CHARACTER ASSASINATIONS WILL STOP NOW!

This is pointed to Chevygal55 and all others who think that they can post anything in this forum, including unsubstantiated lies - STOP IT NOW!

You are WAY out of line with your continuous postings about Teresa Hanbey.  Med Help has tried to be nice about this whole matter, but you just don't seem to get it.  

Another website had Teresa Hanbey listed as a doctor - BIG DEAL!  SO WHAT?  Mistakes happen and Ms. Hanbey contacted them as soon as she became aware of the error.  It is FIXED.  

As I stated in a posting yesterday, I imagine there are websites out there that have Phil or I listed as physicians.  Let me make this clear for you...WE ARE NOT DOCTORS!

Ms. Hanbey received $17K in salary  SO WHAT?  Do you work for free? Do you think Med Help personnel work for free?  Who among you puts in 60 hour weeks for no pay?  

If Ms. Hanbey is asking people for donations - SO WHAT?  How else is she or any other organization supposed to support their efforts?  Here's a thought, you could just say "NO"!  

Your nasty insinuation that Med Help is being "bought off" by Teresa Hanbey was the last straw.  Who do you think you are to post such a viscious lie about Med Help?  Do you realize what kind of damage you have done to our reputation?  A reputation that we have killed ourselves trying to build and protect for 11 years!

If I see ONE more posting in which you are spreading lies about ANYONE, I will block you from posting and take all necessary steps to protect the good name of Med Help International.

[Eyedeas]

I'm glad you've stepped in, and very sorry you had to.  I don't think most of us here have ever been left in any doubt about the caring nature, the dedication, or the integrity of you and the others who have maintained our online home.

Thanks

Kim

[Dirac]

I just received the results of 6 monthes after treatment
test. I am still undetctable. I love you all. I can not
beleive myself that all this sad story is almost gone.

[cindee]

I want to say "THANK-YOU"! I have been so embarrassed that I had given this forum address to many ppl...including all of my doctors! At the time I gave them the address to this forum, all the dumb stuff wasn't going on. I would read some days and just "cringe" to know my friends and doctors were reading all that "silly stuff". Thank-you again and a BIG thanks to MedHelp for being here for us. I also want to thank Thanbey for being here for us. Sincerely, Cindee

[cindee]

What WONDERFUL news!!!!!!! OH yeah, Oh yeah....we're dancing in my kitchen...husband and d.gaughter!!!! "and another one's down, and another's  gone....Another "dragon" bites the dust"!!!!!!! You must be on the top of the world!!!!!! Much love and thanks for the great news!!!! Cindee

[cindee]

I hope you see this question.....I posted it while back and never read anything about it from you...I could have over-looked it! Can You tell me anything about Hep C tx. and tissue damage being re-lated? I talked to my physcologist at my pain center, (my GP thought)I had fibromyalgia), but my physcologist says he sees ppl with hep c and also ppl who have finished tx. He says he was going to confer with my pain doctor and see about me being put on a 12 hour pain pill/patch. Any info will be appreciated. Thank -you, prayers to you and all, Cindee

[befuddledbedarned]

WooooHooooo....<strong>Congratulations!!!!</strong>I always find the success stories such an inspiration... Thanks For Sharing... I hope that I will be following in your footsteps... I got a LONG way to go... however I do my 12 week PCR tomorrow... that's 12 weeks less to do... Congratulations Again!
Vicki :)

[tina b]

CONGRATULATIONS!!!!!HOT DIG-IDY DOG! GOOD FOR YOU!! I am sssoooo glad to hear some GREAT NEWS!!!!

[befuddledbedarned]

I asked the same thing, & I think our thread ran out or something... or we got lost... cause I never knew anything about TISSUE Damage, & I don't know what it is, & If, or how it could effect me? I often wonder what the "Lingering Lasting Effects" are of TX... long after we are done with it!
Vicki

[crybabytoo]

Some of you oldtimers may remember me - Indiana, Britgirl, Bartt, Magnum, GIPA. I still like to check in every couple of months even though I stopped Tx a couple of years ago. I like to see the fresh crop of newbies and any new info.

