alt. Tx. fails miserably over and over.
Look this isn't personal, I'm sure you are a fine person, it is just this pervasive and irrational belief in naturopathy, homeopathy, healing touch, reiki, and other such stuff is a cruel, cruel scam on people that are desperate and suffering.
Anyone has kick-*ss treatment? Notify the NEJM, JAMA, take it to Hopkins, the Mayo. you will be famous and have the gratitude of millions!