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Wow, I have been gone for 2 weeks & it looks like I have missed alot...Now I am back in the Real World again...So I wanted to make up for lost time & Say Congrats on Great Results to:
Foreign Girl~Mikesimon~Revenire~Majneni~Steve...
I am sorry for those I missed but there is alot of reading to do here...So Congrats To All of You!!
My question is for the last Month or so, just out of the Blue, My NoseNose fracture starts dripping (Real attractive Huh?) It has no preference to when or where it will happen..Then today out of no where it started bleeding...My Eyes have become Red & glazed over with some slimmy stuff when I wake up also...And I have become alot more tired lately to....
In other words when I get home, about 30 minutes later I hear a knock at the door & its my a$$ trying to get in...I keep losing it somehow...Just when I thought the Fun was over, all these new things start to appear...
I want my money back for this Roller Coaster Ride...LOL
I hope everyone is doing as well as expected...And WELCOME to ALL of the New People I see here...And Hello to all My Friends out there in Hepper Land...
Dallas, I am at 13/26. My noseNose fracture runs a lot. Especially over the past 4 weeks. So ya, it may be something we need to deal with on tx. I always need a kleenex close by.
My ass is dragging also. Someone in Michigan find it for me. Gotta keep my noseNose fracture to the grindstone. 1/2 done. Praise God for getting me this far. I have had Friday, Saturday and Today off of work. I have not done anything but lay on the couch and watch TV. What a life, cannot wait to get this stuff over. If it doesn't work, so be it. I continue on full 180/1200 dosaging. I am going to enjoy whatever time God has for me on this earth afterward. a smile shall return to my faceFace pain world!!!!! Be ready.
Hi there........my noseNose fracture drips and gets so stuffy and sometimes gooey yellowYellow fever vaccine Yellow nail syndrome stuff and blood. I go se the GI tomorrow.......I bought a humidifer and it does help.....the nose bleeds have stopped...but the drip, and stuffiness still plays havoc.....Other than some fatigue, i consider myself very lucky compared to some..... I will do #9/48 tomorrow......
Nice to see you back. I hope this isn't too intrusive, but I saw this on Yahoo's front page just now and i though of you (having just prior read your post). i hope I'm not being too personal, but here's a link regarding a promising new drug thta they want to start using in humans to treat difrerent types of cancer, leukemia included.
Sorry to horn in Dallas but we're out of threads and I wanted to get this in...
My last shot #52 will be Saturday, nurse said to stop the pills the same day, I didn't argue :-}. Anyway, Medco sent me way too many pills(copegus ribavirin), I'm only gonna need 4 out of the 4 week extension they sent me, this leaves me with about 175 extra. Seems like such a waste to just throw 'em away, if anybody wants them I'll be happy to ship them free of charge, my little contribution to some extra dragon killin'. Also I have 29 5 mg. Ambiens that I'm not going to use, tried 1 and decided they just weren't for me. If anyone is interested you can email me akhepper at yahoo dotcom. Anybody that feels the need to remark about the illegality of this can save it, we've all heard it before.
I hope all my fellow heppers on tx are doing tolerably well, this sure has been a long journey on the outskirts of hell, glad my trip is just about over. I did my last shot Saturday morning then went to work for 10 hours welding, actually went surprisingly well, I knew I wouldn't make it if I did it Friday night like I usually do so I had to improvise.
Kick dragon butt y'all, if I made it you can too.....Timbo
Yes, I too have a drippy runny bloody nose. It's also cracked and red from dryness and too much blowing and wiping. Sorry to be so graphic but I figured everyone can take it after the "hot poops, foul smelling noses, etc" of the last week's threads. Tomorrow is #10/48 for me and my nose has been this way since week #3 or 4. Needless to say, it's very attractive! I wrote about it plenty about a month or so ago. I'm told it's a fairly common sx.
AK, I would be delighted to take that Riba off your hands. I have to pay over $1,000 each month for my meds (and that's with insurance!) When I first began tx, the doc had me on 800 mg of copegasys, but my other doc at NIH said I should be on at least 1000 (1200 actually, but I'm too thin for that much). My doc agreed about 5 weeks into treatment, so now I'm short about a 5 week's worth of copeg to go along with my pegasys for the next 38 weeks. So that would be an unbelievable gift. How would you keep it cold in shipment? Did you keep the cooler and icepack it comes in? If not, I could send you mine. Congratulations on completing tx. I'm right behind you. Congrats to everyone who finished this past week.