I, too, am glad for Cindy's intervention. So glad, in fact, I just made a donation. Her point was well made, about someone has to pay the bills on these "free" sites. Also, made a similar donation to Thanbey's HCOP site where I first saw Thanbey's posts. It was right after I had stopped tx. The info she provided made me realize that maybe I had not failed tx after all. Maybe the tx had failed me.

So Newbies, hang in there. And to all you oldtimers, I remember we may not have always been in agreement, but we were always respectful ...

... from Deep East Texas, I am still Crybaby ...

[Foreign girl]

This is GREAT news! I am very very very happy for you! You were one of my favorite people on this site when I started treatment! You always had nice and encouraging words for me and other participants. Good luck with everything!

Foreign girl.

P.S. I can not believe what this forum is turning into...

[cindee]

HEY!!!!! I was just thinking we should open a thread to ask that question. I posted to Willing... down below. I can't ever get to post a question except maybe on week-ends. I use my husband's laptop, we don't have a home computer. So if you can post it, please do!!! I would love to know the lingering effects. I was told I have tissue damage from the tx. I will have more news Tues P.M. I see my pain doc on that day. I love ya bunches girl! I hope you are feeling good these days....remind me again where you are on tx.....(brain fog) I'm 4 months post and waiting on 1st blood work done last Thurs. since I have finished tx on Nov 6th!!!!! Much love to all and many prayers, Cindee

[CARUU]

Great News!  I'm happy for you.  Thanks for sharing your good news. caruu

[DownThisRoad]

dirac......HI.

Oh how I remember you and your encouragement and strength when I only first started my treatment.  I looked up to you and all those others who 'were almost to the finish line' and remember saying to myself day afer day.....will I ever be as far into treatment as they?  Well....I am. I'm nearing my 48th week actually next week.  I will do a 12 week extension of the meds past my 48 weeks......but I'm workin all that out with myself. What has to be done will be done!!

OH well.... I wasn't to excited about this extension deal as you can imagine.  I've been on this roll of the 'BLUE FUNK' feeling ever since I found out about my continuation of the drugs however.......

there are certain people on this forum who convince me to keep 'going down this road' along with so much encouragement from my doctors that I am starting (yes I said starting) to accept this and feel way better and more comfortable.  Yesterday and today have been good days for me.....you know.....dirac....it took a minute or too for this extension benefit to sink into the old nogin!!

On on a very very HAPPY NOTE TO YOU.......Congratulations on your wonderful news. YOU ARE A TOTAL TREATMENT SUCCESS STORY.....KEEP UP THE GOOD WORK MY OL FRIEND - YOU are WINNING.

~ dtr

[audreywald]

WHAT?  What kind of tissue damage? Permanent tissue damage? What is happening to you?

THIS scares me.  Could you explain in detail?

[ral]

I am very glad you are still clear dirac I remember your help and ecouragement when I first started.

Cindy I agree with you whole hardly about thanbey I do not feel she is trying to harm anyone.

I just went to my Dr whom I respect alot and he talks to all the big wigs in Denver and said to me today "Bob, you know no one really knows, we are all trying to make sense of this thing and when you are done with tx we will see where you are at and get a game plan."
To me that is honest and I feel thanbey is also trying in her way, pro tx or not to help I did not feel she is against tx I feel she is just trying to point, again from her point of veiw the pros and cons. We all are adults here and we make our own descions about whether to treat or not, period.

Peace Guys and Gals lets get on with what we have to do and support eachother like we have in the past.

GOD BLESS
Bob L

[doll face]

I am very sorry that it had to get to the point where you needed to step in, I to have my doctor checking in now and then and felt embarrassed that he would have to read some of the nonsense that goes on here.I am so grateful for this site and hope to be able to come back here in years and see that it is still able to help ease other peoples fears like it has mine.

[Indiana]

