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As this is a patient to patient support group, there probably isn't a lot we can tell you. It sounds like he is really struggling with severe health issues--you have my prayers.
There is a GI-PA who reads/posts here, maybe she can give you some ideas, but his issues sound really complex.
I don't know anything about CLL other than it is a disease of the bone marrow. I have Myelodysplasia (MDS) a disease of the bone marrow and Hep C from transfusions in the early 70's for by bone marrow problem. This may not apply to your husband at all but I will share it with you.
My hemo and gastro agreed to treat my Hep C and I tried the the peginterferon with the ribavirin. I did the 3 months spending a great deal of time at the hospital being transfused. I was transfused with over 60 units of red cells and platelets. The treatment had no effect on the Hep C. However, what we hoped would be a temporary decrease in my already diseased bone marrow has not been so temporary. In fact, I'm now looking for a bone marrow donor for a transplant.
I had stage 2 (on a scale of 1 to 4) liver disease when I tried the treatment. Those of us with both Hep C and any type of bone marrow disease have double trouble. In trying to the treat one disease we are almost certainly setting the other disease back. My doctor's greatest concern for my bone marrow transplant is liver failure from the chemo and radiation required for the transplant.
Your husband may be best to wait for new Hep C treatments. I hope I'm still around to try them when they are developed.
Thanks!
There is a GI-PA who reads/posts here, maybe she can give you some ideas, but his issues sound really complex.
I hope he does well.
I don't know anything about CLL other than it is a disease of the bone marrow. I have Myelodysplasia (MDS) a disease of the bone marrow and Hep C from transfusions in the early 70's for by bone marrow problem. This may not apply to your husband at all but I will share it with you.
My hemo and gastro agreed to treat my Hep C and I tried the the peginterferon with the ribavirin. I did the 3 months spending a great deal of time at the hospital being transfused. I was transfused with over 60 units of red cells and platelets. The treatment had no effect on the Hep C. However, what we hoped would be a temporary decrease in my already diseased bone marrow has not been so temporary. In fact, I'm now looking for a bone marrow donor for a transplant.
I had stage 2 (on a scale of 1 to 4) liver disease when I tried the treatment. Those of us with both Hep C and any type of bone marrow disease have double trouble. In trying to the treat one disease we are almost certainly setting the other disease back. My doctor's greatest concern for my bone marrow transplant is liver failure from the chemo and radiation required for the transplant.
Your husband may be best to wait for new Hep C treatments. I hope I'm still around to try them when they are developed.
Best of luck to your husband,
Bob