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Avatar universal

Are all results SVR ...no failures or relapses?

I posted the following to In response to a statement by JimmieMose on the Jan 28 entry by McGirl55 regarding if everyone succeeded on Harvoni with 8 weeks treatment THEN thought it deserved its on thread so we could see if we can get answers from even those who do not reach SVR or who relapse.

I totally agree with your comments.  

To go one step further,  there are so many successes reported on here lately that I am concerned that THOSE WHO FAIL TO REACH SVR OR WHO RELAPSE ARE NOT RETURNING TO POST THEIR RESULTS.  

I am very concerned to know THOSE results, too.  Just seeing all SVRs, which is wonderful, I am NOT knocking those, may be giving us a skewed picture of real results.  Or, dare we hope, these really are ALL the results?

I think I will copy this to a new thread, to see if we can get all responses of late.

Praying that all the successes are the true picture,

Pat
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Avatar universal
Welldone  my dear  you need to check your platelet count. If it is low it may account for nose bleeding
Helpful - 0
Avatar universal
Glad to hear you are there!  As stated above to Millie, I am waiting for/looking forward to the test at 1 year, too.  

I know what you mean about the liver cancer - my pre tx Labs showed an elevated AFP and Dr is checking that again, too.  It came down to almost Normal by 12 week EOT and was within the Normal ranged by 24weeks.  dr said we will be checking this every 6 months for a while because as you now, from sad personal experience, that does show liver cancer propensity and or problems.

Yes, I believe we have all taken it as a Mission to try to get the word out about testing, treating.  

Love that you are even doing this one on one.  Me, too.

Keep on keeping on!

Blessings, Pat
Helpful - 0
7469840 tn?1409845836
For me, when I got the 1 year SVR, that was when I felt I was really cured. I was just checking the genotype 4 tx, and it looks like it is up in the air. Not many people in the U.S. have it, though a great many worldwide do. If I had waited maybe I wouldn't have had to do the injections, but I didn't want to wait as I was 63 when I started, and still in good health, but I think I had fibrosis starting,  liver health can get bad quickly. My old boyfriend who I got it from died of hepatic cancer several years ago, I didn't want to die that way if I could do anything about it. I will continue to spread the word about the new treatments, I have personally shared with 3 people who are seeking treatment now, fortunately they are all genotype 1a.
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Avatar universal
Hi!  I am glad you are still here, too.  I believe all the literature indicates that - in the most conservative sense 24 weeks post tx is 'cured'.  Of course everything since they started using Sovaldi plus something or Harvoni the Company says 12 weeks post, that is, except for of us who had Gt3.  My own personal goal is 1 year post, but that is my own personal (and as JimmyM says, non medical) opinion.  That one, for me is coming up 12-1.

However, as you said, this is all so new - first Sovaldi tx began Dec of 2013, except for the Trials, I expect we still need to follow up for a while, to be sure.  

It is good to see those who tx'd for 8 weeks to have been successful, even if Gilead has removed that recommendation from their packaging.

Blessing,

Pat
Helpful - 0
1930700 tn?1327064904
I am still here too.  Treated only 8 weeks.  Just crossing fingers that I don't relasp eventually.  I treated back in October 2014.  Last blood work was still SVR.  I am not sure when one is actually cured.  Since this is so new.....can it back in a year or more.  I treated with Harvoni...was treatment naive. 67 years old....probably with virus 40 years...... I do feel well and I don't get leg cramps anymore..or rarely now.

I check in from time to time...always grateful.



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Avatar universal
I know what you mean about thinking my experiences are not relavant to preset tx ( and we just finished so recently!). treatments move so fast, which is a good thing.

However, we can still offer support, caring, and to those who still treat with same meds we did, good information.  Also, sometimes, what is needed is a suggestion about diet, times taking, consistency, , etc., and we have plenty of knowledge of that.  

Please don't feel like what you have to offer is outdated, so often, all anyone needs is someone to listen, and care.  Also, there is also the research, like Dee, JimmyMose, hrspwr, etc, do to find relevant information for those with less experience or energy.

Good to hear your so are improving!

Blessings,

Pat
Helpful - 0
7469840 tn?1409845836
I am still around, seems like my tx is no longer relevant as I did Sovaldi, Interferon, Ribavirin, and I don't see anyone doing that, though I don't know the protcol anymore for genotype 4s. I am still so thankful, and my post sx are slowly getting better. I don't know what I would have without the support on this forum.
Helpful - 0
Avatar universal
Both: Glad to see Posters who have completed 24 weeks!  Praying for both of you, Glen, and everyone that SVr is your result.