Cindy........OH YEAH BABY.....I am SO happy that your feathers finally got ruffeled by all this stuff. Hey...We tried to calm them down. It seems that some cannot see the difference between disagreeing with the information and attacking the person who may post it. I am with you and Phil ALL the way. Phil helped me a LONG time ago with the pop-up problem(even if it meant discontinuing a fund raising mechanism) and THAT showed how much you 2 care about all of us. I explained and he understood. THAT got my attention BIG TIME.
  I too will not stand for anyone putting down this site. I had NOBODY to help me through my tx. This was the only place for me. You and Phil and this site are the primary reasons why I retained my sanity throughout it all. I can NEVER thank you enough. You 2 may never know how many you have helped to live. A heartfelt THANK YOU is all I can say.
Thanby is also a person with information to share. Wether we agree or not....her info is relevent to the discussion. She posts links to her site.......SO WHAT? Thats where the info she has is kept! Of course she sends you there. Just cuz they ask for funds means nothing as far as the potential info is concerned.
She is called a doc........She IS. She has a PHD I believe. So what if it isn't a medical degree. She is a highly educated person and knows how to research. Folks with a PHD "deserve" to be called "doctor". If YOU think that is misleading....get over it.
She has always been polite and cordial here. To attack her personally is just plain wrong.
I don't care if she gets some money for doing her work. She deserves it! Do any of US have a web site that we maintain for the benefit of others? The paltry amount that she supposedly gets is pretty slim fo someone with a doctorate....in anything. I believe she does this for a higher reason.
If you really have a problem with the INFO she posts...then refute the "information"....NOT the person.
There is NO conspiracy here or with her. She really does NOT work for Haliburton or George Bush after all. But she MAY be an ALIEN from MARS... we do have landers there right now and I am SURE that "must" be there mission there.........to check out Thanby. She MAY have ultimately wiped out that whole civilization after all.  Give me a break you guys..... The whole thing has gottan REALLY "Old".
We need to stick to the issues at hand.....HCV. We are all here to beat The Dragon. To kill it or hold him back. ...either way we win. Hold him back long enough and you will die of something else. Kill it and you will STILL die of something else. It's all a matter of perspective ....isn't it?
THANK YOU CINDY. You and Phil can NEVER be thanked enough for all you do............



  

[Tosser]

Congratulations Dirac !


...and you are 100% right Indy.

[JamesL]

Thanks..............

[jonihs]

I want to congratulate you so much on your 6 mo.s. Every time I hear a story like yours, it makes the light at the end of my tunnel just a little brighter.

That this forum has had little flair-ups b4 is no secret, and I'd like to blame this disaster on riba-rage, but I don't believe that's the case. There are always people and things in our lives that rub us the wrong way or just flat out **** us off. The theory that works for me, is if I let them ruin 1 minute of  my day, and I might not have many days left, then in a sense, they won. My minutes and hours and days are too preciuos, that I do every bit I can think of not to let stranger or family take any of them from me. It's not always doable, but w/ practice and deep breathing, it doesn't take me long to get my perspective back, and get on w/ my day.

                   Joni

[meandhepc]

Finally! Some Good news today!

CONGRATS!!

[hepcgetlost]

Thank you Cindy for keeping us on track and focused on our real work.

I was feeling bad not to be able to get to the board for the last few days, but now I'm glad I missed all the commotion. I still haven't managed to completely rid myself of the queaziness and nausea that remain from the madness that followed injection #12 on Monday....Since I'm no longer violently ill, as I was Monday night and Tuesday, things are definitely looking up.

Anyway, I just want to say that I'm glad I missed the icky stuff and I'm glad it's over. I would be lost without this board and without the hopes and good wishes and caring that flow among ALL of us here. I'm so grateful to Cindy and Phil and to all of you who choose to be part of this forum, whether I agree with you or not. Other people's views, even when they differ markedly from my own, are just that: their views. Sometimes I learn something and sometimes I don't. Isn't it just the craziest thing that we can all come at something from a different angle? Wouldn't it be boring if we all agreed on everything?

I've always gone on the assumption that we're all sharing whatever we hope will be helpful to each other. If something proves not to be helpful, so what...at least someone tried to reach us with what they thought was a positive message or idea. We're each free to read or skip posts, accept or reject whatever  information is offered, post or not post, without feeling threatened by it.

Now that I got that out of the way, I have to tell anyone who can stand hearing this again that I feel SO AWFUL!!!@!!  I'm irritable, and itchy and still nauseated (since Monday) most of the time, although I can finally eat some now and keep it down. I want to cry all the time and I can't believe I made so much sense in the first part of this post, because my brain has now done a complete 180 degree turn and I'm about to launch into my "poor me" song. Nothing is making me feel better, and usually something does. I'm so tired...36 more weeks to go...sounds like such a  long time.

judi

[lizzee]

CONGRATULATIONS DIRAC!!!!!!!!!
I WAS SO THRILLED FOR YOU.
I WAS ONE YEAR SVR IN OCTOBER.
MUCH LUCK TO YOU....IT WAS WELL WORTH THE BATTLE.