Have to go blow my nose now.LOL
Judi
I don't think the pills have to be refrigerated, anybody else got any info on this? I haven't been keeping my pills in the fridge, just the interferon...
I have a raw, sore throat (especially in the morning) and a runny nose. My GP called it Dry Colorado Nose and prescribed Nasonex spray. It seems the opposite of dry to me :-). The spray helps so I don't have to have kleenex available constantly (but it's still a good idea to carry a small pocket size pack). I also get shooting pains in my ears that can happen anytime (sometimes not at all and other times, many occurances throughout the day). I hate the ear pain the most because I don't know when to expect it; it really hurts and leaves me feeling even more weak and worn out. I just did 19/24 and am very ready to be done with the meds. I'm glad to have them and will be glad to be done with them! caruu
dallas...is that what all of us beginners have to look forward to after 32 weeks..tissues hanging out nose and visine? Sounds exciting..can't wait haha Seriously, I know everyone seems to experience the dryness and bleeding of the nose but your eyes..that kinda concerns me and have you told your dr about this? I just know that it has to be miserable and you need something for it! Hang in there Dallas as you are getting very close!
AK-Hepper...Congratulations on completing 52 weeks! Wow that is wonderful!! Keep us posted on how you are feeling!
Chevygal...Yes I also have at times a scratchy throat or its like I have to clear it alot. Hmmmmm...trying to think of a side that I haven't experienced yet?????? Ohhhh yeah..haven't had the pleasure yet of hair falling out but I'm sure that occassion will arise soon enough LOL
hahaha that is such a perfect desciption!! I want off this ride!! I have to tell you after seeing your name...I have a black cat named Sheba and we call her sheebee all the time LOL
Dallas I have had the same problems with the nose bleeds, it happened in the first 5 months of tx, got better when my RBCs came up. I also got nose sores, painful!, and not from pickin it either! Just appeared, I would put vit E oil from the gelcaps in there, helped a lot.
I had nosebleeds right at the beginning of tx. I stopped using Flonase and started Procrit and they stopped. Don't know which was responsible. Not to be disgusting, but my nose these days is permanently stopped up. (Good to help stop snoring, but not much else.) When I blow, there is often blood, but no nosebleeds for a while. I also had the slimy eye stuff, but my doctor (regualar, not GI) said it was conjunctivitis and would go away after a couple of days. It did.
I've been in self-destructive relationships before, but the twins, Peg and CoPeg, take the cake. They SAY they are good for me, but so far they keep me up at night, ruin my appetite, make me tired and achy, and they're making me stupid as well. I'm old enough to walk out on most things that I know are bad for me, but I'm going to stick this one out. However, breaking up with Peg will be a treat. At 20/48, I am 42% done. Peg, your time will come!
About nose sores... I had one just above the bottom squishy cartilage in my nose; this sore came and went for about the first five months on tx. Vitamin E oil was great when it was relatively calm; when it raged, I'd escalate:
Vitamin A&D ointment mixed w/zinc ointment; add a triple antibiotic ointment at its worst. Use a Q-tip, not a finger to apply it. A lot at bedtime, a bit lighter during the day.
One day, it just finally stopped. That's the way so many of the sides are!
When I got desperate, I sometimes used this same tx around the corners of my eyes for little cuts and irritations...
I'm a month out of tx, and frankly, the nasty little day to day sides are receding in the fog. It's hard to remember specifically how bad each one was at the time!
Hey Dude, A "GREAT BIG CONGRATULATIONS"- Now that your back to your old self , just think you'll be the #1 Welder in the world again, I know you had to drop down a notch or two on all them meds, or maybe Not, keep in touch with us all and let us know how everything is going, I don't want any of your meds, but you can Mail me about 25lbs. of some fresh halibut. Try and stay warm over there- See Ya-- HD
Dallas ,Did i understand you to say you hear a knock on the door after 30 minutes and it's your As$ arriving ? That's the funniest thing I've ever heard. I can see where that could be a problem.
Please somebody get me a kleenex Luke
DallasStar,
Sorry , I need to quit for the night this Riba has got my
brain fried. I didn't see where you said you were tired when I posted the last post and I thought you meant your butt had grown that much. Hope you feel better soon. g'nite everyone.