Y'all hang in there!  24 weeks surely should kill the Dragon, once and for all!  

Sue, so sorry you have been feelin so tired.  hope that is improving.   For my EOTs my Dr did 12 weeks AND 24 weeks, for which I am grateful.  I do feel that is the way to go.  I am scheduled for another Lab @ 52 weeks EOT.  That, the Dr did for me, as his goal was to seek how my AFP is, as it was high pre-tx and made it to w/ normal limits by24 weeks post.

Mike, work is not a bad way to take your mind off 'other things' .  I think you and Glen are running tandem on tx and tests.  it will be good to see you both posting 'negative' positive results in a few weeks, with Sue right behind y'all!

Blessings and on to SVR!

Pat
Helpful - 0
200956 tn?1425591539
After relapsing by wk 4 from a very difficult triple (incivik) treatment. It took me a couple of months to get back on here and post the relapse results. My way of coping with the bad news and refocus was to work myself to death and try to make up for lost time.
I finished 24 wks Harvoni and 19 wks RBV on July 17, at 4 wks I was still negative.  Now I wait for 12 wk blood take on Oct 9. I will post results regardless of outcome. I am feeling confident.
GP7852, I will be watching for your post of the good news, our situations are similar.
Mike
Helpful - 0
Avatar universal
I'm still here too.  Like heccandme, sometimes I'm just too emotionally fatigued to comment!

I just finished 24 weeks Harvoni and RIBA last Friday and am happy dancing it's done!  I am hoping I get to join the rest of my fellow difficult to treat buddies.  I see my doc on the 8th and will find out when check for SVR.  He is leaning towards waiting for 24 weeks post tx and I might be ok with that.  After 3 other failures, the anticipation isn't really there.  I might want to wait and one great big SVR news!   I'm waiting for that day and I think yall will hear me without the forum to share my joy!  

I'm going to try and be on here a bit more than I have been to follow and support as I can.  I know I'm grateful to all of you and your unwavering support.  
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Avatar universal
Glen:  Sounds like you are on track for SVR.  needless to say, we are all pulling for that!  24 weeks was a long time time.  I'm anxious to know your results, too.

Blessings, and keep on keeping on.

Pat
Helpful - 0
Avatar universal
Kim, thanks, and we will all keep on reaching out, til, hopefully soon, ther will be no need.

Linda, so true, and.  Interesting on KR.

Lynn, thanks for the reference site.  Off to read the article now.  I find it interesting that most of the failures are 8 week treaters.  On another thread this week, someone was answering a question concerning length of tx and if the person should fight for 12 weeks, the answer referred to the insert sheet, which NOW states tx for 12 weeks or words to that effect.  The Poster said that buried way down in the info was a statement that 8 weeks might be used after consideration by Dr etc., I know I am not wording it properly, but it sounds to me like the failures at 8 weeks has Gilead backing up to 12 weeks as the preference.

Pat
Helpful - 0
683231 tn?1467323017
here is a thread from hepmag.com titled "another Harvoni relapse"

http://forums.hepmag.com/index.php?topic=3160.msg26266#msg26266

yes there are treatment failures out there most is seems to be th e8 week group but a few 12 week as well

Lynn
Helpful - 0
6708370 tn?1471490210
I'm still around. 12 week EOT not till December. Feeling so much better in many ways

Not so in other ways. Honestly, when you are being treated. waiting for treatment, spending hours researching new scientific findings, treating again, it really takes so much of your life that it feels great to think and talk about other things

BTW, Keith Richards did NOT clear Hep C because he drinks like a fish and smokes al day long. He happened to be one of those lucky ones whose immune system kicks in straight away and rids the body of the virus

(Just did a little research on this topic after reading a NYT piece today

Helpful - 0
Avatar universal
I will let you know.I had bloodwork a little over a week ago.I believe Aug 23.I finished 24 weeks of Harvoni on July 3rd.I was negative at the finish.I am geno 1a stage 4.I would know if it came back even before I get the results.I think I am good.Havnt had any itching,leg cramps or nose bleeds,suretail signs that its back.I will keep you posted,good or bad.
                                               Glen
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Avatar universal
Pat I think when most people are cured they actually just move on with their life.  It's likely the healthy way to go.  I think if for whatever reason they didn't reach SVR they would still be on here and we would know.
The empathetic souls that still remain and give guidance are few and far between unfortunately.  We just happen to be the softies that are forever grateful to those that helped us along the way.
You included
.....Kim
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