HI CRYBABY,
IT WAS GREAT TO SEE YOU POST HERE.
WE WERE ALL FRIENDS WAY BACK..REMEMBER?
HOW R YOU DOING?
HOWS THE RANCH....
THINKING OF YOU....HOW U MADE ME LAUGH WITH YOUR NAME.
STILL DO NOT KNOW WHY....
BE WELL,
LIZE

[DownThisRoad]

What will really get me upset and would be a tremendous lose in my life is if I loose my friends and this board who I have come to depend on for support and information.  I just didn't start out a couple of weeks, or 8 weeks ago or even 30 weeks ago on this treatment course.  I will reach my goal of 48 weeks next week and it hasn't come easily and what I'm trying to handle right now for the moment is extended time on these meds.

Raheem my friend who is so gentle and understanding is right beside me with tx weeks, RAL who is dear to me because of his support and stamina that he shows to himself and everyone, GALEN who I always admire for what she has accomplished, INDY who makes me laugh and cry, HARLEY who has entered this treatment course with only grace and courage, my dear SHEEBEE who always reminds me to keep my glasses on and move forward NO MATTER WHAT, the blessed Majneni who has helped everyone so very much and been so uplifting and informational for all of us, willing who is our private research specialist, britgirl who is so strong and loving at the same time, dollface who told me it is hard....really hard but ya gotta do it, OHC who was always the bright spot of the day with the explanation of her day and putting together her website, mikesimon who reminds me that my road isn't as tough as I think it may be, and even minn who struggled through this treatment phase and had it so difficult working like I remember 14 hours a day hard labor work on this medicine, tosser who is always here to help and give great advise, foreigngirl who is a friend to all of us and a friend forever, caruu who I have personally coached along and supported to get through her treatment, MichaelT aka:FATBOY who will hold all of us in his heart forever, lackaluster who tells it like it really is and has always been so very dear to all of us, Eyedeas who I enjoy so much for his creativity and who takes our minds away from the medicine for a few minutes, MRBILL with all his struggles and determination,  joni who always gives good advice and a shoulder to cry on, dear Layla who I believe has to do more treatment weeks than anyone in this whole world, new-sojourn who recommended to me to smoke a joint even when all my doctors were puzzled why I was throwing up for 3 days solid, and all the many others who have grown so dear and near to me.  There is NOTHING in this world that could ever pay them back for being so kind and gentle to me and just frankly being my FRIENDS in need.

Thank you Cindy for your now continued injunction with what has been going on and for the forum that you offer and keep going for us.  I also commented back about yesterday regarding the harassment and continued degrading that I've seen go on with certain members of this forum for the past couple of weeks now. It doesn't seem natural for them and in their time of struggle, I believe that all the words may be comming out wrong.  It is old however and doesn't really make any sense and isn't what this forum is about. I think I called it something like 'beating a dead horse'.

I don't really know if I depend more on this forum now to help me get through my extended weeks of treatment that I am facing or if I depended on this forum more my very first time that I took the meds.  I just know that I depend on this forum and all of my dear friends and confidants that I have come to know, respect and love.

I've used this forum to gather information about my disease and the medical treatment of my disease. I have continued to completely depend on this forum in order to speak and converse with others who have my same disease.  I also welcome the information that gets scattered through her regarding alternative ways to treat and recess the hepatitis C virus.  Some days and comments are good and some days and comments are not so good but I have NEVER in the 14 months since I've been participating on medhelp.org seen conversation and remarks sink to the level that we been experiencing lately.  Enough really is enough.  I admire and stated that I admire and believe that Ms. THanby is a total professional with distributing her information that she has gathered with hepatitis C not only on her website, but on the healthboards and now here. I sort of get the hint and understand that there isn't much and aren't MANY people who dedicate their time in order to research this disease.  People who have been stricken with this disease HAVE to research it in order to find out information but believe me, it is not by our choice.  You are the first to know that information about hepatitis C is not made highly public right now and that there aren't too many who DON'T have this disease dedicating their time and effort towards research.  I know that Ms. Hanby dedicated rather it is with medical treatment or with alternative type care. The fact is that she is one who is speaking about this disease and should be welcomed into any type of discussion or forum for just that mere purpose.