If you're having long bleeds, tell your doc; make sure they look at your platelet numbers (platelets are involved in clotting). Check for anything you might be taking that might thin your blood, etc.
If it's not one thing, it's always another, with this tx.
Best, Maj Neni
My ass is dragging also. Someone in Michigan find it for me. Gotta keep my nose to the grindstone. 1/2 done. Praise God for getting me this far. I have had Friday, Saturday and Today off of work. I have not done anything but lay on the couch and watch TV. What a life, cannot wait to get this stuff over. If it doesn't work, so be it. I continue on full 180/1200 dosaging. I am going to enjoy whatever time God has for me on this earth afterward. a smile shall return to my face world!!!!! Be ready.
Dale
http://story.news.yahoo.com/news?tmpl=story&u=/nm/20040222/hl_nm/health_vertex_dc
Looks like you might have to copy and paste, sorry.
Jamie
My last shot #52 will be Saturday, nurse said to stop the pills the same day, I didn't argue :-}. Anyway, Medco sent me way too many pills(copegus ribavirin), I'm only gonna need 4 out of the 4 week extension they sent me, this leaves me with about 175 extra. Seems like such a waste to just throw 'em away, if anybody wants them I'll be happy to ship them free of charge, my little contribution to some extra dragon killin'. Also I have 29 5 mg. Ambiens that I'm not going to use, tried 1 and decided they just weren't for me. If anyone is interested you can email me akhepper at yahoo dotcom. Anybody that feels the need to remark about the illegality of this can save it, we've all heard it before.
I hope all my fellow heppers on tx are doing tolerably well, this sure has been a long journey on the outskirts of hell, glad my trip is just about over. I did my last shot Saturday morning then went to work for 10 hours welding, actually went surprisingly well, I knew I wouldn't make it if I did it Friday night like I usually do so I had to improvise.
Kick dragon butt y'all, if I made it you can too.....Timbo
AK, I would be delighted to take that Riba off your hands. I have to pay over $1,000 each month for my meds (and that's with insurance!) When I first began tx, the doc had me on 800 mg of copegasys, but my other doc at NIH said I should be on at least 1000 (1200 actually, but I'm too thin for that much). My doc agreed about 5 weeks into treatment, so now I'm short about a 5 week's worth of copeg to go along with my pegasys for the next 38 weeks. So that would be an unbelievable gift. How would you keep it cold in shipment? Did you keep the cooler and icepack it comes in? If not, I could send you mine. Congratulations on completing tx. I'm right behind you. Congrats to everyone who finished this past week.
Have to go blow my nose now.LOL
Judi
Jamie
I want my money back for this Roller Coaster Ride...LOL
LOL!!!!!!
lol! lol! lol! lol! LOL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
sORRY No reFunDs! LOL!
JUst hanG on....
All Rides End sometime.
LOL!
Your,
Shebee
AK-Hepper...Congratulations on completing 52 weeks! Wow that is wonderful!! Keep us posted on how you are feeling!
Chevygal...Yes I also have at times a scratchy throat or its like I have to clear it alot. Hmmmmm...trying to think of a side that I haven't experienced yet?????? Ohhhh yeah..haven't had the pleasure yet of hair falling out but I'm sure that occassion will arise soon enough LOL
I've been in self-destructive relationships before, but the twins, Peg and CoPeg, take the cake. They SAY they are good for me, but so far they keep me up at night, ruin my appetite, make me tired and achy, and they're making me stupid as well. I'm old enough to walk out on most things that I know are bad for me, but I'm going to stick this one out. However, breaking up with Peg will be a treat. At 20/48, I am 42% done. Peg, your time will come!
Vitamin A&D ointment mixed w/zinc ointment; add a triple antibiotic ointment at its worst. Use a Q-tip, not a finger to apply it. A lot at bedtime, a bit lighter during the day.
One day, it just finally stopped. That's the way so many of the sides are!
When I got desperate, I sometimes used this same tx around the corners of my eyes for little cuts and irritations...
I'm a month out of tx, and frankly, the nasty little day to day sides are receding in the fog. It's hard to remember specifically how bad each one was at the time!
Maj Neni
Please somebody get me a kleenex Luke
Sorry , I need to quit for the night this Riba has got my
brain fried. I didn't see where you said you were tired when I posted the last post and I thought you meant your butt had grown that much. Hope you feel better soon. g'nite everyone.
If it's not one thing, it's always another, with this tx.
Best, Maj Neni