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Calculating extended treatment

by pommom, Nov 03, 2008 09:29AM
My DR has told me that I will probably need 72 weeks of treatment rather than 48, but that insurance companies typically do not approve the extra treatment.  I read about a study that tried to calculate more accurately the amount of extra treatment needed.  I dropped 2 logs in 4 weeks, and my VL was 100 at 14 weeks.  I was not checked again until week 19 when it was finally undetectable.  Do I need 72 weeks of treatment? or maybe just an extra couple of months.  I will probably try to pay for the meds if the insurance won't.
Member Comments (5)

by nygirl7, Nov 03, 2008 10:01AM
The general rule of thumb is und before week 12 = 48 weeks.  Und after 12 but before 24 = 72.

I did this (72 weeks) a few years ago before it was a widely accepted treatment. The insurance company at that time, declared it experimental. Today, many more doctors realize the necessity of making sure we are truly cured and that our bodies immune system has had enough time to learn to fight the virus and keep it gone. More insurance companies are paying for the entire course of tx.

Since my insurance refused to pay I contacted Comittment to Care (I was on PegIntron) and they did cover all of the meds (the peg and riba) for absolutely free for me for the remainder of tx.  The insurance company paid all the tests and doc visits.

So try and find out in advance if they will pay. Once they send you (if) a denial letter then you have what you need for the drug company to give you the meds.

If you are on pegasys you will need to contact their plan, pegassist and they will help you out.

Good luck.  72 weeks is the way to go to insure you never have to do this again.  It worked for me.

by IAmTheWalrus, Nov 03, 2008 10:53PM
To: pommom
What nygirl said. The 72 week therapy is pretty standard for a slow responder (yep, you're slow), so I find it hard to think that an insurance company would balk at this. Appeal it to the insurance (if you haven't already). An extra 24 weeks of tx is a lot cheaper than having to treat again, the cost of treating cirrhosis, or the cost of transplant.

by pommom, Nov 04, 2008 07:19AM
To: nygirl7
So I thought I was half way done at week 24, but now it looks like another year combined with fighting with the insurance company.  Depressing.  

by IAmTheWalrus, Nov 05, 2008 02:19AM
To: pommom
What Trinity said! You do it one shot at a time. It passes slowly, but it goes. I am at 68 weeks now. It is better to look at what you have accomplished and focus on what is at hand. The more distant future will take care of itself. Just gotta keep at it. My heart goes out to you. I know how you probably feel and sympathize greatly. Don't let depression take hold of you. Serious depression is a common side effect of TX and is a very common reason people fail on TX. I hope someone close to you is keeping an eye on you for these type of changes as they can occur in a way that you may not see or be able to deal with.

Music is something I use to take some refuge from the side effects and ailments. Find things you like or love and concentrate on them. Sounds trite, but it has helped me.

Best to you,
Brent

by kickboxingmom, Nov 05, 2008 07:58AM
To: pommom,
I also had to fight the insurance Com.Once you receive that denial letter, you can also write a letter to them yourself and send proof as to the reasoning behind tx for 72.It worked for me.I had been denied 4 times.
God Bless,
Tammy
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