We can't pick and choose who can and cannot be on this this forum, but we can all pick and choose our words carefully!!

[audreywald]

I am the same way. I feel ok one minute (ok being not awful) and the next minute awful comes right back. I am almost at shot 11.

I hope it gets better.

I also hope we can disagree with what someone says without problems. I too know for certain that a healthy lifestyle is not going to make Hep C go away, or keep it from progressing.

[kathyf]

I'm an "old timer". I don't post very often because I don't have the drive (or intelligence?) that many of you have to research our disease, therefore I don't have much knowledge to offer. Plus, I'm kind of shy about posting. Most of the knowledge I have gained about HCV was gained through the information and experiences that were transferred from all of you through this site. You have no idea how much I appreciate everything you all have done for me since I started and successfully ended treatment.

To host a web site like this requires that the person hosting has a very high speed Internet connection (~$500.00/month), a high capacity file server(s) (~$4,000.00+ each), Security hardware and software, (~$3,000+++), Software and developers (back-up software, development software, operating System, database licenses, etc. ~$????)- You get the picture. Same with Thanbey's site.

We are all very fortunate to have Cindy and Phil to provide this for us. Let's not blow it and let's continue to help each other. You have all helped me so much and it's so difficult for me to not be able to thank you personally - that's the disadvantage of the Internet.

Thank you Cindy and Phil and to all of my buddies on this site who made my treatment possible.
Kathyf

[DownThisRoad]

And by the way...........





we need a really really really really good FNFS (friday nite fight song) for tomorrow.  OKAY?

[hepcbilly]

You are so beautiful to meeee cant you seeee. Thank you old girlfriend that was beautiful. We will be ok...thanks to old timers like you and you ain't getting old baby U ARE BETTER !!!

[hepcgetlost]

audrey...so often in the past, when I read your posts I wanted to tell you that I was right there with you (my mouth sores are as bad as yours) but so many other things you described experiencing were so similar to my experiences. BTW, do you take L-Lysine? That really helps me a lot with the mouth sores. I take 500 mg every day. If I do get a sore, I take 1000 mg for a few days. Also, lidocaine (by prescription) anesthetizes it to some extent. I haven't had as much problems with it lately. Or my nose. My sx right now are mostly about nausea and intermittent overwhelming sadness.

please keep posting and hang in there. We're about a week apart (my next is #13...I think yours is #12? We CAN do this. We have to. I think Chevy is also somewhere between 10 and 12...Are you scheduled for 48 or 24 weeks? Oops...I gotta go...as in
gotta go gotta go gotta go right now (one way or another, sorry to be so graphic)!!!!!
Judi

[Galen]

I wrote a long response and decided that, while it is understatement, I just wanted to say thank you.

[ral]

downthisroad you spoke my heart about all the wonderful people on this board, truly you did.

Thank You

Bob L

[honey1616]

Hey!  Congratulations to you!  Its always great to hear svr on this board!! Keep coming and inspiring us!!

[GreatBird]

Cindy: Thank you, thank you, thank you.

Dirac: A huge congrats! Always good to hear the good stuff.

[britgirl]

Crybaby, nice to see you on our screens again....

Dirac, congratulations, that is the biggest hurdle of them all...

Scott, Indiana did not wait to post...he has already commented on the issues. Of course, the peg/Riba are the only things that can kill the hep off but we mustn't forget two things
a)half the people who put themselves through this will not get cured
b)these meds do damage, some of it permanent, so they are not to be taken lightly

The stuff about healthy eating is very important, and not just for hep C. I read yesterday that obesity has taken over from smoking as the biggest preventable killer in the US. Alcohol is way,way behind. There is evidence that the interferon/Riba do not work as well in fat people and that the hepatitis is more rampant. A lot of people on this site talk about alcohol being "miracle grow" for HCV and come down hard on anyone who has just the odd drink, but then they mention they weigh 260 pounds or something....incredible!

[Minttwist]

Just think.....it's over for LIFE!!!!!!

[mikesimon]

Dirac, what wonderful news! I'm thrilled for you. Good health always.
Downthisroad, thanks for articulating so beautifully what we all mean to each other and why we come here. You reminded me of all the wonderful people here. Thanks again.
Cindy, thank you for setting things straight and thank you and Phil for this board. It means so much to so many.

Mike

[madbyron]

With respect to everybody

[cuteus]

I get the impression that as long as certain dissenting opinions and jokes don't mention a specific person by NAME, it will be allowed to remain in the thread.

Dissenting opinions, even if stated as such, and in a respectful manner might still get zapped.  I am confused also.  I guess is that old phrase: we reserve the right .    The key it seems is direct mentioning of names.

I am sad to see in above posts , people shutting people up, and the post remains.

Confusing.    
I am happy the personal attacks might be stopping, some were vicious.
now if we could dissent without getting zapped.

I am truly grateful for the contributions of all that take the time to care, and sorry that some statements might have gotten misinterpreted.
My Opinion.

[audreywald]

I have to laugh, I am on the same regime for mouth stuff. I have the lidocaine, I started taking L-Lysine and also folic acid, after someone here said it too helped the mouth sores. (I research after getting suggestions, and found those statements to be reinforced.) Also, I have every over the counter mouth healer you can imagine. A small pharmacy.

I will be doing shot 11 in 2 days. my mouth (right now, no need to tempt the mouth sore gods) is not hurting much altho it still feels kind of raw. They have me on only 600mg a day right now of riba due to the mouth sores, which had gotten, at their worst, almost unbearable.

My sides vary from hour to hour. My stomach/colon/intestines seem to belong to someone else. Same with my psyche, mostly I am borderline ok, but when I am not , I AM NOT. I think the high dose of zoloft I am on helps me to fight what I could feel would be dangerous depression. I am off to see my shrink in a few minutes. I hope I have the day right!!

Take care, lets hope for us all better days are ahead. There is a saying I love, it was said by the imprisoned Jews during WWII;  

"next year in Jeruseulem" or in my understanding, better times ahead...

[hepcgetlost]

Glad your mouth is better. We have to be grateful for every good thing.

Actually, "next year in Jerusalem" has been said by Jews for the last 2,000 years while in exile, and every year at the Passover seder to this day. but yeah...I'll go for that, next year in Jerusalem, better times for all of us, please.

I scared myself last night, because I started to cry and after a while I was weeping loudly and uncontrollably. That's the first time that ever happened, but I think I've just been trying to hard to not give in to those feelings. Thank goodness I'm on ADs or I'd probably cry all the time.

Today's a new day and I don't feel so awful anymore...not great but good enough and I'll take it! You have a good weekend Audrey...and everyone who's doing their shot tonight, I'll be thinking of all of you (I do mine Mondays)

Judi

[CGTMHI]

You STILL don't get it do you?  

MED HELP REMAINS NEUTRAL REGARDING TX.  Just because we stepped in to stop the character assassination of Teresa Thanbey does NOT mean that we support her theories re: tx.  It does not mean that we DO NOT support her theories either! We are Neutral!

We banned those who broke the rules and will continue to do so to protect the integrity of our forum.  Our rules are simple and clear - if you threaten a person, you will be banned.  

Some may think it is OK to completely trash Ms. Thanbey and Med Help in an open Internet forum, under the guise of "opinion" and "hunches" but Med Help does not!  Do you realize that every single thing you post here can be picked up by the media and spread across the world as gospel?  Yet you tell US that WE are being UNFAIR to those who broke the rules.  Where were YOU when people's lives and integrity were being shattered?  Why didn't YOU speak up about fairness then?

In addition, while it may be far more exciting to believe the conspiracy theories put forth by Balrog and Cuteus, that Med Help will only allow those who agree with us to remain in the forum, the simple truth is that we are so small we don't have the staff necessary to sit for hours going "comment" by "comment" to remove the offending posts.  Therefore I removed whole threads and as many "comments" as I could find.  Sadly, some of the threads may have contained great information from wonderful, supportive people and it is unfortunate that they were deleted.

THINK BEFORE YOU POST is what we ask. Think about the consequences of your words!!  Even if you believe you have irrefutable FACTS - DO NOT POST ANYTHING DERROGATORY ABOUT ANYONE IN ANY MED HELP FORUM!!!

Any questions you have can be sent via e-mail to me and I'll do my best to give you the best answer I can.

Cindy Thompson